[QUAD-L] Danny Espinoza invites you to connect
Join Danny Espinoza on Yahoo! Messenger. Come chat with me, share files and more. Stay in the loop with all your friends. Get started : http://invite.msg.yahoo.com/invite?op=acceptintl=ussig=O68AzOKyKF8HSKKCZ3aqwJ4eiSqQd3.Z_h8A1Fojk2pt5PQ2DKWDq9E- * Stay connected at home, at work, or on the go * Have fun with games, emoticons, and more * Join a community of over 100 million people from around the world Join Your Friends : http://invite.msg.yahoo.com/invite?op=acceptintl=ussig=O68AzOKyKF8HSKKCZ3aqwJ4eiSqQd3.Z_h8A1Fojk2pt5PQ2DKWDq9E- -- this email was sent to you by an automated system - please do not reply directly
RE: [QUAD-L] seat cushion
As I've posted previously, I question the true value of pressure mapping. Doesn't the process and mapping assume you will always be seated (positioned) exactly the same way in your chair on your cushion each time? It seems even a minor variance (perhaps 1) left, right, forward or backward would effectively change the mapping. There may also be variances due to types of clothing worn and changes in weight. Steve - C4, 21 years From: e m treston [mailto:missl...@optonline.net] Sent: Tuesday, July 28, 2009 9:10 AM To: 'Derrick'; quad-list@eskimo.com Subject: RE: [QUAD-L] seat cushion NEVER get a new cushion without being pressure mapped. If you have had no skin issues with your current cushion why oh why would you want to risk a breakdown with a cushion recommended by a DME supplier? _ From: Derrick [mailto:whe...@cvn.net] Sent: Monday, July 27, 2009 8:42 PM To: quad-list@eskimo.com Subject: [QUAD-L] seat cushion Does anyone use the new seat cushion The Matrx Flo-tech cushion Here is their website http://www.motionconcepts.com/ My dealer rep recommended it. I use to use a Jay GS and Jay 2. I am looking at getting a new cushion. Thanks, DerrickW
RE: [QUAD-L] seat cushion
Yes and no. It does change as your position changes, but you'd have to be pretty changed to make a real difference. But if you saw the pressure difference on my mapping of my Jay and my Roho, it was clearly more relief on my Roho. I was able to see how the pressure changes as I raised and lowered my leg-rests. I could tell where the best location was. Even if I'm slightly on one butt cheek more than the other or off to one side a bit. One day may fit better than another, but averaged out the better your cushion fits you the better for your butt. If I was 1 inch off, I'd be pretty uncomfortable. I think that would be bad on your butt with any cushion. Just my thoughts. Greg _ As I've posted previously, I question the true value of pressure mapping. Doesn't the process and mapping assume you will always be seated (positioned) exactly the same way in your chair on your cushion each time? It seems even a minor variance (perhaps 1) left, right, forward or backward would effectively change the mapping. There may also be variances due to types of clothing worn and changes in weight.
[QUAD-L] Unidentified subject!
TO ALL TC SCS MEMBERS, I remember it was last year or so when somebody out there told me about GoodSearch.com. I don't remember the story anymore but it seems to me that I checked with national on it and, whatever happened, it fell by the wayside. Well now I've just heard about it again from Stephanie at our North Carolina chapter. SCS is signed up on it and it is available to us as an excellent source of fundraising. Here's the deal. GoodSearch.com is a search engine that pays money back to your designated charity every time you use it. So every time you do an internet search for something, use GoodSearch instead of Google or Yahoo or whatever. For every search you do they'll pay a penny or so to SCS. That may not sound like much but it will add up, if we use it! THIS IS A NO-BRAINER FOLKS!!! If you're looking stuff up on the internet you're using a search engine so just use the one that will help us fund a cure. It's simple to do. Go to www.goodsearch.com. You'll see the search box and then you'll see the box to choose your charity. Type in Spinal Cord Society (open up your internet browser in another window and do this with me now), check to see it's the Fergus Falls SCS then click 'verify'. Now every time you go to GoodSearch, SCS will be preset and all you have to do is start your searches to make us some money. There is also an 'amount raised' button so you can see just how much money is being raised. This money gets sent right to Fergus Falls. You'll also see GoodShop.com right below that. Do your online shopping from there and it'll do the same thing to make even more money. AGAIN, THIS IS A NO-BRAINER! You can set GoodSearch as your home page, as a Favorite or download their toolbar or just their search box. All you have to do is just USE it. But don't stop there. Forward this to everyone on your address list who you think would be willing to help your cause out. We should be able to quickly get hundreds of people using this and it won't cost them a cent. Why wouldn't you, or they, want to do it? I don't care if you're searching for the best way to pick your nose, we should be using the heck out of this. It'll be easy enough to check with Fergus to make sure they're getting the money. If you don't want to do this, then all I can say is there is truly no hope for us. Mike
