Re: [CMLHope] Blood work Moffitt perfect

['Jeanie' via CMLHope]

Thanks Beth
That’s what I think too. I guess because I’m in remission they don’t think I 
need a doctor but a good doctor one that you trust can help you so much. Just 
going with it now. Hope you are better. 
Love you so very much 

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Sep 25, 2018, at 12:58 PM, Marty Gartenberg  wrote:
> 
> Thanks beth 18s
> 
>> On Tue, Sep 25, 2018, 10:22 AM bkbarney via CMLHope 
>>  wrote:
>> Marty,, so sorry to hear about your broken leg!! Oh my gosh! May you heal 
>> fast and well.  Much love and 18's Beth
>> And Jeannie- you have the right to see a doctor- just ask...sometimes we 
>> have to be very forth right about our needs. The system is very over 
>> crowded..those more acute often rise to the top of the lline. While this is 
>> sometimes appropriate, in many cases, I think we still deserve the right to 
>> have time with our doctors and get the support, guidance and reassurance we 
>> need.
>> 
>> 18's to all,
>> 
>> Beth
>> 
>> 
>> -Original Message-
>> From: Marty Gartenberg 
>> To: cmlhope 
>> Sent: Tue, Sep 25, 2018 3:43 am
>> Subject: Re: [CMLHope] Blood work Moffitt perfect
>> 
>> Jeanie you see you see you see what do i keep telling you change geers trust 
>> yourself now something else broke my leg had  surgery in rehab talk later 
>> Marty 18s
>> 
>> On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope 
>>  wrote:
>> 
>> Hi all 
>> My blood work at Moffitt today came back perfect!
>> Praise the Lord!!
>> God is so good to me. 
>> Love you so very much 
>> ❤️😄❤️🌺😀
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> 🐠free
>> 18’s to Marty
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> Taking 0.05mg 50 mcg levothyroxine
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
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Re: [CMLHope] Blood work Moffitt perfect

['Jeanie' via CMLHope]

Thanks and I second that. ❤️❤️❤️❤️

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Sep 25, 2018, at 12:20 PM, rszim0702 via CMLHope 
>  wrote:
> 
> Marty,
> That ole mean slewfoot keeps attacking you with broken leg, etc. Try to do 
> what you encourage all of uskeep smilin' and countin' your blessings! So 
> sorry that endurance comes into play again.
> 
> All youze guys out therekeep smilin' and doin' what you can do!
> 
> 18's and big hugs,
> Sz
> 
> On Sep 25, 2018 4:42 AM, Marty Gartenberg  wrote:
> Jeanie you see you see you see what do i keep telling you change geers trust 
> yourself now something else broke my leg had  surgery in rehab talk later 
> Marty 18s
> 
> On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope  
> wrote:
> 
> Hi all 
> My blood work at Moffitt today came back perfect!
> Praise the Lord!!
> God is so good to me. 
> Love you so very much 
> ❤️😄❤️🌺😀
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> 🐠free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> -- 
> -- 
> [CMLHope]
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> -
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Re: [CMLHope] Blood work Moffitt perfect

['Jeanie' via CMLHope]

Oh Marty so sorry
Get better quick.  
You are my upper. 
Love you so very much 
18s

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Sep 25, 2018, at 4:42 AM, Marty Gartenberg  wrote:
> 
> Jeanie you see you see you see what do i keep telling you change geers trust 
> yourself now something else broke my leg had  surgery in rehab talk later 
> Marty 18s
> 
>> On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope 
>>  wrote:
>> 
>> Hi all 
>> My blood work at Moffitt today came back perfect!
>> Praise the Lord!!
>> God is so good to me. 
>> Love you so very much 
>> ❤️😄❤️🌺😀
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> 🐠free
>> 18’s to Marty
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> Taking 0.05mg 50 mcg levothyroxine
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
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>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
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Re: [CMLHope] Blood work Moffitt perfect

[Marty Gartenberg]

Thanks beth 18s

On Tue, Sep 25, 2018, 10:22 AM bkbarney via CMLHope <
cmlhope@googlegroups.com> wrote:

