When I was first injured I would get at least 2 groups of people a month that wanted me to do a home study, a filled out review, an interview and many other things. I did them all with a smile until these people didn't follow up on what was promised. Sometimes the money was a bunch of hoops to jump through , the magazine article they promised they would forward to me never came, sometimes I actually found the group to be corrupt and essentially stealing the money. Then I finally realized these people are moving on to bigger and better things and I was left in the same situation I was before. In some cases I believe I was viewed as some kind of circus freak for them to study then laugh about it later at Starbucks as they drank their 6 dollar coffees. Most of these therapists have no intention of working in the standard sci field. They want to work with "children" where its all a bed of roses. These people don't want to be involved with getting in there and getting their hands dirty and actually making a difference. Its sad it really is. Everybody wants the glory work, but nobody wants the everyday grind.
On Sunday, February 22, 2015 8:16 PM, "[email protected]" <[email protected]> wrote: Thank You. Thank You very much for your reply. I truly hope your husband joins us as a world recognized group and shares his info. I'm looking forward to reading your published results, once my refund check arrives. And to you both I wish the best. Best Wishes In a message dated 2/22/2015 8:09:34 P.M. Central Standard Time, [email protected] writes: I did my research, my results were published, and each study is like a grain of sand that goes toward building a bridge. Not one study in and of itself amounts to much unfortunately. I can see how that can be a turn off. That said, without willing for disciplines, no advances would be made. Anytime you've experienced an improvement to a medication, and mobility device, etc. That all started with the studies. You just cannot look at an immediate gratification from one study you may participate in. I think we should all feel fortunate that people are interested in doing the studies. My husband has been in a chair for 22 1/2 years. That said, we are all entitled to our opinions and all come at it with different experiences which I respect. > > >Please excuse any typos or brevity of tone as this was typed using an iPhone >(and possibly Siri, in an effort to be as safe as possible while en route.) > > >G > >On Feb 22, 2015, at 6:49 PM, [email protected] wrote: > > >Perhaps, it is just me but after a couple of decades of receiving >solicitations from higher education studies, I haven't seen any written >results in any reports from the Natl Spinal Injury Assoc. So who actually >benefits from the interviews. I know that Ron hasn't. I'm sure there are >dozens more......... >I like the corporate interview requests. The offer a cup of coffee and a >sweet roll. I also support national hospitals and rehab centers that pay for >time and transportation to those that personally do interviews. That being >said, I encourage anyone with extra time on their hands to offer their >perspective and expect nothing in return. If Cornell chooses to share their >results with the world, it is their choice and not an obligation to do so. >I'm still waiting to read some results of solicitations from nearly a decade >ago from another well known university. Good Luck with your project. > >Best Wishes > >In a message dated 2/22/2015 5:52:49 P.M. Central Standard Time, >[email protected] writes: >Most students are not given grant money for their research to hand out to >those who participate in the study. Since it is intended to benefit those >with the disability, that should be reward enough. >> >> >>Please excuse any typos or brevity of tone as this was typed using an iPhone >>(and possibly Siri, in an effort to be as safe as possible while en route.) >> >> >>G >> >>On Feb 22, 2015, at 3:17 PM, RONALD L PRACHT <[email protected]> wrote: >> >> >>I did about 6 of these until I realized I was being viewed as a guinea pig. >>Money needs to be offered. >> >> >>Ron >> >> >> >>On Sunday, February 22, 2015 4:11 PM, "[email protected]" >><[email protected]> wrote: >> >> >> >> >>Just remember that long after the interviews are completed and you have >>graduated... that so many will have to live their lives, in a manner much >>different than yours. A nice stipend would be most appreciated for all those >>who chose to participate in being interviewed. >> >>Best Wishes >> >>In a message dated 2/22/2015 3:00:41 P.M. Central Standard Time, >>[email protected] writes: >> >>>Hello everyone, >>> >>> >>>We are a group of three students from Cornell University working on a >>>school project for our Human-Computer Interaction class to create a >>>tongue-based interface for enabling people with Spinal Cord Injury to more >>>independently act on their environment in a subtle manner. >>> >>> >>>To design this interface, we have been asked to interview several people >>>living with SCI to become intimately familiar with their firsthand >>>experiences of everyday living. >>> >>> >>>Although this work is for class project, we are motivated to further pursue >>>this kind of technology for practical use. It is our hope that we can help >>>as many people with SCI as possible. >>> >>> >>>Please let us know if you would be willing to assist us in this effort. We >>>can be reached by email at [email protected]. All information provided will >>>remain anonymous, and will not be included in any published report. >>> >>> >>>Thank you, >>> >>> >>>Oliver Hoffman, Dan Levine, Shawn Bramson >> >>==
