I did my research, my results were published, and each study is like a grain of 
sand that goes toward building a bridge. Not one study in and of itself amounts 
to much unfortunately. I can see how that can be a turn off. That said, without 
willing for disciplines, no advances would be made. Anytime you've experienced 
an improvement to a medication, and mobility device, etc. That all started with 
the studies. You just cannot look at an immediate gratification from one study 
you may participate in. I think we should all feel fortunate that people are 
interested in doing the studies. My husband has been in a chair for 22 1/2 
years. That said, we are all entitled to our opinions and all come at it with 
different experiences which I respect.

Please excuse any typos or brevity of tone as this was typed using an iPhone 
(and possibly Siri, in an effort to be as safe as possible while en route.)

G

On Feb 22, 2015, at 6:49 PM, [email protected] wrote:

Perhaps, it is just me but after a couple of decades of receiving solicitations 
from higher education studies, I haven't seen any written results in any 
reports from the Natl Spinal Injury Assoc.  So who actually benefits from the 
interviews. I know that Ron hasn't. I'm sure there are dozens more.........
I like the corporate interview requests.  The offer a cup of coffee and a sweet 
roll.  I also support national hospitals and rehab centers that pay for time 
and transportation to those that personally do interviews.  That being said, I 
encourage anyone with extra time on their hands to offer their perspective and 
expect nothing in return. If Cornell chooses to share their results with the 
world, it is their choice and not an obligation to do so.  I'm still waiting to 
read some results of solicitations from nearly a decade ago from another well 
known university.  Good Luck with your project.
 
Best Wishes
 
In a message dated 2/22/2015 5:52:49 P.M. Central Standard Time, 
[email protected] writes:
Most students are not given grant money for their research to hand out to those 
who participate in the study. Since it is intended to benefit those with the 
disability, that should be reward enough.

Please excuse any typos or brevity of tone as this was typed using an iPhone 
(and possibly Siri, in an effort to be as safe as possible while en route.)

G

On Feb 22, 2015, at 3:17 PM, RONALD L PRACHT <[email protected]> wrote:

I did about 6 of these until I realized I was being viewed as a guinea pig. 
Money needs to be offered.

Ron 


On Sunday, February 22, 2015 4:11 PM, "[email protected]" <[email protected]> 
wrote:


Just remember that long after the interviews are completed and you have 
graduated... that so many will have to live their lives, in a manner much 
different than yours. A nice stipend would be most appreciated for all those 
who chose to participate in being interviewed.
 
Best Wishes
 
In a message dated 2/22/2015 3:00:41 P.M. Central Standard Time, 
[email protected] writes:
Hello everyone,

We are a group of three students from Cornell University working on a school 
project for our Human-Computer Interaction class to create a tongue-based 
interface for enabling people with Spinal Cord Injury to more independently act 
on their environment in a subtle manner.

To design this interface, we have been asked to interview several people living 
with SCI to become intimately familiar with their firsthand experiences of 
everyday living.

Although this work is for class project, we are motivated to further pursue 
this kind of technology for practical use. It is our hope that we can help as 
many people with SCI as possible.

Please let us know if you would be willing to assist us in this effort. We can 
be reached by email at [email protected]. All information provided will remain 
anonymous, and will not be included in any published report.

Thank you,

Oliver Hoffman, Dan Levine, Shawn Bramson


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