Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-08 Thread bkbarney via CMLHope
ards...but that's about it...painless. worth a look Jeannie- it also can help to rule in or out other possible causes of pain. Beth -Original Message- From: Joyce Mesnarich To: cmlhope Sent: Wed, Sep 7, 2016 6:09 pm Subject: Re: [CMLHope] Haven't gotten any e-mail notifi

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-08 Thread 'Jeanie' via CMLHope
Hi Joyce and so good to hear from you. Glad your hubby is good. I can't quit treatment either because my platelets and wbc go sky high. I am in Ponatinib. Been in MMR for a while now. As you know from my experience you never know when the leukies show their vicious selves. PRCP is much like

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-07 Thread Joyce Mesnarich
Jeanie, Any restricted diet is a challenge; but if you are motivated it is very possible. And I know you will be motivated. I think this may, in fact, be the cause of your pain in the side. Seems almost unthinkable that it took doctors this long to find your pancreas problem. My husband, Way

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-07 Thread 'Jeanie' via CMLHope
pe > To: cmlhope > Sent: Tue, Sep 6, 2016 12:48 pm > Subject: Re: [CMLHope] Haven't gotten any e-mail notifications > > Thanks Joyce, > Yes a low fat diet is recommended for pancreatic problems. About 7 months > into Ponatinib treatment the pain in my side became bad. One o

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-07 Thread 'Jeanie' via CMLHope
Sent from my Sprint phone > > -- Original message-- > From: 'Jeanie' via CMLHope > Date: Tue, Sep 6, 2016 8:48 AM > To: cmlhope@googlegroups.com; > Subject:Re: [CMLHope] Haven't gotten any e-mail notifications > > Thanks Joyce,Yes a low fat diet is re

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-06 Thread bkbarney via CMLHope
thought of18's Beth -Original Message- From: 'Jeanie' via CMLHope To: cmlhope Sent: Tue, Sep 6, 2016 12:48 pm Subject: Re: [CMLHope] Haven't gotten any e-mail notifications Thanks Joyce, Yes a low fat diet is recommended for pancreatic problems. About 7 months into

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-06 Thread 'rszim0...@aol.com' via CMLHope
phone -- Original message--From: 'Jeanie' via CMLHopeDate: Tue, Sep 6, 2016 8:48 AMTo: cmlhope@googlegroups.com;Subject:Re: [CMLHope] Haven't gotten any e-mail notifications Thanks Joyce,Yes a low fat diet is recommended for pancreatic problems. About 7 months into Ponatinib t

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-06 Thread 'Jeanie' via CMLHope
Thanks Joyce, Yes a low fat diet is recommended for pancreatic problems. About 7 months into Ponatinib treatment the pain in my side became bad. One of the side effects is pancreatitis. They say it is caused by drinking and smoking and I don't do either so it has to be the tki. They say yo

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-06 Thread Joyce Mesnarich
anZ. >> Ps. Any word from Marty? >> >> Sent from my Sprint phone >> >> ------ Original message-- >> From: 'LadyRx' via CMLHope >> Date: Mon, Sep 5, 2016 1:06 PM >> To: cmlhope@googlegroups.com <mailto:cmlhope@googlegroups.com>; >&g

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-06 Thread Joyce Mesnarich
Jeanie, So sorry to hear of your pancreas problem. I guess we learn something new every day. I never knew the pancreas had anything to do with fat. I thought it handled sugar. Whatever, we have to do what the doctors tell us. As time goes on, I fear that they will find out that most of the

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-06 Thread 'rszim0...@aol.com' via CMLHope
lhope@googlegroups.com;Subject:Re: [CMLHope] Haven't gotten any e-mail notifications All is well here in humid Illinois. I just got another dog so we are trying to learn each other. He is 8 years old and from a shelter. But he's a good boy.  Hope everyone is doing well and enjoying the en

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-06 Thread 'Jeanie' via CMLHope
Me either. Think everyone is on vacation. I had my cat scan. Some bad news. My pancreas has atrophied. Got to cut down on fat. I wonder if that is what is causing my pain. I know Ponatinib causes pancreatitis. Dr never says anything about it. Everything else was the same except for a li

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-05 Thread sherri swanson
ts either! > > 18's, > > SusanZ. > > Ps. Any word from Marty? > > > Sent from my Sprint phone > > > -- Original message------ > > *From: *'LadyRx' via CMLHope > > *Date: *Mon, Sep 5, 2016 1:06 PM > > *To: *cmlhope@googlegroups.com; > > *S

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-05 Thread 'Marcie Goodman' via CMLHope
t; I'm here but on vacay til the 18th. Havent seen any posts either! > 18's, > SusanZ. > Ps. Any word from Marty? > > Sent from my Sprint phone > > -- Original message-- > From: 'LadyRx' via CMLHope > Date: Mon, Sep 5, 2016 1:06 P

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-05 Thread 'rszim0...@aol.com' via CMLHope
I'm here but on vacay til the 18th. Havent seen any posts either! 18's,  SusanZ. Ps. Any word from Marty? Sent from my Sprint phone -- Original message--From: 'LadyRx' via CMLHope Date: Mon, Sep 5, 2016 1:06 PMTo: cmlhope@googlegroups.com;Subject:[CMLHope

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-05 Thread Richard H
I'm just checking in also. Have you heard or received any news on Marty? Richard H. On Monday, September 5, 2016 at 6:48:08 PM UTC-5, greenie wrote: > > I'm doing find thanks for checking. > > greenie > > In a message dated 9/5/2016 7:06:24 P.M. Eastern Daylight Time, > cml...@googlegroups.

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-05 Thread Joyce Mesnarich
I am doing fine. My hubby who is the CML patient is doing well. Also noticed nothing in my email from the group. How are you Jeanie, Beth and, oh my goodness, I am so concerned about Marty. Our numbers seem to have dwindled. I just remembered I must call Dr Talpaz office to get the results of

Re: [CMLHope] Haven't gotten any e-mail notifications

2016-09-05 Thread Myvety2k via CMLHope
I'm doing find thanks for checking. greenie In a message dated 9/5/2016 7:06:24 P.M. Eastern Daylight Time, cmlhope@googlegroups.com writes: I haven't received any notifications in my e-mail for the past 3 weeks or so. Just checking to see if the group is still active. If so, please lea

[CMLHope] Haven't gotten any e-mail notifications

2016-09-05 Thread 'LadyRx' via CMLHope
I haven't received any notifications in my e-mail for the past 3 weeks or so. Just checking to see if the group is still active. If so, please leave a comment. Thank you! -- -- [CMLHope] A support group of http://cmlhope.com - You received this