RE: [QUAD-L] seat cushion
I never had pressure mapping until I developed a stage one pressure ulcer. I didn't realize it at the time that it was being caused by my jeans. I sat on a number of different cushions during the very simple procedure. It turns out that the best cushion for me is the 2 inch piece of foam. A RoHo showed my bottom to have very many red spots, same with the very expensive gel cushions. You should move around or have the occupational therapists move you around to see where/when pressure is occurring. In answering the first post of this original question, my concern was the person was being pushed to buy a question just because of a dealer recommends the cushion. We all have different asses ;-) _ From: Steve Oldaker [mailto:steve.olda...@comcast.net] Sent: Wednesday, July 29, 2009 10:34 AM To: 'e m treston'; 'Derrick'; quad-list@eskimo.com Subject: RE: [QUAD-L] seat cushion As I've posted previously, I question the true value of pressure mapping. Doesn't the process and mapping assume you will always be seated (positioned) exactly the same way in your chair on your cushion each time? It seems even a minor variance (perhaps 1) left, right, forward or backward would effectively change the mapping. There may also be variances due to types of clothing worn and changes in weight. Steve - C4, 21 years From: e m treston [mailto:missl...@optonline.net] Sent: Tuesday, July 28, 2009 9:10 AM To: 'Derrick'; quad-list@eskimo.com Subject: RE: [QUAD-L] seat cushion NEVER get a new cushion without being pressure mapped. If you have had no skin issues with your current cushion why oh why would you want to risk a breakdown with a cushion recommended by a DME supplier? _ From: Derrick [mailto:whe...@cvn.net] Sent: Monday, July 27, 2009 8:42 PM To: quad-list@eskimo.com Subject: [QUAD-L] seat cushion Does anyone use the new seat cushion The Matrx Flo-tech cushion Here is their website http://www.motionconcepts.com/ My dealer rep recommended it. I use to use a Jay GS and Jay 2. I am looking at getting a new cushion. Thanks, DerrickW
RE: [QUAD-L] Unidentified subject!
Is this serious? _ From: Angie Novak [mailto:scaryide...@yahoo.com] Sent: Wednesday, July 29, 2009 3:03 PM To: quad-list@eskimo.com Subject: [QUAD-L] Unidentified subject! res://c:\PROGRA~1\Nuance\NATURA~1\Program\web_ie.dll/QMARK.GIF res://c:\PROGRA~1\Nuance\NATURA~1\Program\web_ie.dll/ARROW.GIF TO ALL TC SCS MEMBERS, I remember it was last year or so when somebody out there told me about GoodSearch.com. I don't remember the story anymore but it seems to me that I checked with national on it and, whatever happened, it fell by the wayside. Well now I've just heard about it again from Stephanie at our North Carolina chapter. SCS is signed up on it and it is available to us as an excellent source of fundraising. Here's the deal. GoodSearch.com is a search engine that pays money back to your designated charity every time you use it. So every time you do an internet search for something, use GoodSearch instead of Google or Yahoo or whatever. For every search you do they'll pay a penny or so to SCS. That may not sound like much but it will add up, if we use it! THIS IS A NO-BRAINER FOLKS!!! If you're looking stuff up on the internet you're using a search engine so just use the one that will help us fund a cure. It's simple to do. Go to www.goodsearch.com http://www.goodsearch.com/ . You'll see the search box and then you'll see the box to choose your charity. Type in Spinal Cord Society (open up your internet browser in another window and do this with me now), check to see it's the Fergus Falls SCS then click 'verify'. Now every time you go to GoodSearch, SCS will be preset and all you have to do is start your searches to make us some money. There is also an 'amount raised' button so you can see just how much money is being raised. This money gets sent right to Fergus Falls. You'll also see GoodShop.com right below that. Do your online shopping from there and it'll do the same thing to make even more money. AGAIN, THIS IS A NO-BRAINER! You can set GoodSearch as your home page, as a Favorite or download their toolbar or just their search box. All you have to do is just USE it. But don't stop there. Forward this to everyone on your address list who you think would be willing to help your cause out. We should be able to quickly get hundreds of people using this and it won't cost them a cent. Why wouldn't you, or they, want to do it? I don't care if you're searching for the best way to pick your nose, we should be using the heck out of this. It'll be easy enough to check with Fergus to make sure they're getting the money. If you don't want to do this, then all I can say is there is truly no hope for us. Mike
