I did have one of the best wound nurses from a home health agency in the area that would take care of my sore when it would get out of hand, but it's in a spot that don't have much meat. She took a job at a hospital wound clinic and was consulting for the agency but they sent out a nurse (I'll call her Ms. know it all) and after a personal call to the wound consultant, I got a bone scan and spent 5 days in the hospital and 8 weeks of vankomyacin.. After the hospital Ms. know it all was back and I went to the Kaiser outpatient clinic once a month, they knew less then me. After a few tries I got rid of Ms. Know not much when she took two weeks vacation and her replacement who knew more after one visit agreed to take over my case, things are progressing slowly but in the right direction. I sleep on a low airloss matterass and use a roho cushion on my chair.
Don ________________________________ From: Monty <[email protected]> To: Don Smith <[email protected]>; quadriplegic <[email protected]> Sent: Thursday, October 17, 2013 12:54 PM Subject: Re: [QUAD-L] anxiety I speak from experience of having a bone infection on my bottom! I had this old bag of bones nurse that thought she knew everything and went months before getting a wound clinic appointment. Discovering that I had a bone infection, a round IV antibiotics started to turn it around and then failed. So after researching myself on my activity level and trying everything else surgery was the next option. It's absolutely necessary to take those six weeks after surgery not get up for any amount of time! What kind of mattress are you sleeping on? I have an alternating air overlay on my bed and no issue with skin integrity for many years now. I have spent the last five weeks in bed because of a broken leg and hoping to get liberated next week during my doctors appointment. Are you going to a wound clinic on a regular basis? What kind of treatments have they tried? I would make sure you don't have a bone infection first and getting a second opinion is another perfect option also. I had a bone infection in my arm just below the elbow and that was nearly a four-year battle before leaving town and finding doctors that knew what they were talking about two hours from me. Anxiety I've had a few different times but for the most part it's not been an issue. Any other questions feel free to ask. Monty of Indiana 3/4c nearly 20 years post injury On Thursday, October 17, 2013 2:47 PM, Don Smith <[email protected]> wrote: I sleep in my living room because I cant get into the bedroom because my wheelchair is to big, I also live alone but have a pca twice a day. I'm also dealing with a ischeal tube pressure sore, it's small but chronic. When I have an issue with anxiety I turn on my fan and if that don't help I take 10mgs of Valium which I keep in reach, it doesn't happen often but can be scary. Don ________________________________ From: greg <[email protected]> To: quad-list <[email protected]> Sent: Thursday, October 17, 2013 9:04 AM Subject: [QUAD-L] anxiety I'll try this again. It got sent before I was done. I am considering surgery on my pressure wound on my butt. But that would mean 4 to 6 weeks in bed absolutely not getting up. I'm not sure I could do that. Right now I'm trying to stay in bed most of the time, only getting up for a couple hours. My biggest concern is anxiety. It rarely happens, but if I get really overheated or really constipated, I get A.D. Not only do I sweat, headaches, claustrophobic, I get this really bad anxiety. Where I just can't stop worrying about little things. It's only happens about once or twice a year. If that even. Though it happened the other night. Actually two times this week. I think being stuck in bed has helped cause it. I started worrying about my pressure wound, and then I start worrying about totally unrelated things. Then I start to worry about what if I start to worry. What if a week after the surgery it happens again. When it happens nothing seems to help unless I get up. Once I get over it I think to myself how foolish it was to worry about that. The Dr. gave me something for anxiety once, but by the time I needed it it had expired. It may take two or three times longer to heal up, but I can get up for one or two hours a day. Or do I just risk it, have the surgery, and hope I don't have any issues. My wound was on its way to being healed up when the cushion went flat, then when I had my ostomy surgery it took twice as long as it was supposed to and being on the surgery table caused the wound to be set back a little more. It's hard to figure out what to do. Greg
