Hi Bobbie, I am so sorry dancing caused a sore. Was your cushion not inflated enough. I wish they had some kind of warning signal if OUR wheelchair cushions are going flat, because we cannot always tell. I remember reading something about a cushion that did that but I do not remember the name. This was a number of years ago. I remember we were talking about the cushion that is like an alternating mattress but costs about USD4000. I cannot quite remember the name of it now. I was thinking about getting one when the power cord of my laptop got under my bottom and I was in bed for six months.
I think you can dance again but just in a different way. It might need to be on slow speed, with no rapid movements. It takes so little to cause skin break down. It takes us so long to heal. I still sleep in a waterbed, which never causes any problems. My brother built a frame underneath so I can use my Hoyer to go under the bed, so I can get out of bed and I use my sliding board to get in bed. I have only had to replace the mattress two times in 25 years. It is so warm also. If you have a sore on one side, you can stay longer on the other side without hurting your skin. Does anyone else use a waterbed? I am anxious to hear everyone's stories about rehab coming home. That was a great question. Dana In a message dated 10/17/2013 2:41:26 P.M. Central Daylight Time, [email protected] writes: I know what you mean Dan. I just got a brand new power chair with center wheel drive (my first one) and after having it 6 weeks+ I decided to practice dancing. Pete and I like to go to jazz concerts and dance. But by putting the chair in high Greer and going extreme right then left then right again ... I got a super fiscal sore on my butt. Yesterday was 3 weeks and I'll probably be in for another 3 weeks. So, now I can't dance : (. Bobbie Smile Everyday On Oct 17, 2013, at 12:31 PM, Danny Hearn <[email protected]_ (mailto:[email protected]) > wrote: When things are going wrong for a quad it does cause worry and anxiety, my roho lost air under my rear causing a pressure sore....man now I feel sick, because little things like that can be a big problem and take tons of time to get better.(plus trying to get it replaced with insurance red tape and etc.) Greg have your doc write a script for a low dose of zanex when getting anxiety, that will help you. good luck, Dan H** From: greg <[email protected]_ (mailto:[email protected]) > To: quad-list <[email protected]_ (mailto:[email protected]) > Sent: Thursday, October 17, 2013 11:04 AM Subject: [QUAD-L] anxiety I'll try this again. It got sent before I was done. I am considering surgery on my pressure wound on my butt. But that would mean 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. Right now I'm trying to stay in bed most of the time, only getting up for a couple hours. My biggest concern is anxiety. It rarely happens, but if I get really overheated or really constipated, I get A.D. Not only do I sweat, headaches, claustrophobic, I get this really bad anxiety. Where I just can't stop worrying about little things. It's only happens about once or twice a year. If that even. Though it happened the other night. Actually two times this week. I think being stuck in bed has helped cause it. I started worrying about my pressure wound, and then I start worrying about totally unrelated things. Then I start to worry about what if I start to worry. What if a week after the surgery it happens again. When it happens nothing seems to help unless I get up. Once I get over it I think to myself how foolish it was to worry about that. The Dr. gave me something for anxiety once, but by the time I needed it it had expired. It may take two or three times longer to heal up, but I can get up for one or two hours a day. Or do I just risk it, have the surgery, and hope I don't have any issues. My wound was on its way to being healed up when the cushion went flat, then when I had my ostomy surgery it took twice as long as it was supposed to and being on the surgery table caused the wound to be set back a little more. It's hard to figure out what to do. Greg =