RE: [QUAD-L] seat cushion
That should read Pushed to buy a cushion, not buy a question! Silly dictation software!! :-) _ From: e m treston [mailto:missl...@optonline.net] Sent: Wednesday, July 29, 2009 3:39 PM To: quad-list@eskimo.com Subject: RE: [QUAD-L] seat cushion I never had pressure mapping until I developed a stage one pressure ulcer. I didn't realize it at the time that it was being caused by my jeans. I sat on a number of different cushions during the very simple procedure. It turns out that the best cushion for me is the 2 inch piece of foam. A RoHo showed my bottom to have very many red spots, same with the very expensive gel cushions. You should move around or have the occupational therapists move you around to see where/when pressure is occurring. In answering the first post of this original question, my concern was the person was being pushed to buy a question just because of a dealer recommends the cushion. We all have different asses ;-) _ From: Steve Oldaker [mailto:steve.olda...@comcast.net] Sent: Wednesday, July 29, 2009 10:34 AM To: 'e m treston'; 'Derrick'; quad-list@eskimo.com Subject: RE: [QUAD-L] seat cushion As I've posted previously, I question the true value of pressure mapping. Doesn't the process and mapping assume you will always be seated (positioned) exactly the same way in your chair on your cushion each time? It seems even a minor variance (perhaps 1) left, right, forward or backward would effectively change the mapping. There may also be variances due to types of clothing worn and changes in weight. Steve - C4, 21 years From: e m treston [mailto:missl...@optonline.net] Sent: Tuesday, July 28, 2009 9:10 AM To: 'Derrick'; quad-list@eskimo.com Subject: RE: [QUAD-L] seat cushion NEVER get a new cushion without being pressure mapped. If you have had no skin issues with your current cushion why oh why would you want to risk a breakdown with a cushion recommended by a DME supplier? _ From: Derrick [mailto:whe...@cvn.net] Sent: Monday, July 27, 2009 8:42 PM To: quad-list@eskimo.com Subject: [QUAD-L] seat cushion Does anyone use the new seat cushion The Matrx Flo-tech cushion Here is their website http://www.motionconcepts.com/ My dealer rep recommended it. I use to use a Jay GS and Jay 2. I am looking at getting a new cushion. Thanks, DerrickW
Re: [QUAD-L] Unidentified subject!
probably BUT beware u'll probably get alot of spyware, pennies 4 x-number of searches, etc., etc. Eric W Rudd c5sc...@gmail.com - Original Message - From: e m treston To: quad-list@eskimo.com Sent: Wednesday, July 29, 2009 2:42 PM Subject: RE: [QUAD-L] Unidentified subject! Is this serious? -- From: Angie Novak [mailto:scaryide...@yahoo.com] Sent: Wednesday, July 29, 2009 3:03 PM To: quad-list@eskimo.com Subject: [QUAD-L] Unidentified subject! TO ALL TC SCS MEMBERS, I remember it was last year or so when somebody out there told me about GoodSearch.com. I don't remember the story anymore but it seems to me that I checked with national on it and, whatever happened, it fell by the wayside. Well now I've just heard about it again from Stephanie at our North Carolina chapter. SCS is signed up on it and it is available to us as an excellent source of fundraising. Here's the deal. GoodSearch.com is a search engine that pays money back to your designated charity every time you use it. So every time you do an internet search for something, use GoodSearch instead of Google or Yahoo or whatever. For every search you do they'll pay a penny or so to SCS. That may not sound like much but it will add up, if we use it! THIS IS A NO-BRAINER FOLKS!!! If you're looking stuff up on the internet you're using a search engine so just use the one that will help us fund a cure. It's simple to do. Go to www.goodsearch.com. You'll see the search box and then you'll see the box to choose your charity. Type in Spinal Cord Society (open up your internet browser in another window and do this with me now), check to see it's the Fergus Falls SCS then click 'verify'. Now every time you go to GoodSearch, SCS will be preset and all you have to do is start your searches to make us some money. There is also an 'amount raised' button so you can see just how much money is being raised. This money gets sent right to Fergus Falls. You'll also see GoodShop.com