Re: [QUAD-L] I'm in a dilemma...Need help.

[SCIQuad96]

 
Thanks Dave for the info and that goes to all who responded. I'm  looking 
into everyone's links.
 
Keith/C4-5/NewJersey
 
 
Dave writes:

Hi Keith,
 
Check out this Web Site.  Most  of the Waiver Programs have respite care. Get 
signed-up and get the help you  deserve.
 
_http://www.pascenter.org/state_based_stats/medicaid_waivers_info.php?state=ne
wjersey_ 
(http://www.pascenter.org/state_based_stats/medicaid_waivers_info.php?state=newjersey)
 


I hope this helps.   Stay  Strong.
 
With Love,

CtrlAltDel aka  Dave
C4/5 Complete - 31 Years Post
Texas, USA 



 



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Re: [QUAD-L] I'm in a dilemma...Need help.

[Quadius]

It seems as if everybody has covered almost every thing I can think of, but
I would definitely not limit your search to male assistants.  I am 6 foot 3
and currently weigh about 185 pounds, but I have in the past gone to 200.  I
have had female caregivers from 90 pounds on a do my care with no problem.
I use a Hoyer lift and just recently got an electronic one, because the
transfer from the Hoyer to the chair seems to be the most complicated for
new caregivers to learn.

I will definitely be checking out some of these lifts myself, but I would
exhaust everything before you have to go into a home.

Also, respite is a must.  I haven't given my brother and sister-in-law, my
caregivers any substantial time off in three years and I am going in for
respite when I get my colonoscopy done in late July.  I will end up spending
two weeks to give them a break and even though I hate it in there, it is
invaluable for PCAs to get time off for recuperation every now and then.

Good luck.  Your situation breaks my heart and there are just so many people
out there in similar circumstances I believe it is criminal.
Quadius

On 6/21/07, David K. Kelmer <[EMAIL PROTECTED]> wrote:


Hi Keith,

Check out this Web Site.  Most of the Waiver Programs have respite care.
Get signed-up and get the help you deserve.


http://www.pascenter.org/state_based_stats/medicaid_waivers_info.php?state=newjersey


I hope this helps.   Stay Strong.

With Love,

CtrlAltDel aka Dave
C4/5 Complete - 31 Years Post
Texas, USA

[EMAIL PROTECTED] wrote:

I live with my folks and my brothers (two) come by and help out every
morning of everyday. (Basics listed)  dressed and placed in chair. One gets
here before work and the other comes here from work.

At nights they switch off every other night to put me back in bed with
my/our Father.

My Mother does my personal care. Mondays & Fridays along with setting my
up for the night in bed everyday.

This has been going on for 11 years and they need a break. Actually, one
brother stopped and said no more last week.

Now, I do know this has went on too long already with them helping, but I
never changed it...now I must.

My aide that comes during the day cannot do what my brothers and Father do
because of her strength. So, I've looked into getting a male CHHA but out of
the only two agencies around me there is none. My only choice I see is an
Assisted Living Center and if I go here I don't want it to be here in New
Jersey.

May I ask you guys/gals for some suggestions? I'd love to head out to
Arizona, but I don't know how the state is towards the disabled. It seems
popular though.

Keith/C4-5/NewJersey

PS. Some may know me from years past, but to all including the new Hi.




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Re: [QUAD-L] I'm in a dilemma...Need help.

[David K. Kelmer]

Hi Keith,
   
  Check out this Web Site.  Most of the Waiver Programs have respite care. Get 
signed-up and get the help you deserve.
   
  
http://www.pascenter.org/state_based_stats/medicaid_waivers_info.php?state=newjersey
  
 
  I hope this helps.   Stay Strong.
   
  With Love,
 
CtrlAltDel aka Dave
C4/5 Complete - 31 Years Post
  Texas, USA 

[EMAIL PROTECTED] wrote:

  I live with my folks and my brothers (two) come by and help out every 
morning of everyday. (Basics listed)  dressed and placed in chair. One gets 
here before work and the other comes here from work. 
   
  At nights they switch off every other night to put me back in bed with my/our 
Father.
   
  My Mother does my personal care. Mondays & Fridays along with setting my up 
for the night in bed everyday.
   
  This has been going on for 11 years and they need a break. Actually, one 
brother stopped and said no more last week.
   
  Now, I do know this has went on too long already with them helping, but I 
never changed it...now I must. 
   
