blood tests and I think it's an MRI? It's been some time so I don't remember 
but a good infectious disease specialist doctor will know what test do.



On Friday, October 18, 2013 6:53 AM, "[email protected]" <[email protected]> wrote:
 
Hi Bobbie,

I am so sorry dancing caused a sore.  Was your 
cushion not inflated enough.  I wish they had some kind of warning signal 
if OUR wheelchair cushions are going flat, because we cannot always tell.  
I remember reading something about a cushion that did that but I do not 
remember 
the name.  This was a number of years ago.  I remember we were talking 
about the cushion that is like an alternating mattress but costs about 
USD4000.  I cannot quite remember the name of it now.  I was thinking 
about getting one when the power cord of my laptop got under my bottom and I 
was 
in bed for six months.


I think you can dance again but just in a different way.  It might 
need to be on slow speed, with no rapid movements.  It takes so little to 
cause skin break down.  It takes us so long to heal.

I still sleep 
in a waterbed, which never causes any problems.  My brother built a frame 
underneath so I can use my Hoyer to go under the bed, so I can get out of bed 
and I use my sliding board to get in bed.  I have only had to replace the 
mattress two times in 25 years.  It is so warm also.  If you have a 
sore on one side, you can stay longer on the other side without hurting your 
skin.

Does anyone else use a waterbed?

I am anxious to hear 
everyone's stories about rehab coming home.
That was a great 
question.
Dana
In a message dated 10/17/2013 2:41:26 P.M. Central Daylight Time, 
[email protected] writes:
 
>I know what you mean Dan. I just got a brand new power chair with center  
>wheel drive (my first one) and after having it 6 weeks+ I decided to practice  
>dancing. Pete and I like to go to jazz concerts and dance. But by putting the  
>chair in high Greer and going extreme right then left then right again ... I  
>got a super fiscal sore on my butt. Yesterday was 3 weeks and I'll probably be 
> in for another 3 weeks.
>  So, now I can't dance : (.     Bobbie 
>
>Smile 
  Everyday
>
>On Oct 17, 2013, at 12:31 PM, Danny Hearn <[email protected]>  wrote:
>
>
>When things are going wrong for a quad it does cause worry and  anxiety, my 
>roho lost air under my rear causing a pressure sore....man now I  feel sick,  
>because little things like that can be a big problem and  take tons of time to 
>get better.(plus trying to get it replaced with  insurance red tape and etc.) 
>Greg have your doc write a script for a low  dose of zanex when getting 
>anxiety, that will help you. good luck, Dan  H**
>>
>>
>>From: greg <[email protected]>
>>To: quad-list <[email protected]> 
>>Sent: Thursday, October 17, 2013 11:04  AM
>>Subject: [QUAD-L]  anxiety
>>
>>
>>
>> 
>>I'll try this  again. It got sent before I was done.
>> 
>>I am considering  surgery on my pressure wound on my butt. But that would 
>>mean 4 to 6 weeks in  bed absolutely not getting up. I'm not sure I could do 
>>that. Right now I'm  trying to stay in bed most of the time, only getting up 
>>for a couple hours.  My biggest concern is anxiety. It rarely happens, but if 
>>I get really  overheated or really constipated, I get A.D. Not only do I 
>>sweat, headaches,  claustrophobic, I get this really bad anxiety. Where I 
>>just can't stop  worrying about little things. It's only happens about once 
>>or twice a year.  If that even. Though it happened the other night. Actually 
>>two times this  week. I think being stuck in bed has helped cause it. I 
>>started worrying  about my pressure wound, and then I start worrying about 
>>totally unrelated  things. Then I start to worry about what if I start to 
>>worry. What if a week  after the surgery it happens again. When it happens 
>>nothing seems to help  unless I get up. Once I get over it I
 think to myself how foolish it was to  worry about that. The Dr. gave me 
something for anxiety once, but by the  time I needed it it had expired.
>> 
>>It may take two or  three times longer to heal up, but I can get up for one 
>>or two hours a day.  Or do I just risk it, have the surgery, and hope I don't 
>>have any  issues.
>> 
>>My wound was on its  way to being healed up when the cushion went flat, then 
>>when I had my ostomy  surgery it took twice as long as it was supposed to and 
>>being on the surgery  table caused the wound to be set back a little more.
>> 
>>It's hard to figure  out what to do.
>> 
>>Greg
>> 
>>
>>=

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