right below that. Do your online shopping from there and it'll do the same thing to make even more money. AGAIN, THIS IS A NO-BRAINER! You can set GoodSearch as your home page, as a Favorite or download their toolbar or just their search box. All you have to do is just USE it. But don't stop there. Forward this to everyone on your address list who you think would be willing to help your cause out. We should be able to quickly get hundreds of people using this and it won't cost them a cent. Why wouldn't you, or they, want to do it? I don't care if you're searching for the best way to pick your nose, we should be using the heck out of this. It'll be easy enough to check with Fergus to make sure they're getting the money. If you don't want to do this, then all I can say is there is truly no hope for us. Mike
[QUAD-L] Savella
Has anybody tried Savella for SCI/nerve pain?* *
Re: [QUAD-L] seat cushion
I have to agree with you Greg. If I'm off as much as a 1/4 of an inch I am extremely uncomfortable. A friend of mine is having the pressure mapping done as I speak. The only reason these haven't done is because he has been developing some raw spots on his rear end. He uses a 1 inch foam cushion. Hopefully they will find something that works well with him. Quadius On Wed, Jul 29, 2009 at 1:08 PM, Greg g...@eskimo.com wrote: Yes and no. It does change as your position changes, but you’d have to be pretty changed to make a real difference. But if you saw the pressure difference on my mapping of my Jay and my Roho, it was clearly more relief on my Roho. I was able to see how the pressure changes as I raised and lowered my leg-rests. I could tell where the best location was. Even if I’m slightly on one butt cheek more than the other or off to one side a bit. One day may fit better than another, but averaged out the better your cushion fits you the better for your butt. If I was 1 inch off, I’d be pretty uncomfortable. I think that would be bad on your butt with any cushion. Just my thoughts… Greg -- As I've posted previously, I question the true value of pressure mapping. Doesn't the process and mapping assume you will always be seated (positioned) exactly the same way in your chair on your cushion each time? It seems even a minor variance (perhaps 1) left, right, forward or backward would effectively change the mapping. There may also be variances due to types of clothing worn and changes in weight.
Re: [QUAD-L] 35 year anniversary
Daniel, When you are doing the vest therapy try to have them put you in Trendelenburg if your bed is capable of doing that. This position in combination with percussion and expectorants can really facilitate the removal of secretions and thereby allow you to virtually eliminate pneumonia. Talk to someone about being put on a prophylactic breathing treatment if at all possible. This is also best done in Trendelenburg. Another thing you might want to try if you're having difficulties getting the secretions out. Have your caregiver put you in Trendelenburg and then turn you over on the side. If they can provide very hard percussion to the lower portion of your scapula (shoulder blade) this will definitely help get the secretions out of your system. You can also try quad coughing from the Trendelenburg position. At least all of these things work well with me. Quadius C2 3 quadriplegic 14 years post injury. I was a ventilator dependent for a little more than four months. On Mon, Jul 27, 2009 at 10:40 AM, Daniel Espinoza da...@thespinalcordinjured.net wrote: I gone to the hospital with them on your kind of often. Don't need help breathing but I really don't want a whole in my neck again….. only been a quad for 3 1/2 years, so I guess I'm kind of a newbie. I fight UTIs and pneumonia, the UTIs I usually don't need to be hospitalized unless my doctors worried however the pneumonia is something I go and visit the hospital for. I really don't like being in the hospital or being suctioned through the nose, or getting a trumpet in my nose because it's so raw and bleeding in there. Right now I have tried using a therapeutic vest and the jury is still out on how well it works. Thanks a lot for this information may be one day I'll end up giving in and getting one also. Right now we were turned down for a home suctioning kit, I think with the trach they wouldn't have a problem with me getting one. I've got some thinking to do I still really don't want to have the trach but maybe someday. Daniel Espinoza 26/m/California Occupation before accident - Network engineer / SR. Network security engineer What happened: I broke my c2,c6,c7 and had to get donor bone at c2, which left me as a Quadriplegic http://en.wikipedia.org/wiki/Quadriplegia. I had a Traumatic_brain_injuryhttp://en.wikipedia.org/wiki/Traumatic_brain_injuryfrom blood going to my brain from my spinal cord, but its getting better with time. I am off a ventilator http://en.wikipedia.org/wiki/Ventilator woohoo however only half of my diaphragmhttp://en.wikipedia.org/wiki/Thoracic_diaphragmworks right now due to an asymmetric spinal cord injury http://en.wikipedia.org/wiki/Spinal_cord_injury. http://www.thespinalcordinjured.net http://spinalcordinjured.net/ http://www.myspace.com/dannylnx *From:* daa...