  My aide that comes during the day cannot do what my brothers and Father do 
because of her strength. So, I've looked into getting a male CHHA but out of 
the only two agencies around me there is none. My only choice I see is an 
Assisted Living Center and if I go here I don't want it to be here in New 
Jersey. 
   
  May I ask you guys/gals for some suggestions? I'd love to head out to 
Arizona, but I don't know how the state is towards the disabled. It seems 
popular though.
   
  Keith/C4-5/NewJersey
   
  PS. Some may know me from years past, but to all including the new Hi. 
   




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Re: [QUAD-L] I'm in a dilemma...Need help.

[Jkrocks]

  
Keith,
 
You did not go into a lot of detail but I'm only going to assume that you  
need help in the lifting department.  All you need to do is purchase an  
electric lift like a "Sure Hands" with a toileting sling.  I have this set  up 
and 
the most physical thing that my caregivers do is roll me from one side to  the 
next to put my pants on.  If they have trouble doing that, I use a  different 
sling under my arms once I am in my wheelchair to lift me up enough so  they 
can slide my pants up.  I have had girls that weighed around 100  pounds that 
can take care of me with no problem whatsoever.
 
Jim
 
 



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Re: [QUAD-L] I'm in a dilemma...Need help.

[Tim Syfert]

Here are the ILC's for N.J.:
   
  http://www.ilru.org/html/publications/directory/newJersey.html
   
  Tim
  

[EMAIL PROTECTED] wrote:
It is true that we don't know what your financial situation is. You might 
try calling your local independant living center. They can often help and give 
sugestions according to your ability to pay. You can buy a hoyer lift on e-bay 
and run an ad in a newspaper for what you can afford. You don't have to live 
alone to talk with them. Sometimes its called CIL (center for independant 
living). 
   
  good luck
  john


-Original Message-
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Tue, 19 Jun 2007 8:00 pm
Subject: Re: [QUAD-L] I'm in a dilemma...Need help.


lori writes:
  I am not on Medicaid and refuse to go on public assistance by committing 
financial suicide   
  
-
   
  Hi Lori,
   
  Sadly, I'm on the bottom. I only get a bit over 10k a year through Social 
Security. I'm on both Medicaid and Medicare, but here in NJ the state only 
covers for PCA/Personal Care Assistance. That limits me to hardly and ROM or 
exercises.
   
  I also must say, I'm sorry to hear about your situation and hope you'll be 
helped. It's just gut wrenching to hear about your sister.
   
  Keith/C4-5/NewJersey
  
   




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Re: [QUAD-L] I'm in a dilemma...Need help.

[Jim Lubin]

We just needed to transfer me in and out of bed to and from the 
chair, that's why we went with the voyager/easy track. It was cheaper 
than a ceiling mounted lift and setup in about 20 mins.


Portable Voyager Lift $1937
Easy Track Three Post System $1495

The local rep brought one to my house to try it and left it. We were 
going to pay for it (taking a home equitty loan) then my state case 
manager said the state might be able to. We were using it for almost 
a year before it was paid.


these might help with funding
http://www.njpanda.org/atacprogram.htm

http://www.nj.gov/labor/dvrs/vrsindex.html

At 04:47 PM 6/19/2007, [EMAIL PROTECTED] wrote:

Jim writes:
I agree with Dan, an overhead is the best to get.


I'm looking into the Guldmann lift 
http://www.guldmann.com/index.php?newlang=us 
, but until then I've put a big strain on my family.


Keith/C4-5/NewJersey





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Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

RE: [QUAD-L] I'm in a dilemma...Need help.

[RollinOn]

I have a sure hands lift ceiling lift and without it I would be in trouble,
it’s a must for my situation.

HYPERLINK
"http://www.surehands.com/#Equipment%20Demonstrations"http://www.surehands.c
om/#Equipment%20Demonstrations

You can get it paid for by many programs like voc-rehab or Medicaid.

 

 

 

Mark Jackson

   RollinOn

 

   _  

From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] 
Sent: Tuesday, June 19, 2007 4:44 PM
To: quad-list@eskimo.com
Subject: [QUAD-L] I'm in a dilemma...Need help.

 

I live with my folks and my brothers (two) come by and help out every
morning of everyday. (Basics listed)  dressed and placed in chair. One gets
here before work and the other comes here from work. 

 

At nights they switch off every other night to put me back in bed with
my/our Father.

 

My Mother does my personal care. Mondays & Fridays along with setting my up
for the night in bed everyday.

