Re: [QUAD-L] free list
Well said. Q On 2/26/08, Stacy Harim [EMAIL PROTECTED] wrote: The point of my post was that topic was becoming mundane to use your words. I totally agree that there are many more things to discuss aside from paralysis, but sometimes topics get beat to death. After days and so many posts saying the same things, sometimes it turns into an arguement and some hateful things are said. I understand there is a delte key, however I don't always check my email every day. When I get busy, it can be almost a week or more and I don't have the time or patience at that point to go through all of the emails so I delete all of them at once only to find I missed an important post after the fact. Then if I want to know what it said, I have to go to the archives. My whole point is that we are here to support eachother, not beat eachother down. It's like people seem to think those who yell the loudest is right sometimes. How about we express ourselves and response to what someone else said is fine (to me), but I get frustrated to see the same thing said over and over again and like I said before, hurtful things can be said. Again, we are here to support eachother. I don't expect everyone to reply to my posts, but it gets aggrivating to see posts like that get so much more attn than real life issues that we have to deal with. People should have kind words to offer even if they can't help over hurtful words about topics like the one about the poor woman who passed away. Sorry for my rambling, but my opinion stands about how I feel about the list. Someone told me that he has seen many leave over chat like that and I know of at least one myself that contributed quite a lot to the list sometime ago. Cant we all just get along? Stacy - Original Message From: Quadius [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, February 26, 2008 7:54:11 PM Subject: Re: [QUAD-L] free list I hope you continue to find answers here. Unfortunately there are going to be those threads which we don't like, but as someone said before, there is always the delete key. Just because you don't get a number of responses to your queries, doesn't mean it was a read by a multitude of people who really didn't feel the ability to respond effectively to your question. I read every answer or suggestion and it helped me out. About three or four years ago I made a similar plea and someone, it may have even been Tim (stuntman) who responded that we think about things other than a quadriplegia all the time. Why not comment about them on this site? The person felt it was mundane to consistently do nothing but talk about quadriplegia and frankly I have to agree. That is not to say that I don't agree with what you wrote. We should be more consumed with those who won't come out and help those of us in need. I hope this made some sort of sense. If not I apologize. Quadius On 2/24/08, Stacy Harim [EMAIL PROTECTED] wrote: I also went to that list because I had ADEM (Acute Disseminated Encephalomyelitis)which is similiar to TM. It affects the myelin sheath as well. I too thought that The TM list would help me but find more help here. There are some paralyzed on that list, but mostly people dealing different types of problems because they can walk. I know it's hard for them but my issues are more related to paralysis. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, February 24, 2008 12:13:52 PM Subject: Re: [QUAD-L] free list Stacy, I totally agree with you. There are more pressing issues that this website could address that would be a great help to those of us who need it. I went into the Transverse Myelitis website, but found that the quad website is where I can get the most information for my needs. When I come to this site I expect to find posts that would address my questions as a quad, instead of a bunch of conversation about something that is of no use to any of us. I am not saying that there should never be comments on current events or news articles, but I would think that our comments would be something beneficial for those of us who look toward this site for, what may be, the only help we can find. Sometimes we get on a subject and just comment on it until the comments are repetitions and of no use to anyone. Please, I beg of you, be mindful of us who really need help dealing with being a quadriplegic and answers to our issues at hand. Thanks in advance *Naomi* C4 quadriplegic since July 2005 due to Transverse Myelitis -- Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/2050827?NCID
Re: [QUAD-L] free list
