Hi all,

Sorry to hear about your hospital experiences Ron. That was  really rough 
to come home in be by yourself right after surgery. I certainly  hope that 
you are shearing from dancing heal quickly..
I had a similar  situation and I always wonder why our needs are still so 
misunderstood  in-hospitals. It is always a nightmare to have surgery, IV's 
for a UTI,  pneumonia, bowel blockages, wounds needing a wound VAC for two 
months and then  skin graft. One UTI caused a coma twice, intubation after 
several  surgeries. So many nurses have never suctioned.. They still don't 
understand  digitals and the bowel routine. I do believe I have had a member of 
near-death  experiences through hospitalizations. What are your opinions? I 
have never heard  of lorazepam. I'll have to look it up..
Dana
 
 
In a message dated 10/29/2013 9:12:08 P.M. Central Daylight Time,  
[email protected] writes:

   
 
I did over a month in the hospital when my appendix burst in 2011.  I had a 
14 inch incision down my abdomen area and was hooked up to a wound  vac. My 
bowells shut down completely and I couldn't eat or drink for close to  
three weeks. Did have minimal sips of water but had the tube in my nose and  
would throw up if i cheated. Every other day my father would come in and  
between the two of us straining, I would attempt to get onto the bowell chair.  
It was scary with no results, pain, passing out on the chair but it had to be 
 done and the nurses werent going to do it. I normally straight cathe  
independently, but was hooked up to a foley and that got plugged up and i went  
dysreflexic bad, and they still didn't believe it was clogged til I went  
crazy.  The same hospital that taught me how to live as a quad and about  
dysrelexia, suddenly didn't know what i was referring to. I told the  
infectious 
disease doc to please look it up and at  least prescribe something to lower 
my blood pressure during these times. It  was crazy to be in bed and deal 
with so much, lorezapam helped me from going  crazy at night. I just kept 
hoping I could  get out of there without any  secondary complications, but I 
got c-diff. Then everybody treated me like I  had the plague..........wearing 
gowns and masks. My family refused to wear  them because it was pointless 
because they were so involved with my  care.........my gf at the time and 
father did about everything to keep the  nurses happy. Somehow i made it out of 
there and could very slowly and  dangerously get in bed and cathe myself. 
Dad went back to second shift the  day I went home and i had to survive from 2 
to midnight alone. I wasn't  sure how fast or if I would fully recover. I 
wouldn't say Im as good as b4 all  that happenned , but Im good enough to 
make it . Gf broke up with me, swim  organization changed things so i couldn't 
go back, counselor  quit.......and I fell pretty hard emotionally. Im still 
here though and  with that there is hope.
 
Ron    



 
 

From: Gmail  <[email protected]>
To: greg <[email protected]>  
Cc:  "<[email protected]>" <[email protected]> 
Sent: Tuesday, October 29, 2013 7:56  PM
Subject: Re: [QUAD-L]  Stuck in bed for over a month



 
Greg,
      I was in Nov. 2013- May 2013 and AGAIN now 5 weeks  without getting 
up AT ALL!!!!
What do you do to keep your mind busy?
I read, write, watch TV and on my life saver the ipad.    Bobbie 

Smile Everyday

On Oct 29, 2013, at 5:42 PM, greg <[email protected]_ 
(mailto:[email protected]) > wrote:




Yes, since July.
But I do get up for a couple of hours a  few days a week.
Pressure sore on my butt
I just don't think I can do the surgery.  Having to go 4-6 weeks with no 
getting up at all.
I need a bit of sun a few days a week. I  went a whole week once and it did 
not heal any faster that  week.
Greg
 
> Hi All,
> Is there anybody else  right now who has been stuck in bed for a
> month or more? Just  wondering.  Bobbie
>
> Smile  Everyday











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