Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

[Maria Cashion]

Also check this list, save it, it may become helpfull:
http://www.cmleukemia.com/sites--english-and-other-languages.html

Maria

On Sun, Feb 22, 2015 at 8:32 AM, Maria Cashion 
wrote:

> Please check out this other link  when you have a chance.
>
> http://cml-iq.com/grapefruit-effect-need-know/
>
> Love you all!
>
> Maria
>
>
>
>
>
> M
>
>
> On Sun, Feb 22, 2015 at 8:28 AM, Maria Cashion 
> wrote:
>
>> This is the link to the National CML Society directly to drug and food
>> interactions:
>> http://www.nationalcmlsociety.org/living-cml/drug-food-interactions
>>
>> LOVE YOU ALL!
>> Maria
>>
>> On Sun, Feb 22, 2015 at 6:23 AM,  wrote:
>>
>>> cmlhope@googlegroups.com
>>> 
>>>   Google
>>> Groups
>>> 
>>> 
>>>   Topic digest
>>>  View all topics
>>> 
>>>
>>>-  ponatinib info
>>><#14bb145e92079af9_14bb142388125a7d_14bb0d02294a4d46_group_thread_0>
>>>- 5 Updates
>>>-  Food that interacts with TKI's and other meds
>>><#14bb145e92079af9_14bb142388125a7d_14bb0d02294a4d46_group_thread_1>
>>>- 2 Updates
>>>
>>>   ponatinib info
>>> 
>>>   Icandoallttc : Feb 21 10:18AM -0500
>>>
>>> Hi John
>>> Do you you remember how long the eye problem lasted! I have been having
>>> them a few times daily now thanks.
>>>
>>>
>>> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>>> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>>> 🐠]. 18,s
>>>
>>>   John Barrons : Feb 21 03:55PM
>>>
>>> Hi I had them quite a long time go. Each aura lasted about 3 to 5
>>> minutes. They occurred very intermittingly.  Never found out why. I would
>>> like to ask what does 18,s mean?
>>>
>>> On Saturday, February 21, 2015 10:18 AM, 'Icandoallttc' via CMLHope <
>>> cmlhope@googlegroups.com> wrote:
>>>
>>>
>>> Hi John Do you you remember how long the eye problem lasted!  I have
>>> been having them a few times daily now thanks.
>>>
>>> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>>> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>>> 🐠]. 18,s
>>> On Feb 19, 2015, at 3:16 PM, Icandoallttc  wrote:
>>>
>>>
>>>
>>> Thanks John. That's what I having but with pain.  I have suffered with
>>> migraines most of my adult life but this is different.  I hope it's a side
>>> effect that will go away.  Looks like the media working --yahoo!
>>>
>>> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>>> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>>> 🐠]. 18,s
>>> On Feb 19, 2015, at 11:47 AM, "'John Barrons' via CMLHope" <
>>> cmlhope@googlegroups.com> wrote:
>>>
>>>
>>> I have a few auras which I understand they are migraine headaches
>>> without the pain. I had an MRI to see if there was a problem and there
>>> wasn't. Haven't them for a long time. No headaches or rashes. John b
>>>
>>> On Thursday, February 19, 2015 11:28 AM, 'Icandoallttc' via CMLHope <
>>> cmlhope@googlegroups.com> wrote:
>>>
>>>
>>> Hi John and thanks for walking me through this new med.   Got a light
>>> rash.   Did you ever have an eye problem with headache?Thanks again.
>>> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>>> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>>> 🐠]. 18,s
>>> On Feb 19, 2015, at 11:01 AM, "'John Barrons' via CMLHope" <
>>> cmlhope@googlegroups.com> wrote:
>>>
>>>
>>> That's great your down to one pill a day. I am still on two a week. over
>>> the last to weeks my counts have stayed the same except for wbc up from 5
>>> to 7. John B
>>>
>>> On Thursday, February 19, 2015 10:33 AM, 'Icandoallttc' via CMLHope <
>>> cmlhope@googlegroups.com> wrote:
>>>
>>>
>>> Thanks Marty. I will get some.  Thank heavens it doesn't itch. My blood
>>> counts were good today.   Platelets 152.  Doctor put me down to 1 pill
>>> daily of ponatinib.  Phosphatase is still high.  Going to be a guessing
>>> game till I get stable.  You are right--still here fighting.  Glad you
>>> finally got some relief.
>>>
>>> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>>> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>>> 🐠]. 18,s
>>> On Feb 18, 2015, at 7:43 PM, Marty Gartenberg  wrote:
>>>
>>>
>>> Hi Jeanie and all of the rest,
>>> I really feel badly for you having to go through all of this, but on the
>>> bright side your all stil here to go through this.
>>> As far as the rash and not being able to put anything on it, well that
>>> really sucks. When will you be allowed to put something

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

['Icandoallttc' via CMLHope]

Thank you Maria.  I quit grapefruit juice when I first went on gleevec
Many years ago. I'm a Florida 
Cracker and was reared on them. 
I sure do miss them. The sickest
I got on gleevec was eating chili 
Which I loved. I learned to take
My pills with mild foods such as 
We have in breakfast. 
Good luck. 