> Marty,, so sorry to hear about your broken leg!! Oh my gosh! May you heal
> fast and well.  Much love and 18's Beth
> And Jeannie- you have the right to see a doctor- just ask...sometimes we
> have to be very forth right about our needs. The system is very over
> crowded..those more acute often rise to the top of the lline. While this is
> sometimes appropriate, in many cases, I think we still deserve the right to
> have time with our doctors and get the support, guidance and reassurance we
> need.
>
> 18's to all,
>
> Beth
>
>
> -Original Message-
> From: Marty Gartenberg 
> To: cmlhope 
> Sent: Tue, Sep 25, 2018 3:43 am
> Subject: Re: [CMLHope] Blood work Moffitt perfect
>
> Jeanie you see you see you see what do i keep telling you change geers
> trust yourself now something else broke my leg had  surgery in rehab talk
> later Marty 18s
>
> On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope <
> cmlhope@googlegroups.com> wrote:
>
>
> Hi all
> My blood work at Moffitt today came back perfect!
> Praise the Lord!!
> God is so good to me.
> Love you so very much
> ❤️😄❤️🌺😀
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> 🐠free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
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Re: [CMLHope] Blood work Moffitt perfect

[rszim0702 via CMLHope]

Marty,That ole mean slewfoot keeps attacking you with broken leg, etc. Try to do what you encourage all of uskeep smilin' and countin' your blessings! So sorry that endurance comes into play again.All youze guys out therekeep smilin' and doin' what you can do!18's and big hugs,SzOn Sep 25, 2018 4:42 AM, Marty Gartenberg  wrote:Jeanie you see you see you see what do i keep telling you change geers trust yourself now something else broke my leg had  surgery in rehab talk later Marty 18sOn Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope  wrote:Hi all My blood work at Moffitt today came back perfect!Praise the Lord!!God is so good to me. Love you so very much ❤️😄❤️🌺😀My Motto:Faith and PillsWith LoveJeanie🐠free18’s to MartyDx 1/2004 CML LeukemiaStarted Gleevec 2/2004Started Tasigna 9/2009Started Sprycel 11/2009Started Ponatinib 1/ 2015 15 mgNew Doctor--Dr Martine ExtermannMoffitt Cancer  center sept 2017Dr Balducci retired Dr Gedia PCD0 CBL. ABLTaking 0.05mg 50 mcg levothyroxineJuly 2018 dx with thyroid disease tsh 13T4-normal t3-normal



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Re: [CMLHope] Blood work Moffitt perfect

[bkbarney via CMLHope]

Marty,, so sorry to hear about your broken leg!! Oh my gosh! May you heal fast 
and well.  Much love and 18's Beth
And Jeannie- you have the right to see a doctor- just ask...sometimes we have 
to be very forth right about our needs. The system is very over crowded..those 
more acute often rise to the top of the lline. While this is sometimes 
appropriate, in many cases, I think we still deserve the right to have time 
with our doctors and get the support, guidance and reassurance we need.


18's to all,


Beth



-Original Message-
From: Marty Gartenberg 
To: cmlhope 
Sent: Tue, Sep 25, 2018 3:43 am
Subject: Re: [CMLHope] Blood work Moffitt perfect



Jeanie you see you see you see what do i keep telling you change geers trust 
yourself now something else broke my leg had  surgery in rehab talk later Marty 
18s


On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope  
wrote:



Hi all 
My blood work at Moffitt today came back perfect!
Praise the Lord!!
God is so good to me. 
Love you so very much 
❤️😄❤️🌺😀

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


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Re: [CMLHope] Blood work Moffitt perfect

[Marty Gartenberg]

Jeanie you see you see you see what do i keep telling you change geers
trust yourself now something else broke my leg had  surgery in rehab talk
later Marty 18s

On Tue, Sep 18, 2018, 1:36 PM 'Jeanie' via CMLHope 
wrote:

>
> Hi all
> My blood work at Moffitt today came back perfect!
> Praise the Lord!!
> God is so good to me.
> Love you so very much
> ❤️😄❤️🌺😀
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> 🐠free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
>
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
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> You received this message because you are subscribed to the Google Groups
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> To post to this group, send email to CMLHope@googlegroups.com
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Re: [CMLHope] Blood work Moffitt perfect

['Jeanie' via CMLHope]

