Most people think if your arms work at all you are a paraplegic from the waist down. They believe that a quadriplegic has no function from the neck down. By the time you argue your point across , they just look at you like a deere in headlights and might snub you the next time you meet them. I let a lot go now unless someone downright insults my rights as a human being to share air equally with them.
On Thursday, December 4, 2014 1:03 AM, Nadeana Halamar <[email protected]> wrote: thats so fd i wish their was a way to get things out about us and some think paras and quads r the same On Tue, Nov 25, 2014 at 10:27 PM, RONALD L PRACHT <[email protected]> wrote: There are many reason doctors wont operate on a quad > > >1) Much more risk involved of failure or complications >2) Some doctors don't want to be involved with risky patients when they can >just stick with standard cases. >3) Some doctors fall on the saying, " your a quad that's the reason you have >pain" >4) If they make a mistake with a syrinx you could end up further paralyzed >which I don't know if the risk is as much as thy scare you with. >5) Many quads don't have good insurance and the bills get in 6 digits real >quick. Its a loser for the hospital. > > >The same reason some pilots wont fly with a quad on board. > > > > > >On Tuesday, November 25, 2014 7:45 PM, greg <[email protected]> wrote: > > > > >What does being a quad have to do with not operating? >I'm a quad and have had a few operations. >Not for my syrinx, but he doc said I should when needed. >Greg > > >> I started having pain ten years ago. Im scared to get an mri and >> see whats going on. The doctors here in St. Louis at Washington >> university wouldn't operate on me at that time because I was a >> quad. I just wanted them to drain my syrinx and see if it helped. A >> girl I know that's a para had the same thing as me and she got >> help. It all sucks but just take it one day at a time. >> >> >> Ron >> >> >> On Monday, November 24, 2014 7:59 AM, alcibiates2 >> <[email protected]> wrote: >> >> >> I was told it was disintegrating disc disease. There's no cure for >> it. It causes nerves to be pinched as well as making it impossible >> to position comfortably. Spending long times sitting in the chair >> is really painful.I'm to the point now where I get out of bed for a >> couple hours each day. >> Best wishes. >> john s >> >> >> Sent from my Verizon Wireless 4G LTE smartphone >> >> >> -------- Original message -------- >> From: Danny Hearn >> Date:11/24/2014 5:44 AM (GMT-05:00) >> To: alcibiates2 ,[email protected] >> Subject: Re: [QUAD-L] Autonomic Dysreflexia >> >> John, I read that many quads develope disc problems in their backs, >> did they do anything for yours or do you just get by as best you >> can with that?? thanks, Dan** >> >> >> On Sunday, November 23, 2014 6:55 PM, alcibiates2 >> <[email protected]> wrote: >> >> >> Dan, I've had some fractures that were almost >> undetectable but really sent my bp up and pulse way down. Just the >> weight of my foot separated my tibia at the mantle below the knee. >> Chalky bones and deterioration of spinal disc's have played hell >> with me. Try sitting straight up and take something for pain. Don't >> recline until your pulse returns to your normal never be afraid to >> 911 yourself to an er. >> Tip:take a copy of a medical definition of AD with you along with >> your med list. I swear they can be pig ignorant of what is going on >> and what to do. Help has gotten ambivalent in Cincinnati. >> Best Wishes, >> John s >> >> >> Sent from my Verizon Wireless 4G LTE smartphone >> >> >> -------- >> Original message -------- >> From: Danny Hearn >> Date:11/23/2014 4:42 AM (GMT-05:00) >> To: [email protected] >> >> Subject: [QUAD-L] Autonomic Dysreflexia >> >> Man, I hate having dysreflexia and unable to find the cause, I have >> been having it on and off for about 3 days and have had almost no >> sleep for the last 2 days. Bladder and bowels all seem fine-no >> pressure sores or etc. that we can find. When I try to lay down at >> night after a while I get real hot and clammy, my heart begins to >> pound and act up. I do have a syrinx and bad neck and back pain but >> not sure if that can be the problem. I guess Monday I'll try to >> call my primary doctor and get checkup and bloodwork for a start, >> This stuff is depressing and drives my wife crazy making her lose >> sleep also, plus she is a caregiver to an elderly woman with >> alzheimers 4 days a week. This >> Quad related stuff can be so challenging >> at times ! Well I guess i'm done venting...it's about 3:45 am. Hope >> To get better before long. Dan H*** > >