Prayers & Blessings Jeanie . 18,s

> On Feb 22, 2015, at 7:28 AM, Maria Cashion  wrote:
> 
> This is the link to the National CML Society directly to drug and food 
> interactions:  
> http://www.nationalcmlsociety.org/living-cml/drug-food-interactions
> 
> LOVE YOU ALL!
> Maria
> 
>> On Sun, Feb 22, 2015 at 6:23 AM,  wrote:
>> 
>> cmlhope@googlegroups.com Google Groups   
>> Topic digest 
>> View all topics
>> ponatinib info - 5 Updates
>> Food that interacts with TKI's and other meds - 2 Updates
>> ponatinib info   
>> Icandoallttc : Feb 21 10:18AM -0500 
>> 
>> Hi John 
>> Do you you remember how long the eye problem lasted! I have been having them 
>> a few times daily now thanks. 
>>  
>>  
>> Prayers & Blessings Jeanie 
>> .
>>  18,s
>>  
>> John Barrons : Feb 21 03:55PM 
>> 
>> Hi I had them quite a long time go. Each aura lasted about 3 to 5 minutes. 
>> They occurred very intermittingly.  Never found out why. I would like to ask 
>> what does 18,s mean?
>>  
>> On Saturday, February 21, 2015 10:18 AM, 'Icandoallttc' via CMLHope 
>>  wrote:
>>   
>>  
>> Hi John Do you you remember how long the eye problem lasted!  I have been 
>> having them a few times daily now thanks. 
>>  
>> Prayers & Blessings Jeanie 
>> .
>>  18,s
>> On Feb 19, 2015, at 3:16 PM, Icandoallttc  wrote:
>>  
>>  
>>  
>> Thanks John. That's what I having but with pain.  I have suffered with 
>> migraines most of my adult life but this is different.  I hope it's a side 
>> effect that will go away.  Looks like the media working --yahoo!
>>  
>> Prayers & Blessings Jeanie 
>> .
>>  18,s
>> On Feb 19, 2015, at 11:47 AM, "'John Barrons' via CMLHope" 
>>  wrote:
>>  
>>  
>> I have a few auras which I understand they are migraine headaches without 
>> the pain. I had an MRI to see if there was a problem and there wasn't. 
>> Haven't them for a long time. No headaches or rashes. John b 
>>  
>> On Thursday, February 19, 2015 11:28 AM, 'Icandoallttc' via CMLHope 
>>  wrote:
>> 
>>  
>> Hi John and thanks for walking me through this new med.   Got a light rash.  
>>  Did you ever have an eye problem with headache?Thanks again. 
>> Prayers & Blessings Jeanie 
>> .
>>  18,s
>> On Feb 19, 2015, at 11:01 AM, "'John Barrons' via CMLHope" 
>>  wrote:
>>  
>>  
>> That's great your down to one pill a day. I am still on two a week. over the 
>> last to weeks my counts have stayed the same except for wbc up from 5 to 7. 
>> John B 
>>  
>> On Thursday, February 19, 2015 10:33 AM, 'Icandoallttc' via CMLHope 
>>  wrote:
>> 
>>  
>> Thanks Marty. I will get some.  Thank heavens it doesn't itch. My blood 
>> counts were good today.   Platelets 152.  Doctor put me down to 1 pill daily 
>> of ponatinib.  Phosphatase is still high.  Going to be a guessing game till 
>> I get stable.  You are right--still here fighting.  Glad you finally got 
>> some relief.  
>>  
>> Prayers & Blessings Jeanie 
>> .
>>  18,s
>> On Feb 18, 2015, at 7:43 PM, Marty Gartenberg  wrote:
>>  
>>  
>> Hi Jeanie and all of the rest,
>> I really feel badly for you having to go through all of this, but on the 
>> bright side your all stil here to go through this.
>> As far as the rash and not being able to put anything on it, well that 
>> really sucks. When will you be allowed to put something on your rash?
>> When I had my total body radiation my skin was burnt, my fingers, toes, 
>> nose, ears feet, hands and other parts of my body were burned and looked 
>> like I was in a fire. I was told that while I was having the radiation 
>> treatments I could not put anything on any of these very severe burns, and I 
>> really suffered through it.
>> As soon as my treatments were over they gave me Keri oil, then lotion. Both 
>> of them did very little to help me. Then a friend of mine told me about Bag 
>> Balm and I got it and started using it. Within two days my burns were still 
>> there because they were from the radiation poisoning but after putting that 
>> on it didn't hurt anymore. Everything healed up in less then a week.
>> Then I had to start my immuno-suppression  medication and the rashes were 
>> severe. So, I remembered that Bag Balm and put that on and there was instant 
>> relief. 
>> I don't know if you have heard about Bag Balm but it is used for livestock 
>> on their utters when all of the milking in cold weather makes their utters 
>> chapped. 
>> By the way, I bought the 8 oz tin more then 25 years ago and I still have 
>> most of it left even though I use it all the time for skin irritations. All 
>> you need is a very small amount. 
>> 18's,
>> Marty
>>  
>> Shop on Google
>> Bag Balm Protective Ointme...$3.89The Online 
>> Drugs..