Hi all
At Moffitt after Dr Balducci retired I have been turned over to a nurse. I was 
wondering how many of you have been turned over to a nurse and should I 
consider getting a dr.  
I have been with Moffitt for 7 years. I have always had a dr. It just seems 
strange not having one but I like Moffitt.  
Hope and pray all are good 
Marty did I miss your post on your cruise?  I have been on many cruises but 
never to Alaska. I didn’t think I would like the cold. How was it!
Thanks to all. 
❤️❤️

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Sep 20, 2018, at 9:58 AM, 'Jeanie' via CMLHope  
> wrote:
> 
> Hi Beth
> Just wanted to let you know that Sprycel quit working for me after 4 years.  
> Dr found out I had a mutation. Have them check to see if you do. 
> This is when they put me on Ponatinib.  I am doing good on it. 
> Been on it now for almost 4 years. 
> It’s a very dangerous drug if you have heart problems do you will have to see 
> Prayers
> Jeanie❤️
> 
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> 🐠free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> 
>> On Sep 18, 2018, at 2:06 PM, bkbarney via CMLHope  
>> wrote:
>> 
>> So happy to hear this wonderful news. Thanks for sharing Jeanie. 
>> 
>> Happy and Healthy New Year to all who observe the Jewish Holidays.
>> 
>> My update is that I continue to struggle, staying positive and trying to 
>> figure out what is going on with me. In the hospital for a few days a couple 
>> of weeks ago. Lots of tests..no answers...BCR last time was very different 
>> than it ever was before since on sprycel.  10x more bcrl abl cells but still 
>> a reasonably low ratio. So, I am praying that it will continue to work for 
>> me. The next blood test should tell us more. Will keep you all informed.  
>> Pray that it returns to my normal so I can focus on other related health 
>> issues. Happy fall to all...
>> 
>> 
>> Much love, 
>> 
>> Beth
>> 
>> 
>> -Original Message-
>> From: 'Jeanie' via CMLHope 
>> To: cmlhope 
>> Sent: Tue, Sep 18, 2018 12:36 pm
>> Subject: [CMLHope] Blood work Moffitt perfect
>> 
>> 
>> Hi all 
>> My blood work at Moffitt today came back perfect!
>> Praise the Lord!!
>> God is so good to me. 
>> Love you so very much 
>> ❤️😄❤️🌺😀
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> 🐠free
>> 18’s to Marty
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> Taking 0.05mg 50 mcg levothyroxine
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
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>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
>> -- 
>> -- 
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>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
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> 
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> ---

Re: [CMLHope] Blood work Moffitt perfect

['Jeanie' via CMLHope]

Hi Beth
Just wanted to let you know that Sprycel quit working for me after 4 years.  Dr 
found out I had a mutation. Have them check to see if you do. 
This is when they put me on Ponatinib.  I am doing good on it. 
Been on it now for almost 4 years. 
It’s a very dangerous drug if you have heart problems do you will have to see 
Prayers
Jeanie❤️

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Sep 18, 2018, at 2:06 PM, bkbarney via CMLHope  
> wrote:
> 
> So happy to hear this wonderful news. Thanks for sharing Jeanie. 
> 
> Happy and Healthy New Year to all who observe the Jewish Holidays.
> 
> My update is that I continue to struggle, staying positive and trying to 
> figure out what is going on with me. In the hospital for a few days a couple 
> of weeks ago. Lots of tests..no answers...BCR last time was very different 
> than it ever was before since on sprycel.  10x more bcrl abl cells but still 
> a reasonably low ratio. So, I am praying that it will continue to work for 
> me. The next blood test should tell us more. Will keep you all informed.  
> Pray that it returns to my normal so I can focus on other related health 
> issues. Happy fall to all...
> 
> 
> Much love, 
> 
> Beth
> 
> 
> -Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Tue, Sep 18, 2018 12:36 pm
> Subject: [CMLHope] Blood work Moffitt perfect
> 
> 
> Hi all 
> My blood work at Moffitt today came back perfect!
> Praise the Lord!!
> God is so good to me. 
> Love you so very much 
> ❤️😄❤️🌺😀
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> 🐠free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired 
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> -- 
> -- 
> [CMLHope]
> A support group of http://cmlhope.com
> -
>  
> You received this message because you are subscribed to the Google Groups 
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
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> cmlhope-unsubscr...@googlegroups.com
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> -- 
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> You received this message because you are subscribed to the Google Groups 
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Re: [CMLHope] Blood work Moffitt perfect