@aol.com [mailto:daa...@aol.com] *Sent:* Monday, July 27, 2009 7:27 AM *To:* quad-list@eskimo.com *Subject:* [QUAD-L] 35 year anniversary I can't believe I made it to my 35 th year anniversary. My parents were told after each hospitalization I might not make. It seems I was strong enough to defeat their predictions even though I appeared to be weak at the time. I was given a tracheostomy after each of my surgeries, but it was removed before I came home. I had so many long hospitalizations trying to get off the ventilator and over pneumonia. I was given another tracheostomy during a pneumonia in 88, which they changed to a trach button before I left the hospital. It has kept me out of the hospital except for a UTI that got into my bloodstream causing a coma for 13 days. I had a pneumonia last year. The trach buttonallows me to get over the bronchitis at home. I didn't want it, but it turned out to be a good thing for me and not very noticeable. It is mostly capped, unless I have a lot allergies or congestion and might need suctioned as needed. It is easy for anyone to learn how to do. I am quite healthy almost all of the time. I love to enjoy life going to concerts, which is one of my favorite things to do. Sorry this has been such a lengthy post. I have forgotten, who has the longest survivor that we know of. They had saved that information, but have lost when this computer was reformatted and my brother thought he had saved. I haven't got a lot of posts this summer, and I'm sure everybody is busy. Just wanted to say I miss those that I have not heard from. What does everybody think about the new health-care bill as nobody has mentioned. I know that is a political issue, but very important for our ability to survive and get what we need. There has been talk about taking away from Medicare. Medicaid is also having problems with reduced state revenue for problems. Kansas has mentioned there will be some reductions with populations such as ours, but I don't know where it will be targeted. PCA hourly pay is very low and hard to find people that
Re: [QUAD-L] 35 year anniversary
congratulations. On August 8 I will celebrate the 14th anniversary of the day I was able to successfully breathe without the aid of a ventilator. I like celebrating this day as opposed to worrying too much about the day I was injured. I like to accentuate the positive. Quadius On Mon, Jul 27, 2009 at 10:27 AM, daa...@aol.com wrote: I can't believe I made it to my 35 th year anniversary. My parents were told after each hospitalization I might not make. It seems I was strong enough to defeat their predictions even though I appeared to be weak at the time. I was given a tracheostomy after each of my surgeries, but it was removed before I came home. I had so many long hospitalizations trying to get off the ventilator and over pneumonia. I was given another tracheostomy during a pneumonia in 88, which they changed to a trach button before I left the hospital. It has kept me out of the hospital except for a UTI that got into my bloodstream causing a coma for 13 days. I had a pneumonia last year. The trach buttonallows me to get over the bronchitis at home. I didn't want it, but it turned out to be a good thing for me and not very noticeable. It is mostly capped, unless I have a lot allergies or congestion and might need suctioned as needed. It is easy for anyone to learn how to do. I am quite healthy almost all of the time. I love to enjoy life going to concerts, which is one of my favorite things to do. Sorry this has been such a lengthy post. I have forgotten, who has the longest survivor that we know of. They had saved that information, but have lost when this computer was reformatted and my brother thought he had saved. I haven't got a lot of posts this summer, and I'm sure everybody is busy. Just wanted to say I miss those that I have not heard from. What does everybody think about the new health-care bill as nobody has mentioned. I know that is a political issue, but very important for our ability to survive and get what we need. There has been talk about taking away from Medicare. Medicaid is also having problems with reduced state revenue for problems. Kansas has mentioned there will be some reductions with populations such as ours, but I don't know where it will be targeted. PCA hourly pay is very low and hard to find people that want to work with no increases at all for a number of years. Just wondering! . --
