I've heard Bob Hope and Donald Trump repeat, "Why Paid For It, When People Offer It Free." I never forgot it. Of course, one is successful departed and the other is considered wealthy in wealth. Go Figure. Best Wishes In a message dated 2/22/2015 9:45:33 P.M. Central Standard Time, [email protected] writes:
When I was first injured I would get at least 2 groups of people a month that wanted me to do a home study, a filled out review, an interview and many other things. I did them all with a smile until these people didn't follow up on what was promised. Sometimes the money was a bunch of hoops to jump through , the magazine article they promised they would forward to me never came, sometimes I actually found the group to be corrupt and essentially stealing the money. Then I finally realized these people are moving on to bigger and better things and I was left in the same situation I was before. In some cases I believe I was viewed as some kind of circus freak for them to study then laugh about it later at Starbucks as they drank their 6 dollar coffees. Most of these therapists have no intention of working in the standard sci field. They want to work with "children" where its all a bed of roses. These people don't want to be involved with getting in there and getting their hands dirty and actually making a difference. Its sad it really is. Everybody wants the glory work, but nobody wants the everyday grind. On Sunday, February 22, 2015 8:16 PM, "[email protected]" <[email protected]> wrote: Thank You. Thank You very much for your reply. I truly hope your husband joins us as a world recognized group and shares his info. I'm looking forward to reading your published results, once my refund check arrives. And to you both I wish the best. Best Wishes In a message dated 2/22/2015 8:09:34 P.M. Central Standard Time, [email protected] writes: I did my research, my results were published, and each study is like a grain of sand that goes toward building a bridge. Not one study in and of itself amounts to much unfortunately. I can see how that can be a turn off. That said, without willing for disciplines, no advances would be made. Anytime you've experienced an improvement to a medication, and mobility device, etc. That all started with the studies. You just cannot look at an immediate gratification from one study you may participate in. I think we should all feel fortunate that people are interested in doing the studies. My husband has been in a chair for 22 1/2 years. That said, we are all entitled to our opinions and all come at it with different experiences which I respect. Please excuse any typos or brevity of tone as this was typed using an iPhone (and possibly Siri, in an effort to be as safe as possible while en route.) G On Feb 22, 2015, at 6:49 PM, [email protected]_ (mailto:[email protected]) wrote: Perhaps, it is just me but after a couple of decades of receiving solicitations from higher education studies, I haven't seen any written results in any reports from the Natl Spinal Injury Assoc. So who actually benefits from the interviews. I know that Ron hasn't. I'm sure there are dozens more......... I like the corporate interview requests. The offer a cup of coffee and a sweet roll. I also support national hospitals and rehab centers that pay for time and transportation to those that personally do interviews. That being said, I encourage anyone with extra time on their hands to offer their perspective and expect nothing in return. If Cornell chooses to share their results with the world, it is their choice and not an obligation to do so. I'm still waiting to read some results of solicitations from nearly a decade ago from another well known university. Good Luck with your project. Best Wishes In a message dated 2/22/2015 5:52:49 P.M. Central Standard Time, [email protected]_ (mailto:[email protected]) writes: Most students are not given grant money for their research to hand out to those who participate in the study. Since it is intended to benefit those with the disability, that should be reward enough. Please excuse any typos or brevity of tone as this was typed using an iPhone (and possibly Siri, in an effort to be as safe as possible while en route.) G On Feb 22, 2015, at 3:17 PM, RONALD L PRACHT <[email protected]_ (mailto:[email protected]) > wrote: I did about 6 of these until I realized I was being viewed as a guinea pig. Money needs to be offered. Ron On Sunday, February 22, 2015 4:11 PM, "[email protected]_ (mailto:[email protected]) " <[email protected]_ (mailto:[email protected]) > wrote: Just remember that long after the interviews are completed and you have graduated... that so many will have to live their lives, in a manner much different than yours. A nice stipend would be most appreciated for all those who chose to participate in being interviewed. Best Wishes In a message dated 2/22/2015 3:00:41 P.M. Central Standard Time, [email protected]_ (mailto:[email protected]) writes: Hello everyone, We are a group of three students from Cornell University working on a school project for our Human-Computer Interaction class to create a tongue-based interface for enabling people with Spinal Cord Injury to more independently act on their environment in a subtle manner. To design this interface, we have been asked to interview several people living with SCI to become intimately familiar with their firsthand experiences of everyday living. Although this work is for class project, we are motivated to further pursue this kind of technology for practical use. It is our hope that we can help as many people with SCI as possible. Please let us know if you would be willing to assist us in this effort. We can be reached by email at [email protected]_ () . All information provided will remain anonymous, and will not be included in any published report. Thank you, Oliver Hoffman, Dan Levine, Shawn Bramson = =

