Re: [Felvtalk] Acemannan
Acemannan is now made by Veterinary Products Laboratories www.vpl.com and I don't see any indication of it not being available. There was a price jump end of last year, how much did you pay for it? The VPL site had the name of a vet who was involved in the original trials as their technical representative, but I don't see anyone listed for that product now. I think my vet may still have his name and number, but they are closed on Wed., I will check on Thur. When I used it, the protocol was one shot a week for six weeks (given IP) and then one shot a month that can be given sub-q. Also, the vet for VPL told me that you can keep the mixed Acemannan for up to a week in the fridge and freeze it for up to a month, even though the instructions say you have to use it in 4 hours. Gary -- From: "Cynthia May" Sent: Tuesday, June 15, 2010 5:42 PM To: Subject: [Felvtalk] Acemannan My 8 year old cat had Feline Leukemia at age 1 1/2. We found out about Acemannan by doing research online. It worked beautifully and he was free of Leukemia after one year, at which time we stopped the Acemannan. He was normal until last Dec when his bone marrow went haywire and stopped producing platelets, white and red blood cells. Since then we've had him on prednisone, and other meds. We went back to Acemannan and he has just had his fifth injection (he gets one injection every week for six weeks). I need to know what to do after his sixth injection. Does anyone know? The lab went bankrupt; my vet can still get it from his supplier, but we have no way to call the manufacturer to find out what is next after the sixth injection. Last time, we went to once a month injections, but because this is not exactly Feline Leukemia, but caused by his Feline Leukemia, it might be a different situation. Thanks for any suggestions. Cindy http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
[Felvtalk] Acemannan
My 8 year old cat had Feline Leukemia at age 1 1/2. We found out about Acemannan by doing research online. It worked beautifully and he was free of Leukemia after one year, at which time we stopped the Acemannan. He was normal until last Dec when his bone marrow went haywire and stopped producing platelets, white and red blood cells. Since then we've had him on prednisone, and other meds. We went back to Acemannan and he has just had his fifth injection (he gets one injection every week for six weeks). I need to know what to do after his sixth injection. Does anyone know? The lab went bankrupt; my vet can still get it from his supplier, but we have no way to call the manufacturer to find out what is next after the sixth injection. Last time, we went to once a month injections, but because this is not exactly Feline Leukemia, but caused by his Feline Leukemia, it might be a different situation. Thanks for any suggestions. Cindy ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] acemannan immunostimolant
Hello Mattia, I'm checking with my source to see if I can arrange to have it shipped directly to you. This would probably be the fastest approach. If that won't work, I do have an extra bottle I could send to you. If you could forward your address, I'll get this going as soon as possible. Either way, I'll get some on the way within 24 hours of receiving your address. Just out of curiosity, what is the disease your cat is suffering from? Terry Mattia Rondinelli wrote: = Hello I am in a desperate situation: my cat needs as the only hope of a cure with acemannan.I would like to know if is possible that someone in the us can buy and send it to me in Florence,Italy. Of course I will pay everything,with an extra for this service. Thank you if you want to try to save, Mattia ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
[Felvtalk] acemannan immunostimolant
Hello I am in a desperate situation: my cat needs as the only hope of a cure with acemannan.I would like to know if is possible that someone in the us can buy and send it to me in Florence,Italy. Of course I will pay everything,with an extra for this service. Thank you if you want to try to save, Mattia ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Acemannan Immunostimulant Update