I hope you continue to find answers here. Unfortunately there are going to be those threads which we don't like, but as someone said before, there is always the delete key. Just because you don't get a number of responses to your queries, doesn't mean it was a read by a multitude of people who really didn't feel the ability to respond effectively to your question. I read every answer or suggestion and it helped me out. About three or four years ago I made a similar plea and someone, it may have even been Tim (stuntman) who responded that we think about things other than a quadriplegia all the time. Why not comment about them on this site? The person felt it was mundane to consistently do nothing but talk about quadriplegia and frankly I have to agree. That is not to say that I don't agree with what you wrote. We should be more consumed with those who won't come out and help those of us in need. I hope this made some sort of sense. If not I apologize. Quadius On 2/24/08, Stacy Harim [EMAIL PROTECTED] wrote: I also went to that list because I had ADEM (Acute Disseminated Encephalomyelitis)which is similiar to TM. It affects the myelin sheath as well. I too thought that The TM list would help me but find more help here. There are some paralyzed on that list, but mostly people dealing different types of problems because they can walk. I know it's hard for them but my issues are more related to paralysis. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, February 24, 2008 12:13:52 PM Subject: Re: [QUAD-L] free list Stacy, I totally agree with you. There are more pressing issues that this website could address that would be a great help to those of us who need it. I went into the Transverse Myelitis website, but found that the quad website is where I can get the most information for my needs. When I come to this site I expect to find posts that would address my questions as a quad, instead of a bunch of conversation about something that is of no use to any of us. I am not saying that there should never be comments on current events or news articles, but I would think that our comments would be something beneficial for those of us who look toward this site for, what may be, the only help we can find. Sometimes we get on a subject and just comment on it until the comments are repetitions and of no use to anyone. Please, I beg of you, be mindful of us who really need help dealing with being a quadriplegic and answers to our issues at hand. Thanks in advance *Naomi* C4 quadriplegic since July 2005 due to Transverse Myelitis -- Delicious ideas to please the pickiest eaters. Watch the video on AOL Living.http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/2050827?NCID=aolcmp0030002598 -- Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now.http://us.rd.yahoo.com/evt=51733/*http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ
Re: [QUAD-L] free list
The point of my post was that topic was becoming mundane to use your words. I totally agree that there are many more things to discuss aside from paralysis, but sometimes topics get beat to death. After days and so many posts saying the same things, sometimes it turns into an arguement and some hateful things are said. I understand there is a delte key, however I don't always check my email every day. When I get busy, it can be almost a week or more and I don't have the time or patience at that point to go through all of the emails so I delete all of them at once only to find I missed an important post after the fact. Then if I want to know what it said, I have to go to the archives. My whole point is that we are here to support eachother, not beat eachother down. It's like people seem to think those who yell the loudest is right sometimes. How about we express ourselves and response to what someone else said is fine (to me), but I get frustrated to see the same thing said over and over again and like I said before, hurtful things can be said. Again, we are here to support eachother. I don't expect everyone to reply to my posts, but it gets aggrivating to see posts like that get so much more attn than real life issues that we have to deal with. People should have kind words to offer even if they can't help over hurtful words about topics like the one about the poor woman who passed away. Sorry for my rambling, but my opinion stands about how I feel about the list. Someone told me that he has seen many leave over chat like that and I know of at least one myself that contributed quite a lot to the list sometime ago. Cant we all just get along? Stacy - Original Message From: Quadius [EMAIL PROTECTED] To: Stacy Harim [EMAIL PROTECTED] Cc: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Tuesday, February 26, 2008 7:54:11 PM Subject: Re: [QUAD-L] free list I hope you continue to find answers here. Unfortunately there are going to be those threads which we don't like, but as someone said before, there is always the delete key. Just because you don't get a number of responses to your queries, doesn't mean it was a read by a multitude of people who really didn't feel the ability to respond effectively to your question. I read every answer or suggestion and it helped me out. About three or four years ago I made a similar plea and someone, it may have even been Tim (stuntman) who responded that we think about things other than a quadriplegia all the time. Why not comment about them on this site? The person felt it was mundane to consistently do nothing but talk about quadriplegia and frankly I have to agree. That is not to say that I don't agree with what you wrote. We should be more consumed with those who won't come out and help those of us in need. I hope this made some sort of sense. If not I apologize. Quadius On 2/24/08, Stacy Harim [EMAIL PROTECTED] wrote: I also went to that list because I had ADEM (Acute Disseminated Encephalomyelitis)which is similiar to TM. It affects the myelin sheath as well. I too thought that The TM list would help me but find more help here. There are some paralyzed on that list, but mostly people dealing different types of problems because they can walk. I know it's hard for them but my issues are more related to paralysis. