I hear two things going on here (as others have mentioned). The feeling of being cold and "cold sweats". Very briefly, I have been a C4-5 Quad since '88 (23 years).
In the early years it is very common for me to sun bathe for hours in 90 degree weather, require a space heater blowing on me, or sit under heated blankets in the house. Most Quads I've known "out grow" the need for the room to be 80-85 degrees or being bundled up all the time. This has been explained to me that the brain does not know how to regulate a body it cannot communicate with. So, once the "mental trigger" is pulled that you are "cold". It takes extreme lengths of heat to get the trigger reset. In my experience this happened a lot during the first 5 years. Since then it only happens if either I'm not dressed appropriately and I do actually get cold or my brain is not "busy" thinking about something other than the temperature of the room. I live in a home that I keep at 77 degrees in Summer and 72 in Winter. I work in a room that they keep 72 all the time. The key is to figure out how you need to dress to be comfortable. At work I keep a shawl handy (yes, a guy with a shawl). I'd rather look a little different than deal with needing to "reset" my brain. Cold sweats are occuring due to pain (just as you've read from others). It is VERY IMPORTANT that you identify the source of the pain. This is the way that Quads know something is wrong. Typically things you'll experience are a "flush" feeling, sweating, increased spasms, and chill bumps. All of these are signs of mild to moderate Dysreflexia. (VERY IMPORTANT: If you don't know about Dysreflexia, reasearch it!) As long as you don't have a headache, red face, and splotchy bright redness on your shoulders and chest, then it's not severe, immediate Dr or hospital type Dysreflexia. I have completely soaked shirts before. And, very oddly I sweat in very specific places like only my left forehead and left shoulder. Usually it is a bladder infection, but more often I may hit my knee under a table and know I need to re-position myself. I hope some of this helps. Hang in there! To this day I still tell myself "This, too, shall pass." It will, you'll move on through this phase. Good luck! Aaron Mann On Mon, Sep 26, 2011 at 10:11 AM, Rene Bullard <[email protected]> wrote: > Message body > IS THERE ANYONE OUT THERE THAT HAS TO DILL WITH BEEING COLD 24 7 AND > SWEATTING ALL THE TIME CALL ME 405-567-5306 >
