I feel EXACTLY the same way. Some Doctor's say they understand but others don't . . . I really don't give a shit if they disagree, it' my freaking BODY! Bobbie
Smile Everyday > On Mar 15, 2014, at 12:45 PM, [email protected] wrote: > > I feel bad for all of you guys having all those complicated hospital stays. > It is such a drag all the continuous health conditions that we Quads have to > deal with. I myself have been pretty lucky so far, oh yeah I am dealing with > 2 pressure sores that I don't have the patience to even be worried about. > However lately I know that there is something really wrong with my digestive > system, not the usual BS. I fear it is bad because I have experienced severe > A.D. lately and I am worried. On the other hand I just cannot worry about one > more thing. I'm getting too old for this and i don't care to do procedures > and such to find bad news that I won't follow up on. > > Do you all feel the same or different? > > Meredith > From: [email protected] > To: "r pracht" <[email protected]>, [email protected] > Sent: Friday, March 14, 2014 10:57:47 AM > Subject: Re: [QUAD-L] Stuck in bed for over a month > > Hi all, > > Sorry to hear about your hospital experiences Ron. That was really rough to > come home in be by yourself right after surgery. I certainly hope that you > are shearing from dancing heal quickly.. > I had a similar situation and I always wonder why our needs are still so > misunderstood in-hospitals. It is always a nightmare to have surgery, IV's > for a UTI, pneumonia, bowel blockages, wounds needing a wound VAC for two > months and then skin graft. One UTI caused a coma twice, intubation after > several surgeries. So many nurses have never suctioned.. They still don't > understand digitals and the bowel routine. I do believe I have had a member > of near-death experiences through hospitalizations. What are your opinions? I > have never heard of lorazepam. I'll have to look it up.. > Dana > > In a message dated 10/29/2013 9:12:08 P.M. Central Daylight Time, > [email protected] writes: > I did over a month in the hospital when my appendix burst in 2011. I had a 14 > inch incision down my abdomen area and was hooked up to a wound vac. My > bowells shut down completely and I couldn't eat or drink for close to three > weeks. Did have minimal sips of water but had the tube in my nose and would > throw up if i cheated. Every other day my father would come in and between > the two of us straining, I would attempt to get onto the bowell chair. It was > scary with no results, pain, passing out on the chair but it had to be done > and the nurses werent going to do it. I normally straight cathe > independently, but was hooked up to a foley and that got plugged up and i > went dysreflexic bad, and they still didn't believe it was clogged til I went > crazy. The same hospital that taught me how to live as a quad and about > dysrelexia, suddenly didn't know what i was referring to. I told the > infectious disease doc to please look it up and at least prescribe something > to lower my blood pressure during these times. It was crazy to be in bed and > deal with so much, lorezapam helped me from going crazy at night. I just kept > hoping I could get out of there without any secondary complications, but I > got c-diff. Then everybody treated me like I had the plague..........wearing > gowns and masks. My family refused to wear them because it was pointless > because they were so involved with my care.........my gf at the time and > father did about everything to keep the nurses happy. Somehow i made it out > of there and could very slowly and dangerously get in bed and cathe myself. > Dad went back to second shift the day I went home and i had to survive from 2 > to midnight alone. I wasn't sure how fast or if I would fully recover. I > wouldn't say Im as good as b4 all that happenned , but Im good enough to make > it . Gf broke up with me, swim organization changed things so i couldn't go > back, counselor quit.......and I fell pretty hard emotionally. Im still here > though and with that there is hope. > > Ron > > > From: Gmail <[email protected]> > To: greg <[email protected]> > Cc: "<[email protected]>" <[email protected]> > Sent: Tuesday, October 29, 2013 7:56 PM > Subject: Re: [QUAD-L] Stuck in bed for over a month > > Greg, > I was in Nov. 2013- May 2013 and AGAIN now 5 weeks without getting up > AT ALL!!!! > What do you do to keep your mind busy? > I read, write, watch TV and on my life saver the ipad. Bobbie > > Smile Everyday > > On Oct 29, 2013, at 5:42 PM, greg <[email protected]> wrote: > > Yes, since July. > But I do get up for a couple of hours a few days a week. > Pressure sore on my butt > I just don't think I can do the surgery. Having to go 4-6 weeks with no > getting up at all. > I need a bit of sun a few days a week. I went a whole week once and it did > not heal any faster that week. > Greg > > > Hi All, > > Is there anybody else right now who has been stuck in bed for a > > month or more? Just wondering. Bobbie > > > > Smile Everyday > > >