Gary, thanks for the update one Acemannan Immunostimulant. Sounds promising. Sharyl --- On Sat, 10/24/09, gary wrote: > From: gary > Subject: Re: [Felvtalk] Wolfie Update > To: felvtalk@felineleukemia.org > Date: Saturday, October 24, 2009, 12:54 PM > Hi Belinda, > > Sorry your little kitty is so sick, an HCT of 16% is > serious, but not yet > critical. The critical part is how fast it is > dropping, 10% and under is > critical. I have had a couple that were so fast > nothing could be done. > > Now the bad news, you missed. There wouldn't be much > wetness from .15 cc > and there won't be any if it goes in. The dosage is almost > correct (probably > close enough) but the actual correct dosage is .16 > cc. If it were me, I > would do it again, even if some of it got in, he needs the > whole dose and a > bit over won't hurt him. I have had a couple of > misses myself and there is > just what seems to be a tiny bit of wetness. If you > want to check and see > just how little fluid that really is, just use one of the > old syringes and > take up .15 of water and squirt it on his fur. > > I don't want to discourage you, but sometimes Epogen works > and sometimes it > doesn't. Also, it takes awhile to get the full > benefit of it, sometimes as > long as 2 - 3 weeks. > > Presently, I am trying Acemannan Immunostimulant on a > couple of FeLV kittens > and it seems to be working. The smaller kitten I > didn't get a HCT on to > start with, he had pale gums and a URI. The other had > an HCT of 18%, after > 3 shots of Acemannan (one a week) his HCT just before his > fourth shot was > 32%. Both kittens seem to be doing well now. I > wish I had had some of this > when I lost a couple of my adult FeLV cats that got really > sick. I've > spoken to the vet who did the trials and he said it brought > some of the test > cats back from death's door. Of course, it is not > 100% effective, works for > some and they lost some. He said about one third of > the calls he gets about > it are from vets who want to try it on their own FeLV or > FIV cats. > > The down side of it is it is a little expensive and only a > vet can buy it. > My vet charges me $125 for four 10 ml vials and I think > that may be his cost > or close to it as I was told it was about $175. The > protocol is one shot a > week for 6 weeks and then one a month. It is dosed at > 1 mg per kg. Fred > would need 3.2 mg, the stuff is 1 mg per ml, so 10 mg per > bottle or about 3 > shots for Fred. The other downside is the first 6 shots are > given IP > (through the abdominal wall) so I have the vet do these and > even he doesn't > like it. The monthly shots can be given sub-q. > > The instructions say once it is mixed you have to use it in > 4 hours, but the > vet who did the trials said you can keep it in the fridge > for a week or in > the freezer for a month. The two kittens I have use > almost a third of a > bottle (it comes in two bottle pairs, one with the powder > and one with > saline) and you mix the saline with the powder. I > have them save the saline > bottle and after the first sots I have them take half of > what is left and > put it in the saline bottle and I freeze one and put one in > the fridge. > > Gary ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Acemannan
gary, if you check in the archives, you'll find a fair amount of info on acemannen--there was a real problem for awhile with its availability, but that was resolved a couple of years ago. the only person i know personally used it for her cat with an injection-site sarcoma, not FeLV. for those of you who might think i am a shill for allopathic medicine, i would use ace in a second if i had a cat for whom it was indicated--but that's because there IS enough research and empirical evidence. MC On Mon, Sep 28, 2009 at 6:54 PM, S. Jewell wrote: > A vet at the Smith Ridge Veterinary Clinic recommended it to > me during a paid consultation recently for Lukey but it was > $175.00 and in the midst of our LTCI injections I just > couldn't afford to do both. Would love to know if anyone > else has actually used it. To my understanding it is a > glyconutrient similar to Ambrotose that Jenny is using with > Autumn??? > > > Sally Jewell > > > > -Original Message- > > From: felvtalk-boun...@felineleukemia.org > [mailto:felvtalk- > > boun...@felineleukemia.org] On Behalf Of gary > > Sent: Monday, September 28, 2009 5:02 PM > > To: felvtalk@felineleukemia.org > > Subject: [Felvtalk] Acemannan > > > > Has anyone presently on the list ever used Acemannan for > their > > FeLV positive > > cat(s)? > > > > Gary > > > > > > ___ > > Felvtalk mailing list > > Felvtalk@felineleukemia.org > > > http://felineleukemia.org/mailman/listinfo/felvtalk_felinele > ukemia.o > > rg > > > > ___ > Felvtalk mailing list > Felvtalk@felineleukemia.org > http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org > -- Spay & Neuter Your Neighbors! Maybe That'll Make The Difference MaryChristine Special-Needs Coordinator, Purebred Cat Breed Rescue (www.purebredcats.org) Member, SCAT (Special-Cat Action Team) ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Acemannan