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

[Maria Cashion]

Please check out this other link  when you have a chance.

http://cml-iq.com/grapefruit-effect-need-know/

Love you all!

Maria





M


On Sun, Feb 22, 2015 at 8:28 AM, Maria Cashion 
wrote:

> This is the link to the National CML Society directly to drug and food
> interactions:
> http://www.nationalcmlsociety.org/living-cml/drug-food-interactions
>
> LOVE YOU ALL!
> Maria
>
> On Sun, Feb 22, 2015 at 6:23 AM,  wrote:
>
>> cmlhope@googlegroups.com
>> 
>>   Google
>> Groups
>> 
>> 
>>   Topic digest
>>  View all topics
>> 
>>
>>-  ponatinib info <#14bb142388125a7d_14bb0d02294a4d46_group_thread_0>
>>- 5 Updates
>>-  Food that interacts with TKI's and other meds
>><#14bb142388125a7d_14bb0d02294a4d46_group_thread_1> - 2 Updates
>>
>>   ponatinib info
>> 
>>   Icandoallttc : Feb 21 10:18AM -0500
>>
>> Hi John
>> Do you you remember how long the eye problem lasted! I have been having
>> them a few times daily now thanks.
>>
>>
>> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>> 🐠]. 18,s
>>
>>   John Barrons : Feb 21 03:55PM
>>
>> Hi I had them quite a long time go. Each aura lasted about 3 to 5
>> minutes. They occurred very intermittingly.  Never found out why. I would
>> like to ask what does 18,s mean?
>>
>> On Saturday, February 21, 2015 10:18 AM, 'Icandoallttc' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>
>> Hi John Do you you remember how long the eye problem lasted!  I have been
>> having them a few times daily now thanks.
>>
>> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>> 🐠]. 18,s
>> On Feb 19, 2015, at 3:16 PM, Icandoallttc  wrote:
>>
>>
>>
>> Thanks John. That's what I having but with pain.  I have suffered with
>> migraines most of my adult life but this is different.  I hope it's a side
>> effect that will go away.  Looks like the media working --yahoo!
>>
>> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>> 🐠]. 18,s
>> On Feb 19, 2015, at 11:47 AM, "'John Barrons' via CMLHope" <
>> cmlhope@googlegroups.com> wrote:
>>
>>
>> I have a few auras which I understand they are migraine headaches without
>> the pain. I had an MRI to see if there was a problem and there wasn't.
>> Haven't them for a long time. No headaches or rashes. John b
>>
>> On Thursday, February 19, 2015 11:28 AM, 'Icandoallttc' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>
>> Hi John and thanks for walking me through this new med.   Got a light
>> rash.   Did you ever have an eye problem with headache?Thanks again.
>> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>> 🐠]. 18,s
>> On Feb 19, 2015, at 11:01 AM, "'John Barrons' via CMLHope" <
>> cmlhope@googlegroups.com> wrote:
>>
>>
>> That's great your down to one pill a day. I am still on two a week. over
>> the last to weeks my counts have stayed the same except for wbc up from 5
>> to 7. John B
>>
>> On Thursday, February 19, 2015 10:33 AM, 'Icandoallttc' via CMLHope <
>> cmlhope@googlegroups.com> wrote:
>>
>>
>> Thanks Marty. I will get some.  Thank heavens it doesn't itch. My blood
>> counts were good today.   Platelets 152.  Doctor put me down to 1 pill
>> daily of ponatinib.  Phosphatase is still high.  Going to be a guessing
>> game till I get stable.  You are right--still here fighting.  Glad you
>> finally got some relief.
>>
>> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
>> 🐠]. 18,s
>> On Feb 18, 2015, at 7:43 PM, Marty Gartenberg  wrote:
>>
>>
>> Hi Jeanie and all of the rest,
>> I really feel badly for you having to go through all of this, but on the
>> bright side your all stil here to go through this.
>> As far as the rash and not being able to put anything on it, well that
>> really sucks. When will you be allowed to put something on your rash?
>> When I had my total body radiation my skin was burnt, my fingers, toes,
>> nose, ears feet, hands and other parts of my body were burned and looked
>> like I was in a fire. I was told that while I was having the radiation
>> treatments I could not put anything on any of these very severe burns, and
>> I really suffered through it.
>> As soon as my 

