I am so glad you guys are talking about this, because I have been having so many problems with my BP that I'm about ready to pull my hair out. That is of course if I was able to do so.
I went in to see the doctor on the 19th of last month and I went through great pains to explain to her that I have woken up virtually every morning with a BP of at least 138/89 and more often than not I am 150/100 or higher. Sometimes when I do my breathing treatments the BP goes back down to the normal range. But regardless of where my BP is when I start the day, every time I get into the wheelchair it bottoms out. This is normal, even when my blood pressure is completely within its normal range, but it is such an enormous drop to go from 180/103 down to 80/64 within a matter of five or six minutes. Unfortunately she really had no clue as to what is causing the problem. I had the advantage of being able to feel my bladder and my bowels, so I know there were no problems there. My bladder was flowing freely and I had changed my catheter in a timely matter. The bowels had been emptied the night before, so there was no obstruction there. We checked my body over and found no indications of skin degradation. She consulted my last sonogram (performed in late January) and it was clear of any stones in the bladder. There was one small stone in the left kidney that is not obstructive. Then she looked at the renal scan I had performed in July and didn't see anything wrong with it. The only thing out of the ordinary that I have found is that my PCA comes in and empties the urine before she starts performing all of my daily rituals. When she's ready to get me up, she empties the bed back one more time and often I have about 1500 mL more than I actually consumed. My tele-nurse is quite concerned about the blood pressure, but right now I don't know what to do. This is definitely a new experience for me. Quadius PS I'm still trying to make sure this voice profile is a little more accurate than my last, so please bear with me on me voice recognition. :-) On Thu, Mar 4, 2010 at 10:07 AM, t crook <[email protected]> wrote: > My BP has been as low as 50's/30's; I take fludricortisone (0.1mgs I > think) a day, and 5Mg's of midodrine 3 to 4 times a day. I bounce all over > with my BP; it is so situational, for instance, if my volume is up (lots of > fluids) my pressure isn't bad, low fluids=low pressure, during my bowel > routine my pressure is up, hours after the program I am super low. > If I get hot my pressure is low and or dropping, cold wash cloth will snap > me out of it temporarily. > Tim > > WhoopieKat.com <http://www.whoopiekat.com/> > > > --- On *Wed, 3/3/10, Greg <[email protected]>* wrote: > > > From: Greg <[email protected]> > Subject: RE: [QUAD-L] Dizzy? > To: "'william Ray'" <[email protected]> > Cc: [email protected] > Date: Wednesday, March 3, 2010, 3:58 PM > > > I get a little dizzy every day for short bits of time. When I first sit > up, after bm, after eating, after I exert energy, etc. but it goes away > after awhile.. The last 2 days have been real bad for hours. It happened > again today while out on a walk with my dog. I just pulled up to the side of > a corner store and reclined. I tried sitting up and it would come rushing > back. Then I thought it was better and I’d start going again and Bang, it > would hit again. I think I spent 20 minutes reclined in the parking lot. I’d > almost call home, but I’d start feeling better. I felt good enough to > continue, but still felt tired and light headed. I know my BP is often low, > it’s been as low as 75/?, but most often it’s in the 80s or low 90s. I hate > taking meds, but if it would make me less tired too. > > > > William… > > You might try some meds to help too. Do you wear an abdominal binder? I > also wrapped my legs in ace bandages when first sitting up in rehab. > > You gotta stay up some. The longer you are in bed, the harder it will be to > sit up. > > Does your chair recline? > > > > Grefg > ------------------------------ > > > > I have experienced dizzy spells every time I've gotten into my chair. This > has been going on even one rehab 10 years ago. The doctors in rehab Baylor > medical center, Dallas , knew that I had a problem. The rehab experience > was pretty much ineffective. I have spent very little time in my wheelchair > as a result of this dizziness. I have no solution! Bill Ray > > >
