I really would get a second opinion if possible. I have a suprapubic and although I have the occasional UTI, I think it's been a godsend. Other people haven't had as good of results, but I would definitely get some other opinions.
Good luck. Quadius On Mon, May 17, 2010 at 7:31 PM, <[email protected]> wrote: > I am a C-4 quad with an indwelling Foley catheter. My urologist says that > my urethra is eroding, and suggests I have a procedure called a urostomy. He > performed a procedure called Urodynamic, which measures the amount of urine > your bladder can hold. Mine is holding less than an ounce of urine. So now > he wants to remove my bladder, and make me a new one using part of my small > intestine. During this procedure, both ureters are relocated, a new bladder > is made, and urine as directed from the body through a stoma in the abdomen, > which connects to a bag that adheres to the skin. I am going to the hospital > on Tuesday to have an MRI, to make sure that it's safe for me to have this > procedure because I also have Crohn's disease and disturbing my small > intestine, may cause my Crohn's to flareup (which is a very terrible thing). > > My dilemma is this: I have to choose between having this very invasive > surgery, and all of that may come after it including infection from many > sources, including the new bladder, ureter relocation, the stoma, and skin > irritation from the adhesive for the bag, and not to mention the Crohn's > flareup > > Or. > > I can wear incontinent briefs which I don't have anyone to change them, > because there's just me and my 80 year old mother, living together. She > won't be able to change them throughout the day. I have an aide comes in the > morning and gives me a bed bath and get me in my wheelchair. The rest of the > day, there's just me and my mom here until bedtime (around 9:00 PM) when my > nighttime aide comes to put me to bed. My catheter bag is usually not > emptied from morning to night. My mom cannot handle me to change briefs, and > if they're left on, I would have all types of sores. > > Does anyone on this list have a urostomy? If so, how is it working for you? > I would love to hear what others have to say regarding my dilemma. > > Naomi. > C-4 quadriplegic due to Transverse Myelitis > since July 2, 2005 > > Have a Blessed Day, Naomi >