Re: [QUAD-L] seat cushion
At 06:32 PM 7/29/2009, Quadius said something that elicited my response: I have to agree with you Greg. If I'm off as much as a 1/4 of an inch I am extremely uncomfortable. Ain't that the truth! When my PCAs put me in my chair or adjust me in bed, I often have them move me ever so lightly one way or another. The new ones say 'I hardly moved you!' I always reply that quads live by millimeters. And if we hit a bad bump while driving in the van, I'm shifted an inch or so which results in my inability to do much of anything. Dan Mankind must put an end to war, or war will put an end to mankind...War will exist until that distant day when the conscientious objector enjoys the same reputation and prestige that the warrior does today. - John F. Kennedy
RE: [QUAD-L] seat cushion
I do agree that even smaller diversions in seating are detectable by me and it appears most quads, and if pressure mapping is done with multiple cushions and seating positions (i.e. legs up/down, etc.) I can see some value in pressure mapping. Thanks for all of the input. Steve - C4, 21 years From: Dan [mailto:d...@unh.edu] Sent: Wednesday, July 29, 2009 7:15 PM To: quad-list@eskimo.com Subject: Re: [QUAD-L] seat cushion At 06:32 PM 7/29/2009, Quadius said something that elicited my response: I have to agree with you Greg. If I'm off as much as a 1/4 of an inch I am extremely uncomfortable. Ain't that the truth! When my PCAs put me in my chair or adjust me in bed, I often have them move me ever so lightly one way or another. The new ones say 'I hardly moved you!' I always reply that quads live by millimeters. And if we hit a bad bump while driving in the van, I'm shifted an inch or so which results in my inability to do much of anything. Dan Mankind must put an end to war, or war will put an end to mankind...War will exist until that distant day when the conscientious objector enjoys the same reputation and prestige that the warrior does today. - John F. Kennedy
Re: [QUAD-L] Help! Suprapubic Cath keeps plugging
This has happened to me several times over the last 14 years. The first few years that I had difficulty with this I believe it was largely because the catheter wasn't large enough. I ended up using a 22 French and this helped considerably. I did have a problem for about six months about four years ago. Nothing seemed to help. I took tons of all of the vitamins, drink as much juice is possible and drank (and continue to drink) about four to 5 L of water a day. My problem turned out to be bladder stones. Once they were removed, Presto, the problem was gone. I would recommend taking 500 mg of vitamin C three times a day. Taken some cranberry supplements if you're not able to drink cranberry juice. And irrigating a couple of times a week. If you're really having problems with your catheter clogging, you might want to try irrigating once a day. This is what I ended up having to do during my difficult period. You may also have to start having someone changed the catheter more frequently than you presently are. When this happened to me, I had to change my catheter once a week in order to prevent it from clogging. Keep in mind, that I had a significant amount of bladder stones though. Quadius Please excuse any errors. Due to my quadriplegia, I am using voice-activated software and it occasionally makes mistakes which I do not always catch. I therefore humbly ask for your indulgence. My microphones definitely suffering from a little bit of interference today. On Mon, Jul 27, 2009 at 7:08 PM, ahuesing...@yahoo.com wrote: I hope someone can help me, I have a supra-pubic catheter and it keeps plugging up. Mainly it seems to be mucus, but sometimes it gritty stuff. I've heard of pills to acidify the urine and flushing with things like Renacedin (sp?). What works best for you guys? Please help
Re: [QUAD-L] 2 much bachoflen
I'm a little shocked at the 300. I take 80 mg of baclofen a day, but that is orally. The individuals I know who have a baclofen pump tell me it requires quite a bit less than when they were taking the medicine orally. Everyone reacts differently, but I never experienced fatigue from baclofen, then again I wasn't taking it in the quantities you are. The highest I ever went to was 160 mg a day. I still take quite a bit of medicine for spasms. Baclofen doesn't seem to be that effective for me, so I end up taking 75 mg of dantrolene a day and 5 mg diazepam (Valium) a day. I managed to reduce my intake of diazepam considerably over a 2 1/2 year period, but I have reached a plateau where reducing my medication would cause too many spasms. Definitely getting to see your doctor ASAP. Good luck, Q On Tue, Jul 28, 2009 at 3:26 PM, Veranda Escobar vaescob...