My GP never heard of it either until I educated him. Bobbie Smile Everyday
> On Dec 4, 2014, at 11:15 AM, Larry Willis <[email protected]> wrote: > > Your doc never heard of dysreflexia? I believe some education is in order. > > Sent from my iPad > > Begin forwarded message: > >> Resent-From: [email protected] >> From: Danny Hearn <[email protected]> >> Date: December 4, 2014 at 10:49:22 AM EST >> To: RONALD L PRACHT <[email protected]>, "[email protected]" >> <[email protected]> >> Subject: Re: [QUAD-L] Autonomic Dysreflexia >> Reply-To: Danny Hearn <[email protected]> >> >> Your so right Ron, just because we can move our heads and our arms...folks >> think we can or should do most anything, It's too complicated trying to >> explain it all-some say how do you have all this horrible pain if your >> paralyzed and can't feel? many are the same people asking the same questions >> they had asked a year or so earlier.(they will never understand ) >> Meanwhile........I'm still getting Automomic Dysreflexia on and off for >> about a 2 week period, my Primary Doc. checked me and did some bloodwork but >> found nothing abnormal..I'm driving my poor wife insane because I'm having >> so much problems at night and we get little rest and she has to get up and >> go to work. We both THINK it has something to do with me getting air or gas >> in my Stomach-----We are not sure why, If she sets me up I begin to burp it >> out--It's strange because I have rarely got air or gas in over 17 years >> post. I'm thinking of getting a urine culture or checking with Urologist, to >> see if it can be bladder or kidney related? I'm at a loss to know what to >> do, plus my Urologist never heard of disreflexia. Well, I'll go for now >> gang...feel free to comment if you have any Idea's on this. Thank You. Dan >> H***** >> >> >> On Thursday, December 4, 2014 2:40 AM, RONALD L PRACHT >> <[email protected]> wrote: >> >> >> Most people think if your arms work at all you are a paraplegic from the >> waist down. They believe that a quadriplegic has no function from the neck >> down. By the time you argue your point across , they just look at you like a >> deere in headlights and might snub you the next time you meet them. I let a >> lot go now unless someone downright insults my rights as a human being to >> share air equally with them. >> >> >> On Thursday, December 4, 2014 1:03 AM, Nadeana Halamar <[email protected]> >> wrote: >> >> >> thats so fd i wish their was a way to get things out about us and some think >> paras and quads r the same >> >> On Tue, Nov 25, 2014 at 10:27 PM, RONALD L PRACHT <[email protected]> >> wrote: >> There are many reason doctors wont operate on a quad >> >> 1) Much more risk involved of failure or complications >> 2) Some doctors don't want to be involved with risky patients when they can >> just stick with standard cases. >> 3) Some doctors fall on the saying, " your a quad that's the reason you have >> pain" >> 4) If they make a mistake with a syrinx you could end up further paralyzed >> which I don't know if the risk is as much as thy scare you with. >> 5) Many quads don't have good insurance and the bills get in 6 digits real >> quick. Its a loser for the hospital. >> >> The same reason some pilots wont fly with a quad on board. >> >> >> >> On Tuesday, November 25, 2014 7:45 PM, greg <[email protected]> wrote: >> >> >> >> What does being a quad have to do with not operating? >> I'm a quad and have had a few operations. >> Not for my syrinx, but he doc said I should when needed. >> Greg >> >> >> > I started having pain ten years ago. Im scared to get an mri and >> > see whats going on. The doctors here in St. Louis at Washington >> > university wouldn't operate on me at that time because I was a >> > quad. I just wanted them to drain my syrinx and see if it helped. A >> > girl I know that's a para had the same thing as me and she got >> > help. It all sucks but just take it one day at a time. >> > >> > >> > Ron >> > >> > >> > On Monday, November 24, 2014 7:59 AM, alcibiates2 >> > <[email protected]> wrote: >> > >> > >> > I was told it was disintegrating disc disease. There's no cure for >> > it. It causes nerves to be pinched as well as making it impossible >> > to position comfortably. Spending long times sitting in the chair >> > is really painful.I'm to the point now where I get out of bed for a >> > couple hours each day. >> > Best wishes. >> > john s >> > >> > >> > Sent from my Verizon Wireless 4G LTE smartphone >> > >> > >> > -------- Original message -------- >> > From: Danny Hearn >> > Date:11/24/2014 5:44 AM (GMT-05:00) >> > To: alcibiates2 ,[email protected] >> > Subject: Re: [QUAD-L] Autonomic Dysreflexia >> > >> > John, I read that many quads develope disc problems in their backs, >> > did they do anything for yours or do you just get by as best you >> > can with that?? thanks, Dan** >> > >> > >> > On Sunday, November 23, 2014 6:55 PM, alcibiates2 >> > <[email protected]> wrote: >> > >> > >> > Dan, I've had some fractures that were almost >> > undetectable but really sent my bp up and pulse way down. Just the >> > weight of my foot separated my tibia at the mantle below the knee. >> > Chalky bones and deterioration of spinal disc's have played hell >> > with me. Try sitting straight up and take something for pain. Don't >> > recline until your pulse returns to your normal never be afraid to >> > 911 yourself to an er. >> > Tip:take a copy of a medical definition of AD with you along with >> > your med list. I swear they can be pig ignorant of what is going on >> > and what to do. Help has gotten ambivalent in Cincinnati. >> > Best Wishes, >> > John s >> > >> > >> > Sent from my Verizon Wireless 4G LTE smartphone >> > >> > >> > -------- >> > Original message -------- >> > From: Danny Hearn >> > Date:11/23/2014 4:42 AM (GMT-05:00) >> > To: [email protected] >> > >> > Subject: [QUAD-L] Autonomic Dysreflexia >> > >> > Man, I hate having dysreflexia and unable to find the cause, I have >> > been having it on and off for about 3 days and have had almost no >> > sleep for the last 2 days. Bladder and bowels all seem fine-no >> > pressure sores or etc. that we can find. When I try to lay down at >> > night after a while I get real hot and clammy, my heart begins to >> > pound and act up. I do have a syrinx and bad neck and back pain but >> > not sure if that can be the problem. I guess Monday I'll try to >> > call my primary doctor and get checkup and bloodwork for a start, >> > This stuff is depressing and drives my wife crazy making her lose >> > sleep also, plus she is a caregiver to an elderly woman with >> > alzheimers 4 days a week. This >> > Quad related stuff can be so challenging >> > at times ! Well I guess i'm done venting...it's about 3:45 am. Hope >> > To get better before long. Dan H*** >> >> >> >> >> >> >>
