I'm going to go on for as long as I can. Hell ... I want to be in the Guinness Book of Records as oldest living quad. Doubt it will happen, but what the hey.
I guess I'm just usually an optimist. I can't fathom giving up. Yes, I have physical problems, but I just keep going. I do all the tests, though this years colonoscopy will probably be the last. I love life. Even though I spend most of my time at home with my pc, music and books (Hey, I live in western NY - who wants to go outside?), I love life. The only thing that could be better would be living in FL!!! Nan On Saturday, March 15, 2014 3:42 PM, Larry Willis <[email protected]> wrote: Meredith, look at the last posts by myself and Bobbie. That is exactly how we feel. We are both over 40 yrs post and have reach the "enough is enough" point. Unless I am suffering with pain -- whatever will be, will be. ---------- Forwarded message ---------- From: <[email protected]> Date: Saturday, March 15, 2014 Subject: Re: [QUAD-L] Stuck in bed for over a month, sores, procedures and other quad stuff To: quad-list <[email protected]> I feel bad for all of you guys having all those complicated hospital stays. It is such a drag all the continuous health conditions that we Quads have to deal with. I myself have been pretty lucky so far, oh yeah I am dealing with 2 pressure sores that I don't have the patience to even be worried about. However lately I know that there is something really wrong with my digestive system, not the usual BS. I fear it is bad because I have experienced severe A.D. lately and I am worried. On the other hand I just cannot worry about one more thing. I'm getting too old for this and i don't care to do procedures and such to find bad news that I won't follow up on. Do you all feel the same or different? Meredith ________________________________ From: [email protected] To: "r pracht" <[email protected]>, [email protected] Sent: Friday, March 14, 2014 10:57:47 AM Subject: Re: [QUAD-L] Stuck in bed for over a month Hi all, Sorry to hear about your hospital experiences Ron. That was really rough to come home in be by yourself right after surgery. I certainly hope that you are shearing from dancing heal quickly.. I had a similar situation and I always wonder why our needs are still so misunderstood in-hospitals. It is always a nightmare to have surgery, IV's for a UTI, pneumonia, bowel blockages, wounds needing a wound VAC for two months and then skin graft. One UTI caused a coma twice, intubation after several surgeries. So many nurses have never suctioned.. They still don't understand digitals and the bowel routine. I do believe I have had a member of near-death experiences through hospitalizations. What are your opinions? I have never heard of lorazepam. I'll have to look it up.. Dana In a message dated 10/29/2013 9:12:08 P.M. Central Daylight Time, [email protected] writes: I did over a month in the hospital when my appendix burst in 2011. I had a 14 inch incision down my abdomen area and was hooked up to a wound vac. My bowells shut down completely and I couldn't eat or drink for close to three weeks. Did have minimal sips of water but had the tube in my nose and would throw up if i cheated. Every other day my father would come in and between the two of us straining, I would attempt to get onto the bowell chair. It was scary with no results, pain, passing out on the chair but it had to be done and the nurses werent going to do it. I normally straight cathe independently, but was hooked up to a foley and that got plugged up and i went dysreflexic bad, and they still didn't believe it was clogged til I went crazy. The same hospital that taught me how to live as a quad and about dysrelexia, suddenly didn't know what i was referring to. I told the infectious disease doc to please look it up and at least prescribe something to lower my blood pressure during these times. It was crazy to be in bed and deal with so much, lorezapam helped me from going crazy at night. I just kept hoping I could get out of there without any secondary complications, but I got c-diff. Then everybody treated me like I had the plague..........wearing gowns and masks. My family refused to wear them because it was pointless because they were so involved with my care.........my gf at the time and father did about everything to keep the nurses happy. Somehow i made it out of there and could very slowly and dangerously get in bed and cathe myself. Dad went back to second shift the day I went home and i had to survive from 2 to midnight alone. I wasn't sure how fast or if I would fully recover. I wouldn't say Im as good as b4 all that happenned , but Im good enough to make it . Gf broke up with me, swim organization changed things so i couldn't go back, counselor quit.......and I fell pretty hard emotionally. Im still here though and with that there is hope. > >Ron > > > >From: Gmail <[email protected]> >To: greg <[email protected]> >Cc: "<[email protected]>" <[email protected]> >Sent: Tuesday, October 29, 2013 7:56 PM >Subject: Re: [QUAD-L] Stuck in bed for over a month > > > >Greg, > I was in Nov. 2013- May 2013 and AGAIN now 5 weeks without getting up AT >ALL!!!! >What do you do to keep your mind busy? >I read, write, watch TV and on my life saver the ipad. Bobbie > > >Smile Everyday > >On Oct 29, 2013, at 5:42 PM, greg <[email protected]> wrote: > > > >Yes, since July. >>But I do get up for a couple of hours a few days a week. >>Pressure sore on my butt >>I just don't think I can do the surgery. Having to go 4-6 weeks with no >>getting up at all. >>I need a bit of sun a few days a week. I went a whole week once and it did >>not heal any faster that week. >>Greg >> >>> Hi All, >>> Is there anybody else right now who has been stuck in bed for a >>> month or more? Just wondering. Bobbie >>> >>> Smile Everyday > > >
