Your doc never heard of dysreflexia? I believe some education is in order. Sent from my iPad
Begin forwarded message: > Resent-From: [email protected] > From: Danny Hearn <[email protected]> > Date: December 4, 2014 at 10:49:22 AM EST > To: RONALD L PRACHT <[email protected]>, "[email protected]" > <[email protected]> > Subject: Re: [QUAD-L] Autonomic Dysreflexia > Reply-To: Danny Hearn <[email protected]> > > Your so right Ron, just because we can move our heads and our arms...folks > think we can or should do most anything, It's too complicated trying to > explain it all-some say how do you have all this horrible pain if your > paralyzed and can't feel? many are the same people asking the same questions > they had asked a year or so earlier.(they will never understand ) > Meanwhile........I'm still getting Automomic Dysreflexia on and off for about > a 2 week period, my Primary Doc. checked me and did some bloodwork but found > nothing abnormal..I'm driving my poor wife insane because I'm having so much > problems at night and we get little rest and she has to get up and go to > work. We both THINK it has something to do with me getting air or gas in my > Stomach-----We are not sure why, If she sets me up I begin to burp it > out--It's strange because I have rarely got air or gas in over 17 years post. > I'm thinking of getting a urine culture or checking with Urologist, to see if > it can be bladder or kidney related? I'm at a loss to know what to do, plus > my Urologist never heard of disreflexia. Well, I'll go for now gang...feel > free to comment if you have any Idea's on this. Thank You. Dan H***** > > > On Thursday, December 4, 2014 2:40 AM, RONALD L PRACHT > <[email protected]> wrote: > > > Most people think if your arms work at all you are a paraplegic from the > waist down. They believe that a quadriplegic has no function from the neck > down. By the time you argue your point across , they just look at you like a > deere in headlights and might snub you the next time you meet them. I let a > lot go now unless someone downright insults my rights as a human being to > share air equally with them. > > > On Thursday, December 4, 2014 1:03 AM, Nadeana Halamar <[email protected]> > wrote: > > > thats so fd i wish their was a way to get things out about us and some think > paras and quads r the same > > On Tue, Nov 25, 2014 at 10:27 PM, RONALD L PRACHT <[email protected]> > wrote: > There are many reason doctors wont operate on a quad > > 1) Much more risk involved of failure or complications > 2) Some doctors don't want to be involved with risky patients when they can > just stick with standard cases. > 3) Some doctors fall on the saying, " your a quad that's the reason you have > pain" > 4) If they make a mistake with a syrinx you could end up further paralyzed > which I don't know if the risk is as much as thy scare you with. > 5) Many quads don't have good insurance and the bills get in 6 digits real > quick. Its a loser for the hospital. > > The same reason some pilots wont fly with a quad on board. > > > > On Tuesday, November 25, 2014 7:45 PM, greg <[email protected]> wrote: > > > > What does being a quad have to do with not operating? > I'm a quad and have had a few operations. > Not for my syrinx, but he doc said I should when needed. > Greg > > > > I started having pain ten years ago. Im scared to get an mri and > > see whats going on. The doctors here in St. Louis at Washington > > university wouldn't operate on me at that time because I was a > > quad. I just wanted them to drain my syrinx and see if it helped. A > > girl I know that's a para had the same thing as me and she got > > help. It all sucks but just take it one day at a time. > > > > > > Ron > > > > > > On Monday, November 24, 2014 7:59 AM, alcibiates2 > > <[email protected]> wrote: > > > > > > I was told it was disintegrating disc disease. There's no cure for > > it. It causes nerves to be pinched as well as making it impossible > > to position comfortably. Spending long times sitting in the chair > > is really painful.I'm to the point now where I get out of bed for a > > couple hours each day. > > Best wishes. > > john s > > > > > > Sent from my Verizon Wireless 4G LTE smartphone > > > > > > -------- Original message -------- > > From: Danny Hearn > > Date:11/24/2014 5:44 AM (GMT-05:00) > > To: alcibiates2 ,[email protected] > > Subject: Re: [QUAD-L] Autonomic Dysreflexia > > > > John, I read that many quads develope disc problems in their backs, > > did they do anything for yours or do you just get by as best you > > can with that?? thanks, Dan** > > > > > > On Sunday, November 23, 2014 6:55 PM, alcibiates2 > > <[email protected]> wrote: > > > > > > Dan, I've had some fractures that were almost > > undetectable but really sent my bp up and pulse way down. Just the > > weight of my foot separated my tibia at the mantle below the knee. > > Chalky bones and deterioration of spinal disc's have played hell > > with me. Try sitting straight up and take something for pain. Don't > > recline until your pulse returns to your normal never be afraid to > > 911 yourself to an er. > > Tip:take a copy of a medical definition of AD with you along with > > your med list. I swear they can be pig ignorant of what is going on > > and what to do. Help has gotten ambivalent in Cincinnati. > > Best Wishes, > > John s > > > > > > Sent from my Verizon Wireless 4G LTE smartphone > > > > > > -------- > > Original message -------- > > From: Danny Hearn > > Date:11/23/2014 4:42 AM (GMT-05:00) > > To: [email protected] > > > > Subject: [QUAD-L] Autonomic Dysreflexia > > > > Man, I hate having dysreflexia and unable to find the cause, I have > > been having it on and off for about 3 days and have had almost no > > sleep for the last 2 days. Bladder and bowels all seem fine-no > > pressure sores or etc. that we can find. When I try to lay down at > > night after a while I get real hot and clammy, my heart begins to > > pound and act up. I do have a syrinx and bad neck and back pain but > > not sure if that can be the problem. I guess Monday I'll try to > > call my primary doctor and get checkup and bloodwork for a start, > > This stuff is depressing and drives my wife crazy making her lose > > sleep also, plus she is a caregiver to an elderly woman with > > alzheimers 4 days a week. This > > Quad related stuff can be so challenging > > at times ! Well I guess i'm done venting...it's about 3:45 am. Hope > > To get better before long. Dan H*** > > > > > > >
