I also was diagnosed with Mantle Cell Lymphoma in 2013. Life expectancy 2 yrs.
I should say 2 yrs of it coming back. Much like Leukemia. Still in remission
but they have pills for when it returns. Don't know if they'll work. Like Ron
said, basically, all we can do is keep on rollin.
Dianna <----- cancer on top of quadriplegia, what a rip! I was dealt the wrong
card twice in life. But I have my loved ones. <3
On Friday, February 20, 2015 11:12 PM, Thomas E. Cusack
<[email protected]> wrote:
Quad living is so, so much "What if this and "What if that" that
one has to plan on those things occurring. Who thought they'd wind up in a
'chair from a broken neck-hell, that was never part of life's equation. I go
thru the many what if's alot and hopefully develop a mental plan. For example,
I was diagnosed with brain cancer (wouldn't ya' know!)two plus years ago-the
dr.'s gave me a year to year and a half
to live so my what if's are the last few months that i have to
live. so do some planning and thinking about 'what ifs' cuz the luck we quads
have ain't so good.
Tom C. c6/7 incomplete 45 years ago mva
-----Original Message-----
From: Larry Willis <[email protected]>
To: quad-list <[email protected]>
Sent: Sat, Feb 21, 2015 1:26 pm
Subject: [QUAD-L] Ismael
Ismael, thank you so much for that thoughtful and inspiring story. You have
lived an amazing life. I don't think I could have lasted like you have. How do
you do it? How do you stay optimistic in spite of everything? I pray that you
continue to prosper and that you keep kicking ass for many more years. God
bless you, my friend.
Larry Willis
Retired and proud of it
Begin forwarded message:
Resent-From: [email protected]
From: RONALD L PRACHT < [email protected]>
Date: February 21, 2015 at 12:56:22 AM EST
To: Quad-list Post < [email protected]>
Subject: Re: Fwd: [QUAD-L] Rough days
Reply-To: RONALD L PRACHT < [email protected]>
On Friday, February 20, 2015 11:12 PM, Thomas E. Cusack
<[email protected]> wrote:
Quad living is so, so much "What if this and "What if that" that
one has to plan on those things occurring. Who thought they'd wind up in a
'chair from a broken neck-hell, that was never part of life's equation. I go
thru the many what if's alot and hopefully develop a mental plan. For example,
I was diagnosed with brain cancer (wouldn't ya' know!)two plus years ago-the
dr.'s gave me a year to year and a half
to live so my what if's are the last few months that i have to
live. so do some planning and thinking about 'what ifs' cuz the luck we quads
have ain't so good.
Tom C. c6/7 incomplete 45 years ago mva
On Friday, February 20, 2015 9:15 PM, Larry Willis
<[email protected]> wrote:
Well said Ron.....and very true.
Larry Willis
Retired and proud of it
Begin forwarded message:
Resent-From: [email protected]
From: RONALD L PRACHT <
[email protected]>
Date: February 20, 2015 at 9:29:12 PM EST
To: Quad-list Post <
[email protected]>
Subject: Re: [QUAD-L] Rough days
Reply-To: RONALD L PRACHT <
[email protected]>
Well my dad just had his third heart surgery in 15 years
and they added more stents again. He was in the hospital and I was home alone.
Im able to get in and out of bed and make basic microwave meals and sandwiches,
so I can survive short of a large bowell accident or falling out of the chair.
It made me think ..........what the hell am I going to do in the future? I came
to the conclusion if I try everyday and accomplish a little bit, by the time
that day comes I can be a whole lot more prepared to do or hire all the things
Im going to need. All we really have in life is the here and now, the past is
gone and the future isn't guaranteed. The winners in life are the ones that can
enjoy the minute they are in.
Ron
On Friday, February 20, 2015 8:00 PM, Larry Willis
<[email protected]> wrote:
Peeps, it has been a rough time around the Willis homestead. My wife Melissa
has been very weak and short of breath the last two weeks. She wound up in icu
three days ago with heart failure. She is my love and my caregiver. I have
slept in my chair the last two nights. My body hurts all over. She came home
today but is under strict orders not to lift. She is still very weak and short
of breath. We are having a very hard, stressful time. If you have an extra
prayer in your pocket, toss it toward heaven for me. Life is too hard guys. I
wish I knew a way out. I do, but I am too cowardly.
Anybody that can survive 30-40-50 yrs of being a quad is tough. The ones that
thrive are special and are the true hardasses that never receive the
recognition they deserve. People don't have a clue what we are up against .
Ron