['Jeanie' via CMLHope]

Hi Beth
I know how this is.  All these test and no answers. I too was in the hospital 
last May with every test you could think of. No answers to my side pain at all 
and Moffitt won’t agree that it’s cancer related so they won’t treat it. My dr 
had to retire and they turned me over to Martrine Extraman.  I don’t even see 
her as she turned me over to a nurse.  I don’t feel protected with no dr to 
see. 
Well I only have to go every three months so as long as the blood is good I’m 
kk. 
The senior oncology program has been moved to a new Moffitt cancer building and 
it looks more like an expensive hotel than a cancer center. 
It seems they are trying to use less employees and more machines to take care 
of you.  
I will get my bcr abl  test back soon. Let you know how many cancers cells are 
lurking around ready to pounce. Hehe
Prayers for all 


My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Sep 20, 2018, at 4:13 AM, Marty Gartenberg  wrote:
> 
> 
>> On Wed, Sep 19, 2018, 10:12 PM rszim0702 via CMLHope 
>>  wrote:
>> Hooray Jeanie! I also learned this week that I have reached MMR again! Been 
>> about 4 yrs. since this has happened. Sooo happy!
>> 
>> Dear Beth,
>> 
>> Will intensify my prayers for you to get through this very serious state of 
>> affairs. Your positive attitude always does my heart good when I read your 
>> posts. I know those visits to hospital without any answers make it tough. 
>> Hopefully the cure is right around the corner.
>> 
>> To all the rest of my blood brothers and sisters: may you have the greatest 
>> fall ever and enjoy the colors and weather.
>> Love Beth's admonition...happy fall y'all!
>> 
>> 18's,
>> Susan z.
>> 
>> 
>> On Sep 18, 2018 2:06 PM, bkbarney via CMLHope  
>> wrote:
>> So happy to hear this wonderful news. Thanks for sharing Jeanie. 
>> 
>> Happy and Healthy New Year to all who observe the Jewish Holidays.
>> 
>> My update is that I continue to struggle, staying positive and trying to 
>> figure out what is going on with me. In the hospital for a few days a couple 
>> of weeks ago. Lots of tests..no answers...BCR last time was very different 
>> than it ever was before since on sprycel.  10x more bcrl abl cells but still 
>> a reasonably low ratio. So, I am praying that it will continue to work for 
>> me. The next blood test should tell us more. Will keep you all informed.  
>> Pray that it returns to my normal so I can focus on other related health 
>> issues. Happy fall to all...
>> 
>> 
>> Much love, 
>> 
>> Beth
>> 
>> 
>> -Original Message-
>> From: 'Jeanie' via CMLHope 
>> To: cmlhope 
>> Sent: Tue, Sep 18, 2018 12:36 pm
>> Subject: [CMLHope] Blood work Moffitt perfect
>> 
>> 
>> Hi all 
>> My blood work at Moffitt today came back perfect!
>> Praise the Lord!!
>> God is so good to me. 
>> Love you so very much 
>> ❤️😄❤️🌺😀
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> 🐠free
>> 18’s to Marty
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> Taking 0.05mg 50 mcg levothyroxine
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
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>> -- 
>> -- 
>> [CMLHope]
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>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
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Re: [CMLHope] Blood work Moffitt perfect

['Jeanie' via CMLHope]

Thanks so much.   Still hanging in there with faith love and pills.  
You and everyone will always be in my prayers. Keep looking up. 
Lov ya