A vet at the Smith Ridge Veterinary Clinic recommended it to me during a paid consultation recently for Lukey but it was $175.00 and in the midst of our LTCI injections I just couldn't afford to do both. Would love to know if anyone else has actually used it. To my understanding it is a glyconutrient similar to Ambrotose that Jenny is using with Autumn??? Sally Jewell > -Original Message- > From: felvtalk-boun...@felineleukemia.org [mailto:felvtalk- > boun...@felineleukemia.org] On Behalf Of gary > Sent: Monday, September 28, 2009 5:02 PM > To: felvtalk@felineleukemia.org > Subject: [Felvtalk] Acemannan > > Has anyone presently on the list ever used Acemannan for their > FeLV positive > cat(s)? > > Gary > > > ___ > Felvtalk mailing list > Felvtalk@felineleukemia.org > http://felineleukemia.org/mailman/listinfo/felvtalk_felinele ukemia.o > rg ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Acemannan
A vet at the Smith Ridge Veterinary Clinic recommended it to me during a paid consultation recently for Lukey but it was $175.00 and in the midst of our LTCI injections I just couldn't afford to do both. Would love to know if anyone else has actually used it. To my understanding it is a glyconutrient similar to Ambrotose that Jenny is using with Autumn??? Sally Jewell > -Original Message- > From: felvtalk-boun...@felineleukemia.org [mailto:felvtalk- > boun...@felineleukemia.org] On Behalf Of gary > Sent: Monday, September 28, 2009 5:02 PM > To: felvtalk@felineleukemia.org > Subject: [Felvtalk] Acemannan > > Has anyone presently on the list ever used Acemannan for their > FeLV positive > cat(s)? > > Gary > > > ___ > Felvtalk mailing list > Felvtalk@felineleukemia.org > http://felineleukemia.org/mailman/listinfo/felvtalk_felinele ukemia.o > rg ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
[Felvtalk] Acemannan
Has anyone presently on the list ever used Acemannan for their FeLV positive cat(s)? Gary ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Acemannan
I forgot the link http://pets.groups.yahoo.com/group/fiv-healthscience/ there are several FIV groups. You will need a intro to the moderator Joel. Just explain your needs and you have an FELV cat. There are other members from this group on that list. On 2/25/09, Sally Davis wrote: > > If you search the groups archives you will see posts from Hideyo, who used > to be a member on this group. It appears she had some luck with this drug > reversing severe anemia. You may want to join the yahoo FIV group and it is > a very technical group when it comes to treatment. You do not need to have > an FIV cat to join. Some treatments overlap and They will welcome you with > your FELV cat. > > I had luck with immunoregulin reversing anemia. > > Good Luck > > Sally > > > >> >> > > > > -- > Sally(me), Eric (not a cat),Junior(angel), Tiny(angel) Fluffy(soul mate > angel), Lionel(angel),Speedy, Grey and White, Ittle Bitty, Little Black, > Lily, Daisy, Pewter, Junior Junior, Hotdog (newest) Silver, and Spike > Please Visit my Message board for some pictures. You are welcome to sign > up. > > http://www.k6az.com/ki4spk/index.php?sid=c57c00cf5804ef13853ed6e77a68eed3 > > > -- Sally(me), Eric (not a cat),Junior(angel), Tiny(angel) Fluffy(soul mate angel), Lionel(angel),Speedy, Grey and White, Ittle Bitty, Little Black, Lily, Daisy, Pewter, Junior Junior, Hotdog (newest) Silver, and Spike Please Visit my Message board for some pictures. You are welcome to sign up. http://www.k6az.com/ki4spk/index.php?sid=c57c00cf5804ef13853ed6e77a68eed3 ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Acemannan
If you search the groups archives you will see posts from Hideyo, who used to be a member on this group. It appears she had some luck with this drug reversing severe anemia. You may want to join the yahoo FIV group and it is a very technical group when it comes to treatment. You do not need to have an FIV cat to join. Some treatments overlap and They will welcome you with your FELV cat. I had luck with immunoregulin reversing anemia. Good Luck Sally > > -- Sally(me), Eric (not a cat),Junior(angel), Tiny(angel) Fluffy(soul mate angel), Lionel(angel),Speedy, Grey and White, Ittle Bitty, Little Black, Lily, Daisy, Pewter, Junior Junior, Hotdog (newest) Silver, and Spike Please Visit my Message board for some pictures. You are welcome to sign up. http://www.k6az.com/ki4spk/index.php?sid=c57c00cf5804ef13853ed6e77a68eed3 ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
Re: [Felvtalk] Acemannan
Mike, I have been looking for any info on this as well. I live in the chicago area and have, as of yet, found none. I am still looking and will keep you updated. Jenny MIKE JANUS wrote: > Does anyone have any experience in the treatment of felv with acemannan? > Also, does anyone know of any vets in Illinois, Indiana, or Wisconsin that > use acemannan? Thanks. > > > > ___ > Felvtalk mailing list > Felvtalk@felineleukemia.org > http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org
[Felvtalk] Acemannan
Does anyone have any experience in the treatment of felv with acemannan? Also, does anyone know of any vets in Illinois, Indiana, or Wisconsin that use acemannan? Thanks. ___ Felvtalk mailing list Felvtalk@felineleukemia.org http://felineleukemia.org/mailman/listinfo/felvtalk_felineleukemia.org