I've heard Bob Hope and Donald Trump repeat, "Why Paid For It, When People  
Offer It Free."  I never forgot it.   Of course, one is  successful 
departed and the other is considered wealthy in wealth.
Go Figure.
Best Wishes
 
 
In a message dated 2/22/2015 9:45:33 P.M. Central Standard Time,  
[email protected] writes:

 
When I was first injured I would get at least 2 groups of people a  month 
that wanted me to do a home study, a filled out review, an  interview and 
many other things. I did them all with a smile until these  people didn't 
follow up on what was promised. Sometimes the money was a bunch  of hoops to 
jump 
through , the magazine article they promised they would  forward to me 
never came, sometimes I actually found the group to be corrupt  and essentially 
stealing the money. Then I finally realized these people are  moving on to 
bigger and better things and I was left in the same situation I  was before. 
In some cases I believe I was viewed as some kind of circus freak  for them 
to study then laugh about it later at Starbucks as they drank their 6  
dollar coffees. Most of these therapists have no intention of working in the  
standard sci field. They want to work with "children" where its all a bed  of 
roses. These people don't want to be involved with getting in there and  
getting their hands dirty and actually making a difference. Its sad it really  
is. Everybody wants the glory work, but nobody wants the everyday  grind. 




On Sunday, February 22, 2015 8:16 PM,  "[email protected]" 
<[email protected]> wrote:





 
 
Thank You.  Thank You very much for your reply.  I truly hope  your husband 
joins us as a world recognized group and shares his info.   I'm looking 
forward to reading your published results, once my refund check  arrives. And 
to you both I wish the best.
 
Best Wishes
 
 
In a message dated 2/22/2015 8:09:34 P.M. Central Standard Time,  
[email protected] writes:

I did my research, my results were published, and each study is like a  
grain of sand that goes toward building a bridge. Not one study in and of  
itself amounts to much unfortunately. I can see how that can be a turn off.  
That said, without willing for disciplines, no advances would be made.  Anytime 
you've experienced an improvement to a medication, and mobility  device, 
etc. That all started with the studies. You just cannot look at an  immediate 
gratification from one study you may participate in. I think we  should all 
feel fortunate that people are interested in doing the studies.  My husband 
has been in a chair for 22 1/2 years. That said, we are all  entitled to our 
opinions and all come at it with different experiences which  I respect.

Please  excuse any typos or brevity of tone as this was typed using an 
iPhone (and  possibly Siri, in an effort to be as safe as possible while en  
route.)


G


On Feb 22, 2015, at 6:49 PM, [email protected]_ 
(mailto:[email protected])   wrote:



Perhaps, it is just me but after a couple of decades of receiving  
solicitations from higher education studies, I haven't seen any written  
results in 
any reports from the Natl Spinal Injury Assoc.  So who  actually benefits 
from the interviews. I know that Ron hasn't. I'm sure  there are dozens 
more.........
I like the corporate interview requests.  The offer a cup of  coffee and a 
sweet roll.  I also support national hospitals and rehab  centers that pay 
for time and transportation to those that personally do  interviews.  That 
being said, I encourage anyone with extra time on  their hands to offer their 
perspective and expect nothing in return. If  Cornell chooses to share their 
results with the world, it is their choice  and not an obligation to do so. 
 I'm still waiting to read some results  of solicitations from nearly a 
decade ago from another well known  university.  Good Luck with your project.
 
Best Wishes
 
 
In a message dated 2/22/2015 5:52:49 P.M. Central Standard Time, 
[email protected]_ (mailto:[email protected])  writes:

Most students are not given grant money for their research to hand  out to 
those who participate in the study. Since it is intended to benefit  those 
with the disability, that should be reward enough.

Please  excuse any typos or brevity of tone as this was typed using an 
iPhone (and  possibly Siri, in an effort to be as safe as possible while en  
route.)


G


On Feb 22, 2015, at 3:17 PM, RONALD L PRACHT <[email protected]_ 
(mailto:[email protected]) >  wrote:



 
I did about 6 of these until I realized I was being viewed as a  guinea 
pig. Money needs to be offered.


Ron 




 
 
On Sunday, February 22, 2015 4:11 PM,  "[email protected]_ 
(mailto:[email protected]) " <[email protected]_ (mailto:[email protected]) 
>  wrote:




 
 
Just remember that long after the interviews are completed and you  have 
graduated... that so many will have to live their lives, in a manner  much 
different than yours. A nice stipend would be most appreciated for  all those 
who chose to participate in being interviewed.
 
Best Wishes
 
 
In a message dated 2/22/2015 3:00:41 P.M. Central Standard Time, 
[email protected]_ (mailto:[email protected])  writes:
 
 
Hello  everyone,


We  are a group of three students from Cornell University working on a  
school project for our Human-Computer Interaction class to create a  
tongue-based interface for enabling people with Spinal Cord Injury to  more 
independently act on their environment in a subtle manner.


To  design this interface, we have been asked to interview several people  
living with SCI to become intimately familiar with their firsthand  
experiences of everyday living.


Although  this work is for class project, we are motivated to further 
pursue this  kind of technology for practical use. It is our hope that we can 
help as  many people with SCI as possible.


Please  let us know if you would be willing to assist us in this effort. We 
can  be reached by email at [email protected]_ () . All information 
provided will remain  anonymous, and will not be included in any published 
report.


Thank  you,


Oliver  Hoffman, Dan Levine, Shawn  Bramson














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