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, February 24, 2008 12:13:52 PM Subject: Re: [QUAD-L] free list Stacy, I totally agree with you. There are more pressing issues that this website could address that would be a great help to those of us who need it. I went into the Transverse Myelitis website, but found that the quad website is where I can get the most information for my needs. When I come to this site I expect to find posts that would address my questions as a quad, instead of a bunch of conversation about something that is of no use to any of us. I am not saying that there should never be comments on current events or news articles, but I would think that our comments would be something beneficial for those of us who look toward this site for, what may be, the only help we can find. Sometimes we get on a subject and just comment on it until the comments are repetitions and of no use to anyone. Please, I beg of you, be mindful of us who really need help dealing with being a quadriplegic and answers to our issues at hand. Thanks in advance Naomi C4 quadriplegic since July 2005 due to Transverse Myelitis Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Yahoo! Search. http
Re: [QUAD-L] free list
Stacy, I totally agree with you. There are more pressing issues that this website could address that would be a great help to those of us who need it. I went into the Transverse Myelitis website, but found that the quad website is where I can get the most information for my needs. When I come to this site I expect to find posts that would address my questions as a quad, instead of a bunch of conversation about something that is of no use to any of us. I am not saying that there should never be comments on current events or news articles, but I would think that our comments would be something beneficial for those of us who look toward this site for, what may be, the only help we can find. Sometimes we get on a subject and just comment on it until the comments are repetitions and of no use to anyone. Please, I beg of you, be mindful of us who really need help dealing with being a quadriplegic and answers to our issues at hand. Thanks in advance Naomi C4 quadriplegic since July 2005 due to Transverse Myelitis **Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp0030002598)
Re: [QUAD-L] free list
I also went to that list because I had ADEM (Acute Disseminated Encephalomyelitis)which is similiar to TM. It affects the myelin sheath as well. I too thought that The TM list would help me but find more help here. There are some paralyzed on that list, but mostly people dealing different types of problems because they can walk. I know it's hard for them but my issues are more related to paralysis. Stacy - Original Message From: [EMAIL PROTECTED] [EMAIL PROTECTED] To: [EMAIL PROTECTED]; quad-list@eskimo.com Sent: Sunday, February 24, 2008 12:13:52 PM Subject: Re: [QUAD-L] free list Stacy, I totally agree with you. There are more pressing issues that this website could address that would be a great help to those of us who need it. I went into the Transverse Myelitis website, but found that the quad website is where I can get the most information for my needs. When I come to this site I expect to find posts that would address my questions as a quad, instead of a bunch of conversation about something that is of no use to any of us. I am not saying that there should never be comments on current events or news articles, but I would think that our comments would be something beneficial for those of us who look toward this site for, what may be, the only help we can find. Sometimes we get on a subject and just comment on it until the comments are repetitions and of no use to anyone. Please, I beg of you, be mindful of us who really need help dealing with being a quadriplegic and answers to our issues at hand. Thanks in advance Naomi C4 quadriplegic since July 2005 due to Transverse Myelitis Delicious ideas to please the pickiest eaters. Watch the video on AOL Living. Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
Re: [QUAD-L] free list
Yes I realize it's a free list and so Sorry to charge another debate, but I do find issue with a list that is more willing to respond and say hurtfull or hateful things then to respond to those that are here for what the list was made for. I constantly have seen people post things looking for help or support about things that have happened to them or if they are looking for a new chair. that includes myself. I posted about needing another surgery which is pretty serious. Even Andrea posted about firemen putting her to bed when nursing wouldn't come out to do it. There were about 3 responses to mine, a few to Andrea's and tons talking and debating over the poor woman that passed away. I think if someone is gonna get angry about something, it should be about the nurses that wouldn't come out to help them. It's a helth issue for someone to stay in their chair all night. What if their catheter