 

This has been going on for 11 years and they need a break. Actually, one
brother stopped and said no more last week.

 

Now, I do know this has went on too long already with them helping, but I
never changed it...now I must. 

 

My aide that comes during the day cannot do what my brothers and Father do
because of her strength. So, I've looked into getting a male CHHA but out of
the only two agencies around me there is none. My only choice I see is an
Assisted Living Center and if I go here I don't want it to be here in New
Jersey. 

 

May I ask you guys/gals for some suggestions? I'd love to head out to
Arizona, but I don't know how the state is towards the disabled. It seems
popular though.

 

Keith/C4-5/NewJersey

 

PS. Some may know me from years past, but to all including the new Hi. 

 





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Re: [QUAD-L] I'm in a dilemma...Need help.

[delimited4]

It is true that we don't know what your financial situation is. You might try 
calling your local independant living center. They can often help and give 
sugestions according to your ability to pay. You can buy a hoyer lift on e-bay 
and run an ad in a newspaper for what you can afford. You don't have to live 
alone to talk with them. Sometimes its called CIL (center for independant 
living). 



good luck

john


-Original Message-
From: [EMAIL PROTECTED]
To: quad-list@eskimo.com
Sent: Tue, 19 Jun 2007 8:00 pm
Subject: Re: [QUAD-L] I'm in a dilemma...Need help.




lori writes:

I am not on Medicaid and refuse to go on public assistance by committing 
financial suicide

 

-

 

Hi Lori,

 

Sadly, I'm on the bottom. I only get a bit over 10k a year through Social 
Security. I'm on both Medicaid and Medicare, but here in NJ the state only 
covers for PCA/Personal Care Assistance. That limits me to hardly and ROM or 
exercises.

 

I also must say, I'm sorry to hear about your situation and hope you'll be 
helped. It's just gut wrenching to hear about your sister.

 

Keith/C4-5/NewJersey



 




See what's free at AOL.com. 



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Re: [QUAD-L] I'm in a dilemma...Need help.

[Nichole Rohling]

my mom and dad put me in bed each night - both in their 60's. we couldn'tdo it 
w/out my hoyer. best of luck  and hope it will all work out for you.
nicki
  - Original Message - 
  From: [EMAIL PROTECTED] 
  To: quad-list@eskimo.com 
  Sent: Tuesday, June 19, 2007 4:44 PM
  Subject: [QUAD-L] I'm in a dilemma...Need help.


  I live with my folks and my brothers (two) come by and help out every morning 
of everyday. (Basics listed)  dressed and placed in chair. One gets here before 
work and the other comes here from work. 

  At nights they switch off every other night to put me back in bed with my/our 
Father.

  My Mother does my personal care. Mondays & Fridays along with setting my up 
for the night in bed everyday.

  This has been going on for 11 years and they need a break. Actually, one 
brother stopped and said no more last week.

  Now, I do know this has went on too long already with them helping, but I 
never changed it...now I must. 

  My aide that comes during the day cannot do what my brothers and Father do 
because of her strength. So, I've looked into getting a male CHHA but out of 
the only two agencies around me there is none. My only choice I see is an 
Assisted Living Center and if I go here I don't want it to be here in New 
Jersey. 

  May I ask you guys/gals for some suggestions? I'd love to head out to 
Arizona, but I don't know how the state is towards the disabled. It seems 
popular though.

  Keith/C4-5/NewJersey

  PS. Some may know me from years past, but to all including the new Hi. 






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Re: [QUAD-L] I'm in a dilemma...Need help.

[SCIQuad96]

lori writes:

I am not  on Medicaid and refuse to go on public assistance by committing 
financial  suicide
 
--
---
 
Hi Lori,
 
Sadly, I'm on the bottom. I only get a bit over 10k a year through Social  
Security. I'm on both Medicaid and Medicare, but here in NJ the state only  
covers for PCA/Personal Care Assistance. That limits me to hardly and ROM  or 
exercises.
 
I also must say, I'm sorry to hear about your situation and hope you'll be  
helped. It's just gut wrenching to hear about your sister.
 
Keith/C4-5/NewJersey

 



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Re: [QUAD-L] I'm in a dilemma...Need help.

[SCIQuad96]

Jim writes:

I agree  with Dan, an overhead is the best to get.
 
I'm looking into the Guldmann lift 
_http://www.guldmann.com/index.php?newlang=us_ 
(http://www.guldmann.com/index.php?newlang=us)  ,  but until then I've 
put a big strain on my family.
 
