Re: [CMLHope] Side effects

2012-03-12 Thread ANGELYN ESDERS
I don't know if it is a myth or not, but I was told many years ago to make sure I had a breakfast heavy in PROTEIN before taking my Gleevec. It sure seems to work for me! I might feel sick after a breakfast of toast and jam, but never after eggs or grilled cheese or ham on toast. Also, eating so

Re: [CMLHope] loss of effectiveness of gleevec and sprycel

2012-03-12 Thread robert goodrich
just out of curiosity what dosage are you on.my wife is going on 11 years with gleevec,but has always been on a low dosage.200 mg a day..thank-you rob From: skink1100 To: CMLHope Sent: Monday, March 12, 2012 1:54 PM Subject: [CMLHope] loss of e

Re: [CMLHope] Side effects

2012-03-12 Thread Myvety2k
Hi Sherri, I will be flying into Chicago to do my blood work and pick up my meds. at Northwestern Hosp. down town on May 2nd. My son and his wife will pick me up at Midway and take me their. My nausea come from no where, I can eat just about anything. Sat. I had a grilled cheese with my

Re: [CMLHope] Re: loss of effectiveness of gleevec and sprycel

2012-03-12 Thread Myvety2k
Hi Pat, He is a lucky one that dose not have CML. But if Grace and I fly out their next winter I will for sure let you know so that we can get togather. Greenie In a message dated 3/12/2012 3:30:58 P.M. Eastern Daylight Time, pfemail...@gmail.com writes: Hi Greenie - Cave Creek

Re: [CMLHope] Side effects

2012-03-12 Thread sherri swanson
Hey Greenie, I Have to agree that it depends on what I eat if I get nauseous or not with my Gleevec. I know I can not eat soup and take the Gleevec as that will cause me to throw up for sure. But, if I eat some bread with it I'm okay. For a while I could not eat pizza at all as I was so nauseous th

[CMLHope] Re: loss of effectiveness of gleevec and sprycel

2012-03-12 Thread skink1100
I see Dr. Abesada...Stuart, Florida...local oncologist dealing with blood disorders...but thinking of trying to see someone at MD Anderson On Mar 12, 2:40 pm, lrc lrc wrote: > Don't worry.  Same thing happened to me.  Dr Talpaz likes Sprycel better > because of less side affects.  I switch in Jun

RE: [CMLHope] Re: loss of effectiveness of gleevec and sprycel

2012-03-12 Thread Pat Elliott
Hi Greenie - Cave Creek is a wonderful town..home of the infamous Horny Toad restaurant..and some fantastic artists too. One of my favorite bead stores is there. I hope your friend is aware of the Phoenix CML Connection group - the next meeting is Saturday, March 24. Barb Stanley is the facilit

Re: [CMLHope] Re: loss of effectiveness of gleevec and sprycel

2012-03-12 Thread Myvety2k
Pat, thank you for this information, it's going to be very helpful. A good friend of mine lives in Cave Creek, AZ. Greenie Ft. Myers, FL. In a message dated 3/12/2012 2:08:23 P.M. Eastern Daylight Time, pfemail...@gmail.com writes: There are several reasons for a loss of response, your

Re: [CMLHope] loss of effectiveness of gleevec and sprycel

2012-03-12 Thread lrc lrc
Don't worry. Same thing happened to me. Dr Talpaz likes Sprycel better because of less side affects. I switch in June 2011 and I have no more cramps, diarrhea, up set stomach and many more. Who is your doctor? On Mar 12, 2012 1:54 PM, "skink1100" wrote: > I have had cml for nearly 10 years.

[CMLHope] Re: loss of effectiveness of gleevec and sprycel

2012-03-12 Thread Pat
There are several reasons for a loss of response, your physician will need to order testing to determine if there is a gene mutation. In the meantime, education on current CML options can help ease your mind. This is also a topic we all need to think about and a key reason why the National CML Soci

[CMLHope] loss of effectiveness of gleevec and sprycel

2012-03-12 Thread skink1100
I have had cml for nearly 10 years. For several years I was at the not detectable level in my pcr tests. Last year the gleevec seemed to no longer be as effective...and my doctor switched me to sprycel...about 4 months ago...my results continue to decline, although my blood looks ok. Has anyone

Re: [CMLHope] Side effects

2012-03-12 Thread Myvety2k
Thank everyone for you feed back. dg In a message dated 3/12/2012 8:02:37 A.M. Eastern Daylight Time, icandoall...@aol.com writes: Hi I found that eating a big breakfast with my Gleevec kept my nausea down. Never eat it with spicy foods etc. Keep the meal you take you Gleevec with la

Re: [CMLHope] Re: Side effects

2012-03-12 Thread Myvety2k
Thanks Suzieq, My appointment is on the 20th of this month. I do agree with the side effects, they do come and go. I started Gleevec February 5th of 2000. I'll let you know what happens after my appointment. I don't know what happened to winter up in Northwest Indiana but it looks like t

[CMLHope] Re: Side effects

2012-03-12 Thread Suzieq
Greenine: Since it's the 12th, you've probably seeing your Onc. today, but I wanted to "chime" in here and just say being on Gleevec now 8 yrs., I still have bouts of nausea and will even throw up occasionally if I do not have enough in my stomach. And, sometimes, I still throw up if the Gleevec

Re: [CMLHope] Re: My Latest Results

2012-03-12 Thread ICANDOALLTTC
Yahooo Richard, Jeanie<3 In a message dated 3/4/2012 5:06:45 P.M. Eastern Daylight Time, sheila.a.wat...@gmail.com writes: Richard: All sounds good...here's praying it stays this way. God Bless You, Suzieq -- [CMLHope] A support group of http://cmlhope.com

Re: [CMLHope] Side effects

2012-03-12 Thread ICANDOALLTTC
Hi I found that eating a big breakfast with my Gleevec kept my nausea down. Never eat it with spicy foods etc. Keep the meal you take you Gleevec with large and mild. Good luck, Jeanie<3 In a message dated 3/12/2012 7:50:31 A.M. Eastern Daylight Time, myvet...@aol.com writes: Hi Marci

Re: [CMLHope] Side effects

2012-03-12 Thread Myvety2k
Hi Marcie, We moved here for good last November. The answer to your question is yes. If the guy upstairs said's it's O.K. and I hoping he agrees. dg In a message dated 3/11/2012 10:36:11 P.M. Eastern Daylight Time, margoo...@aol.com writes: Hi Greenie: I suffer from nausea on Gleeve