bags get full then back up into their kidneys, not to mention pressure sores from sitting in the chair all night especially if they are wet. Who knows what else they may have needed if no one came out to help them. If we want to get so emotionally charged over something then it should be that. They are still living and couldn't nursing to come out. That poor woman is gone and anything we say isn't going to change anything. Maybe 911 should ask disabled people what the circumstances are to why they need help then decide if they will come out. If it's something they caused, then we'll make you wait or not come at all because you deserve it. We'll just save help for those that didn't cause it because they are the one's who deserve it. Is that right? The woman should be resting in peace. I know she's in a better place but she didn't deserve to go that way. Aren't we here to support eachother? Stacy - Original Message From: RONALD L PRACHT [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, February 23, 2008 12:43:56 AM Subject: [QUAD-L] free list We all have delete keys.if people need to vent I think its fine. Whats the point of a list that you cant say whats on your mind. ron c7 Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs
RE: [QUAD-L] free list
That was the best reply yet! Mark Jackson RollinOn _ From: Stacy Harim [mailto:[EMAIL PROTECTED] Sent: Saturday, February 23, 2008 10:43 AM To: RONALD L PRACHT; quad-list@eskimo.com Subject: Re: [QUAD-L] free list Yes I realize it's a free list and so Sorry to charge another debate, but I do find issue with a list that is more willing to respond and say hurtfull or hateful things then to respond to those that are here for what the list was made for. I constantly have seen people post things looking for help or support about things that have happened to them or if they are looking for a new chair. that includes myself. I posted about needing another surgery which is pretty serious. Even Andrea posted about firemen putting her to bed when nursing wouldn't come out to do it. There were about 3 responses to mine, a few to Andrea's and tons talking and debating over the poor woman that passed away. I think if someone is gonna get angry about something, it should be about the nurses that wouldn't come out to help them. It's a helth issue for someone to stay in their chair all night. What if their catheter bags get full then back up into their kidneys, not to mention pressure sores from sitting in the chair all night especially if they are wet. Who knows what else they may have needed if no one came out to help them. If we want to get so emotionally charged over something then it should be that. They are still living and couldn't nursing to come out. That poor woman is gone and anything we say isn't going to change anything. Maybe 911 should ask disabled people what the circumstances are to why they need help then decide if they will come out. If it's something they caused, then we'll make you wait or not come at all because you deserve it. We'll just save help for those that didn't cause it because they are the one's who deserve it. Is that right? The woman should be resting in peace. I know she's in a better place but she didn't deserve to go that way. Aren't we here to support eachother? Stacy - Original Message From: RONALD L PRACHT [EMAIL PROTECTED] To: quad-list@eskimo.com Sent: Saturday, February 23, 2008 12:43:56 AM Subject: [QUAD-L] free list We all have delete keys.if people need to vent I think its fine. Whats the point of a list that you cant say whats on your mind. ron c7 _ Never miss a thing. HYPERLINK http://us.rd.yahoo.com/evt=51438/*http://www.yahoo.com/r/hsMake Yahoo your homepage. No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.9/1294 - Release Date: 2/22/2008 6:39 PM No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.9/1294 - Release Date: 2/22/2008 6:39 PM
RE: [QUAD-L] free list
Thank you Ron Just because someone is interested in a particular subject doesn’t mean that we have the right to tell them what to do. Those of us that use speech recognition have it even easier JDon’t even have to move a muscle to delete! Oh sorry, our mouth has a muscle, and so does our tongue, thank goodness that our tongue muscle never tires. (learned that when I was fitted for a tongue touch keypad back in the nineties) It might take a minute or two extra to delete the files we don’t want to read, and it is certainly made much easier if we maintain the subject matter as we reply to things. IE starting a new subject line when we switch subjects. I know I am guilty of that-but if we are not interested in a subject just hit delete. Have a great day tomorrow Joan C4 1990 From: RONALD L PRACHT [mailto:[EMAIL PROTECTED] Sent: Friday, February 22, 2008 9:44 PM To: quad-list@eskimo.com Subject: [QUAD-L] free list We all have delete keys.if people need to vent I think its fine. Whats the point of a list that you cant say whats on your mind. ron c7 No virus found in this incoming message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.9/1291 - Release Date: 2/21/2008 11:05 AM No virus found in this outgoing message. Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.20.9/1291 - Release Date: 2/21/2008 11:05 AM