@yahoo.comwrote: Hello everyone, I wrote a few weeks back was telling everyone how i was having bad back pain,bad spasms, and drinching in sweat. The spams were so bad they were jerking me from sleep. Well i upgraded my pump on the 15th. For two days after that I was asleep. I could not pull myself from my sleep. I was really scared. Finally on 3rd day there was no more spams, no more sweating, and I was a wake. Since then my stomach was hurting. Well the pain went away last night after a week. But I am soo sleepy. What do you guys think? I was getting 280 dosage thru pump now i have 320. I'm so faustrated because if i go bk lower pump i'm scared toget spams sweats back. But i can't continue to be so sleepy. I wk a 40 job and i just want to be put my head down. Should i downgrade too 300.? I'm asking u guys cause we know more than the dr's lol
RE: [QUAD-L] 2 much bachoflen
I've taken 120mg daily (30mg 4x daily) orally for 21 years per SCI MDs direction, though FDA advises 80mg daily as the maximum dosage. I've tried cutting back slowly several times, but anything below even 100mg daily has my legs spasming out of my shoes. 120mg works for me. 300mg daily sounds close to lethal. I don't know how one functions at all at that dosage let alone being sleepy. I hope you can work things out, Veranda. Steve - C4, 21 years From: Quadius [mailto:quad...@gmail.com] Sent: Wednesday, July 29, 2009 7:57 PM To: Veranda Escobar Cc: quad-list@eskimo.com Subject: Re: [QUAD-L] 2 much bachoflen I'm a little shocked at the 300. I take 80 mg of baclofen a day, but that is orally. The individuals I know who have a baclofen pump tell me it requires quite a bit less than when they were taking the medicine orally. Everyone reacts differently, but I never experienced fatigue from baclofen, then again I wasn't taking it in the quantities you are. The highest I ever went to was 160 mg a day. I still take quite a bit of medicine for spasms. Baclofen doesn't seem to be that effective for me, so I end up taking 75 mg of dantrolene a day and 5 mg diazepam (Valium) a day. I managed to reduce my intake of diazepam considerably over a 2 1/2 year period, but I have reached a plateau where reducing my medication would cause too many spasms. Definitely getting to see your doctor ASAP. Good luck, Q On Tue, Jul 28, 2009 at 3:26 PM, Veranda Escobar vaescob...@yahoo.com wrote: Hello everyone, I wrote a few weeks back was telling everyone how i was having bad back pain,bad spasms, and drinching in sweat. The spams were so bad they were jerking me from sleep. Well i upgraded my pump on the 15th. For two days after that I was asleep. I could not pull myself from my sleep. I was really scared. Finally on 3rd day there was no more spams, no more sweating, and I was a wake. Since then my stomach was hurting. Well the pain went away last night after a week. But I am soo sleepy. What do you guys think? I was getting 280 dosage thru pump now i have 320. I'm so faustrated because if i go bk lower pump i'm scared toget spams sweats back. But i can't continue to be so sleepy. I wk a 40 job and i just want to be put my head down. Should i downgrade too 300.? I'm asking u guys cause we know more than the dr's lol
[QUAD-L] ==LW GRIP GLOVES - The perfect gripping aid==
CHECK OUT THIS GREAT INTRODUCTORY OFFER WWW.LWGRIPGLOVES.COM Lissette Whitehead 1177 Broadway Suite #4 Chula Vista, CA 91911 www.lwgripgloves.com Lauren found her dream laptop. Find the PC that’s right for you. Hotmail® has ever-growing storage! Don’t worry about storage limits. Check it out. Insert movie times and more without leaving Hotmail®. See how. Hotmail® has ever-growing storage! Don’t worry about storage limits. Check it out. Windows Live™ SkyDrive™: Get 25 GB of free online storage. Get it on your BlackBerry or iPhone. Insert movie times and more without leaving Hotmail®. See how. Windows Live™: Keep your life in sync. Check it out. Lauren found her dream laptop. Find the PC that’s right for you. Windows Live™ SkyDrive™: Get 25 GB of free online storage. Get it on your BlackBerry or iPhone. Hotmail® has ever-growing storage! Don’t worry about storage limits. Check it out. Windows Live™: Keep your life in sync. Check it out. Insert movie times and more without leaving Hotmail®. See how. Lauren found her dream laptop. Find the PC that’s right for you. Lauren found her dream laptop. Find the PC that’s right for you. Bing™ brings you maps, menus, and reviews organized in one place. Try it now. _ Windows Live™ Hotmail®: Celebrate the moment with your favorite sports pics. Check it out. http://www.windowslive.com/Online/Hotmail/Campaign/QuickAdd?ocid=TXT_TAGLM_WL_QA_HM_sports_photos_072009cat=sports
