Hi Joyce I am 81 so got one year over your hubby.
> On Sep 23, 2019, at 1:03 AM, Joyce Mesnarich wrote:
>
> Norm,
> Wow! You have had quite the active life. Old age is not for the meek, I
> have found that out. I love your light-hearted view of your miseries. My
> husband is the
Never thought I’d end my life being sick and of being sick and tired. My hubby
and I bought almost 100 acres to entire on but God had a different plan
He died of heart problems when he was 62. Way too young.
I decided not to remarry but I have children that help me a lot
Found out I have
Hi Norm,
I am glad to see that you are doing well. I have been having trouble with
my heart too and the doctor thought it might be from the Gleevec, but I too
have a history of heart issues in my family, and told the doctor I want to
go with that. The god news, I have not had any heart attacks or
Hi norm
Just wanted you to know my hubby
Of 42 years passed away when he was 62 from heart disease due to diabetes. He
had quadrupleBypass surgery when he was about 52 and never had CML so
Go figure. He lived About 10 years after surgery. Give those hands and feet
daily massages and
Hi Norma
So glad to hear from you and all. You and I are about the
Same. I was dx 2004
And put on Gleevec. Too many side
Effects to mention. I am 81.
Got the mutations and am on
Ponatinib put me in remission in 4
3 months. Hang in there.
Talk later.
Love you so very much
Jeanie
My Motto:
Norm,
Wow! You have had quite the active life. Old age is not for the meek, I have
found that out. I love your light-hearted view of your miseries. My husband
is the CML patient. He has had it for 11 years. Tried Gleevec but was
allergic to it. Then on Sprycel for about 5 years. It
I am still here and hanging in.
No longer on Tasigna and now on Sprycel.
The Monday after Thanksgiving I had a quadruple bypass and my doctor said that
the Tasigna could be a contributing factor in my heart issues. I have a history
of heart disease in my family so I take that with a grain of
I drink I can daily because I like it. I wish I had known it reduced platelets
when mine were so high. Hehe
My Motto:
Faith and Pills
With Love
18's
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/2015
Doctor Balducci Moffitt
Marty - thanks for the link to the tonic water study. Yes, it helps my
cramping a lot but, unlike the subject of this study, I don't 'celebrate'
with over a quart of tonic water for 2 consecutive days. They also fail to
mentioned what he mixed with it in his celebration. :)
Used in moderation
Please add me to the list. Janet Robertson, Tavares, FL Gleevec 2003 – present.
Sent from Mail for Windows 10
From: cmlhope@googlegroups.com
Sent: Wednesday, October 19, 2016 6:11 AM
To: Digest recipients
Subject: [CMLHope] Digest for cmlhope@googlegroups.com - 7 updates in 2 topics
Richard:
Awesome news! Please make sure that you're monitored every three months. I've
been on 250 mg since 2008...monitored PCR and PK testing every three months by
Dr. Druker. I'm visiting with him in July. I think he will further reduce me
to 200mg since I'm still have eye bleeds, eye
Hi everyone...
My dr took me off Gleevec a year ago am on Sprycel now and am doing well.I have
two bottles of Gleevec unopened...any suggestions what to do with theleftover
Gleevec BOOGIE WOOGIE
On Friday, February 27, 2015 2:15 AM, cmlhope@googlegroups.com
Also check this list, save it, it may become helpfull:
http://www.cmleukemia.com/sites--english-and-other-languages.html
Maria
On Sun, Feb 22, 2015 at 8:32 AM, Maria Cashion mariacash...@gmail.com
wrote:
Please check out this other link when you have a chance.
Please check out this other link when you have a chance.
http://cml-iq.com/grapefruit-effect-need-know/
Love you all!
Maria
M
On Sun, Feb 22, 2015 at 8:28 AM, Maria Cashion mariacash...@gmail.com
wrote:
This is the link to the National CML Society directly to drug and food
This is the link to the National CML Society directly to drug and food
interactions:
http://www.nationalcmlsociety.org/living-cml/drug-food-interactions
LOVE YOU ALL!
Maria
On Sun, Feb 22, 2015 at 6:23 AM, cmlhope@googlegroups.com wrote:
cmlhope@googlegroups.com
Thank you Maria. I quit grapefruit juice when I first went on gleevec
Many years ago. I'm a Florida
Cracker and was reared on them.
I sure do miss them. The sickest
I got on gleevec was eating chili
Which I loved. I learned to take
My pills with mild foods such as
We have in breakfast.
Good
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