Re: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics

[Maria Cashion]

This is the link to the National CML Society directly to drug and food
interactions:
http://www.nationalcmlsociety.org/living-cml/drug-food-interactions

LOVE YOU ALL!
Maria

On Sun, Feb 22, 2015 at 6:23 AM,  wrote:

> cmlhope@googlegroups.com
> 
>   Google
> Groups
> 
> 
>   Topic digest
>  View all topics
> 
>
>-  ponatinib info <#14bb0d02294a4d46_group_thread_0> - 5 Updates
>-  Food that interacts with TKI's and other meds
><#14bb0d02294a4d46_group_thread_1> - 2 Updates
>
>   ponatinib info
> 
>   Icandoallttc : Feb 21 10:18AM -0500
>
> Hi John
> Do you you remember how long the eye problem lasted! I have been having
> them a few times daily now thanks.
>
>
> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
> 🐠]. 18,s
>
>   John Barrons : Feb 21 03:55PM
>
> Hi I had them quite a long time go. Each aura lasted about 3 to 5
> minutes. They occurred very intermittingly.  Never found out why. I would
> like to ask what does 18,s mean?
>
> On Saturday, February 21, 2015 10:18 AM, 'Icandoallttc' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>
> Hi John Do you you remember how long the eye problem lasted!  I have been
> having them a few times daily now thanks.
>
> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
> 🐠]. 18,s
> On Feb 19, 2015, at 3:16 PM, Icandoallttc  wrote:
>
>
>
> Thanks John. That's what I having but with pain.  I have suffered with
> migraines most of my adult life but this is different.  I hope it's a side
> effect that will go away.  Looks like the media working --yahoo!
>
> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
> 🐠]. 18,s
> On Feb 19, 2015, at 11:47 AM, "'John Barrons' via CMLHope" <
> cmlhope@googlegroups.com> wrote:
>
>
> I have a few auras which I understand they are migraine headaches without
> the pain. I had an MRI to see if there was a problem and there wasn't.
> Haven't them for a long time. No headaches or rashes. John b
>
> On Thursday, February 19, 2015 11:28 AM, 'Icandoallttc' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>
> Hi John and thanks for walking me through this new med.   Got a light
> rash.   Did you ever have an eye problem with headache?Thanks again.
> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
> 🐠]. 18,s
> On Feb 19, 2015, at 11:01 AM, "'John Barrons' via CMLHope" <
> cmlhope@googlegroups.com> wrote:
>
>
> That's great your down to one pill a day. I am still on two a week. over
> the last to weeks my counts have stayed the same except for wbc up from 5
> to 7. John B
>
> On Thursday, February 19, 2015 10:33 AM, 'Icandoallttc' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>
> Thanks Marty. I will get some.  Thank heavens it doesn't itch. My blood
> counts were good today.   Platelets 152.  Doctor put me down to 1 pill
> daily of ponatinib.  Phosphatase is still high.  Going to be a guessing
> game till I get stable.  You are right--still here fighting.  Glad you
> finally got some relief.
>
> Prayers & Blessings Jeanie [image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
> 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image: 🐠][image:
> 🐠]. 18,s
> On Feb 18, 2015, at 7:43 PM, Marty Gartenberg  wrote:
>
>
> Hi Jeanie and all of the rest,
> I really feel badly for you having to go through all of this, but on the
> bright side your all stil here to go through this.
> As far as the rash and not being able to put anything on it, well that
> really sucks. When will you be allowed to put something on your rash?
> When I had my total body radiation my skin was burnt, my fingers, toes,
> nose, ears feet, hands and other parts of my body were burned and looked
> like I was in a fire. I was told that while I was having the radiation
> treatments I could not put anything on any of these very severe burns, and
> I really suffered through it.
> As soon as my treatments were over they gave me Keri oil, then lotion.
> Both of them did very little to help me. Then a friend of mine told me
> about Bag Balm and I got it and started using it. Within two days my burns
> were still there because they were from the radiation poisoning but after
> putting that on it didn't hurt anymore. Everything healed up in less then