thinking of you..praying for you...and everyone..
love, Beth
-Original Message-
From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Thu, Feb 19, 2015 9:38 am
Subject: Re: [CMLHope] Good news Jeanie
Glad you are back--I hope
:
thinking of you..praying for you...and everyone..
love, Beth
-Original Message-
From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Thu, Feb 19, 2015 9:38 am
Subject: Re: [CMLHope] Good news Jeanie
Glad you are back--I hope
: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Tue, Feb 17, 2015 5:25 pm
Subject: Re: [CMLHope] Good news Jeanie
Good to hear from you Beth. I know you must've worn out. One day at Moffitt
knocks me out. I've never had that many test in one day
-
From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Fri, Feb 13, 2015 8:18 am
Subject: Re: [CMLHope] Good news Jeanie
Hi Beth
I am praying for your good results. I spent all day at Moffitt yest so I know
how tiring it can be.
I found the chapel
-Original Message-
From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Fri, Feb 13, 2015 8:18 am
Subject: Re: [CMLHope] Good news Jeanie
Hi Beth
I am praying for your good results. I spent all day at Moffitt yest so I
know how tiring it can
the same...Beth
-Original Message-
From: 'Icandoallttc' via CMLHope cmlhope@googlegroups.com
To: cmlhope cmlhope@googlegroups.com
Sent: Fri, Feb 13, 2015 8:18 am
Subject: Re: [CMLHope] Good news Jeanie
Hi Beth
I am praying for your good results. I spent all day at Moffitt yest so I know
Hi Joyce
Did they take tissue during endoscopy and colonoscopy ?
He could be bleeding from that.
That's the problem. They just don't listen.
Keep talking to them.
Have you considered ponatinib?
Does he have heart problems?
So far so good for me.
This is my 19th day on ponatinib. He could
My hemoglobin went to under 8 and I had to have transfusions. I think if the
onc I had at the time would have taken me off meds my blood would have
recovered. I was on Tasigna at the time. I take iron and also try to eat iron
rich foods.
Prayers Blessings Jeanie 18's
On Feb 13, 2015,
Hi Marty.
The Moffitt changed the scale on blood counts. Normal is now 143-382. Mine
was H395. I believe it used to be between 1-4.
Here's what the out of range counts were:
Preliminary ANC 1.5 K/ul
RDW H 65.9
Platelets H395
Potassium H5.8
Glucose H114
Alk phosphatase H172
LDH L132
The
Thanks so much Joyce.
I use faith and meds to see me through.
I pray you stay well and happy.
Happy Valentines Day to all!!❤️❤️❤️
Prayers Blessings Jeanie 18's
On Feb 13, 2015, at 12:48 AM, Joyce Mesnarich joy...@htc.net wrote:
Jeanie,
You have made my day!! So glad to see your
, Feb 12, 2015 4:36 pm
Subject: Re: [CMLHope] Good news Jeanie
Hi Jeanie,
What makes you say, (to almost normal)? Gee I have some news for you. They
are normal. You also state that it is a miracle, well if you don't already
know it you are a miracle!
You must understand that things
Sorry to hear about you having to have the transfusions. You are
describing the problem that I had with Gleevec. I would get the
transfusion, recover until my hemoglobin was between 10 and 11, restart
Gleevec and the cycle would repeat itself. Read the directions on taking
iron. If you
Two years ago my husband had to have 2 pints of blood because of low
hemoglobin. He seems to be heading that way again. They have found blood in
his stool, but could not find any cause for it, following an endoscope of the
esophagus and a colonoscopy. He also takes warfarin (blood thinner)
Platelets down to under 400 and WBC were 7: that is a miracle.
From over a million to almost normal. The meds kicked in. Now worried they
might go to low. Hehe. Hemoglobin went down to 12.8 after holding at 13. Need
to ear some iron foods.
Thanks for prayers.
Prayers Blessings Jeanie
HEY, HEY, that's some good news for a change.
greenie
In a message dated 2/12/2015 3:37:42 P.M. Eastern Standard Time,
cmlhope@googlegroups.com writes:
Platelets down to under 400 and WBC were 7: that is a miracle.
From over a million to almost normal. The meds kicked in. Now
Jeanie,
You have made my day!! So glad to see your numbers. Does this lower
hemoglobin seem to be a fact of life for CMLers? My husband's hemoglobin also
is low and he is told to take iron pills (Yuck). Keep on Keepin' on.
Joyce in IL
On Feb 12, 2015, at 2:32 PM, 'Icandoallttc' via
Sent: Thu, Feb 12, 2015 4:36 pm
Subject: Re: [CMLHope] Good news Jeanie
Hi Jeanie,
What makes you say, (to almost normal)? Gee I have some news for you. They are
normal. You also state that it is a miracle, well if you don't already know it
you are a miracle!
You must understand
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