Keith/C4-5/NewJersey

 



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Re: [QUAD-L] I'm in a dilemma...Need help.

[Jim Lubin]

I agree with Dan, an overhead is the best to get. I have the Portable 
Voyager Lift with the Easy Track Three Post System. We use it to 
transfer between my chair and bed. Since the lift itself is light 
weight and portable you can put the tracks where you want them and 
just move the lift from room to room. My mom uses it by herself to 
transfer me. We could do the Hoyer lift with one person.


http://www.planetmobility.com/store/paitentlifts/bhm/

I was able to get the state (WA) to pay for mine. It took about 8 
months but they did finally pay for it.


At 03:42 PM 6/19/2007, Danny Hearn wrote:
You need to get an overhead bed lift..my grandkids or anyone can 
get me up or down with ease. Might check into your state vocation 
rehab to see if they can help with new lift. My lift came with a 
full sling but I paid $200 bucks out of pocket for a quick 2 piece 
strap set, and we get up or down very fast. Good 
luck.  Dan H.


[EMAIL PROTECTED] wrote:
I live with my folks and my brothers (two) come by and help out 
every morning of everyday. (Basics listed)  dressed and placed in 
chair. One gets here before work and the other comes here from work.


At nights they switch off every other night to put me back in bed 
with my/our Father.


My Mother does my personal care. Mondays & Fridays along with 
setting my up for the night in bed everyday.


This has been going on for 11 years and they need a break. Actually, 
one brother stopped and said no more last week.


Now, I do know this has went on too long already with them helping, 
but I never changed it...now I must.


My aide that comes during the day cannot do what my brothers and 
Father do because of her strength. So, I've looked into getting a 
male CHHA but out of the only two agencies around me there is none. 
My only choice I see is an Assisted Living Center and if I go here I 
don't want it to be here in New Jersey.


May I ask you guys/gals for some suggestions? I'd love to head out 
to Arizona, but I don't know how the state is towards the disabled. 
It seems popular though.


Keith/C4-5/NewJersey

PS. Some may know me from years past, but to all including the new Hi.





--
See what's free at AOL.com.




Jim Lubin
[EMAIL PROTECTED]
http://makoa.org/jim
disAbility Resources: http://www.makoa.org

Re: [QUAD-L] I'm in a dilemma...Need help.

[Danny Hearn]

You need to get an overhead bed lift..my grandkids or anyone can get me up 
or down with ease. Might check into your state vocation rehab to see if they 
can help with new lift. My lift came with a full sling but I paid $200 bucks 
out of pocket for a quick 2 piece strap set, and we get up or down very fast. 
Good luck.  Dan H.

[EMAIL PROTECTED] wrote:  I live with my folks and my brothers (two) come 
by and help out every morning of everyday. (Basics listed)  dressed and placed 
in chair. One gets here before work and the other comes here from work. 
   
  At nights they switch off every other night to put me back in bed with my/our 
Father.
   
  My Mother does my personal care. Mondays & Fridays along with setting my up 
for the night in bed everyday.
   
  This has been going on for 11 years and they need a break. Actually, one 
brother stopped and said no more last week.
   
  Now, I do know this has went on too long already with them helping, but I 
never changed it...now I must. 
   
  My aide that comes during the day cannot do what my brothers and Father do 
because of her strength. So, I've looked into getting a male CHHA but out of 
the only two agencies around me there is none. My only choice I see is an 
Assisted Living Center and if I go here I don't want it to be here in New 
Jersey. 
   
  May I ask you guys/gals for some suggestions? I'd love to head out to 
Arizona, but I don't know how the state is towards the disabled. It seems 
popular though.
   
  Keith/C4-5/NewJersey
   
  PS. Some may know me from years past, but to all including the new Hi. 
   




-
  See what's free at AOL.com. 

Re: [QUAD-L] I'm in a dilemma...Need help.

[SCIQuad96]

 
Keith,
 
If you can't find a male aide, have you thought about a lifting device like  
a hoyer lift to assist your aide with your transfer?  It might be a good  idea 
to keep one around anyways.
 
Michael-c5c6/37yrs

--

 
Hi Michael,
 
The hoyer lift is one thing I'm checking into, but another problem is the  
state of NJ is only allowing me 21 hours total a week. That's just three hours 
a 
 day for both morning and night. 
 
Keith/C4-5/NewJersey




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