Well bobbie Im going through similar stuff. Got diagnosed with a syrinx in 2004. Pain all the time, then last july my appendix burst and I spent a month in the hospital and almost died. I recovered ok but then developed a hernia and went into the hospital for another surgery. Was looking forward to a good summer and bought a new van. Well guess what, the hernia is back and Im not sure what the next step is. Im trying to fight but depression and terrible thoughts plague me on a daily basis. The conclusion I have come up with is I think this is better than death, still have a gf and a newer van......if I hold out it has to get better. Ron c7......Sleepless in St. louis --- On Fri, 3/16/12, Bobbie Humphreys <[email protected]> wrote:
From: Bobbie Humphreys <[email protected]> Subject: [QUAD-L] What next? To: "[email protected]" <[email protected]> Date: Friday, March 16, 2012, 9:40 PM Hi All, I've been dealing with this C-4,5,6,7 quad life for almost 39 years and "… I thought all I'm going to have to deal with is not being able to walk" I've come to realize ~ that's the easy part. I also thought I was never going to be dating but I met my first boyfriend in ICU and only stopped dating 9 years later when I met my husband in a bar. I've gone through insane mussel spasms, sweating day and night (including winters) for 15 years, bed sores, surgery, urological procedures (that I no longer do) illiostomy surgery, bed sore surgery, ryzodomy surgery, bed sore surgery, depression, syrnix, in bed for 9 months because of bed sores, breaking my leg while dancing, depression. I can't help but think "What's next as my quad body ages"? I sooooooooo realize things could be worse, but is THAT a comfort? Bobbie