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal

> On Sep 20, 2018, at 4:13 AM, Marty Gartenberg  wrote:
> 
> 
>> On Wed, Sep 19, 2018, 10:12 PM rszim0702 via CMLHope 
>>  wrote:
>> Hooray Jeanie! I also learned this week that I have reached MMR again! Been 
>> about 4 yrs. since this has happened. Sooo happy!
>> 
>> Dear Beth,
>> 
>> Will intensify my prayers for you to get through this very serious state of 
>> affairs. Your positive attitude always does my heart good when I read your 
>> posts. I know those visits to hospital without any answers make it tough. 
>> Hopefully the cure is right around the corner.
>> 
>> To all the rest of my blood brothers and sisters: may you have the greatest 
>> fall ever and enjoy the colors and weather.
>> Love Beth's admonition...happy fall y'all!
>> 
>> 18's,
>> Susan z.
>> 
>> 
>> On Sep 18, 2018 2:06 PM, bkbarney via CMLHope  
>> wrote:
>> So happy to hear this wonderful news. Thanks for sharing Jeanie. 
>> 
>> Happy and Healthy New Year to all who observe the Jewish Holidays.
>> 
>> My update is that I continue to struggle, staying positive and trying to 
>> figure out what is going on with me. In the hospital for a few days a couple 
>> of weeks ago. Lots of tests..no answers...BCR last time was very different 
>> than it ever was before since on sprycel.  10x more bcrl abl cells but still 
>> a reasonably low ratio. So, I am praying that it will continue to work for 
>> me. The next blood test should tell us more. Will keep you all informed.  
>> Pray that it returns to my normal so I can focus on other related health 
>> issues. Happy fall to all...
>> 
>> 
>> Much love, 
>> 
>> Beth
>> 
>> 
>> -Original Message-
>> From: 'Jeanie' via CMLHope 
>> To: cmlhope 
>> Sent: Tue, Sep 18, 2018 12:36 pm
>> Subject: [CMLHope] Blood work Moffitt perfect
>> 
>> 
>> Hi all 
>> My blood work at Moffitt today came back perfect!
>> Praise the Lord!!
>> God is so good to me. 
>> Love you so very much 
>> ❤️😄❤️🌺😀
>> My Motto:
>> Faith and Pills
>> With Love
>> Jeanie
>> 🐠free
>> 18’s to Marty
>> Dx 1/2004 CML Leukemia
>> Started Gleevec 2/2004
>> Started Tasigna 9/2009
>> Started Sprycel 11/2009
>> Started Ponatinib 1/ 2015 15 mg
>> New Doctor--Dr Martine Extermann
>> Moffitt Cancer  center sept 2017
>> Dr Balducci retired 
>> Dr Gedia PCD
>> 0 CBL. ABL
>> Taking 0.05mg 50 mcg levothyroxine
>> July 2018 dx with thyroid disease tsh 13
>> T4-normal t3-normal
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
>> To unsubscribe from this group, send email to 
>> cmlhope-unsubscr...@googlegroups.com
>> For more options, visit this group at http://groups.google.com/group/CMLHope
>> --- 
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
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>> email to cmlhope+unsubscr...@googlegroups.com.
>> For more options, visit https://groups.google.com/d/optout.
>> -- 
>> -- 
>> [CMLHope]
>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
>> "CMLHope" group.
>> To post to this group, send email to CMLHope@googlegroups.com
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>> 
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>> A support group of http://cmlhope.com
>> -
>>  
>> You received this message because you are subscribed to the Google Groups 
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Re: [CMLHope] Blood work Moffitt perfect

[Marty Gartenberg]

On Wed, Sep 19, 2018, 10:12 PM rszim0702 via CMLHope <
cmlhope@googlegroups.com> wrote:

> Hooray Jeanie! I also learned this week that I have reached MMR again!
> Been about 4 yrs. since this has happened. Sooo happy!
>
> Dear Beth,
>
> Will intensify my prayers for you to get through this very serious state
> of affairs. Your positive attitude always does my heart good when I read
> your posts. I know those visits to hospital without any answers make it
> tough. Hopefully the cure is right around the corner.
>
> To all the rest of my blood brothers and sisters: may you have the
> greatest fall ever and enjoy the colors and weather.
> Love Beth's admonition...happy fall y'all!
>
> 18's,
> Susan z.
>
>
> On Sep 18, 2018 2:06 PM, bkbarney via CMLHope 
> wrote:
>
> So happy to hear this wonderful news. Thanks for sharing Jeanie.
>
> Happy and Healthy New Year to all who observe the Jewish Holidays.
>
> My update is that I continue to struggle, staying positive and trying to
> figure out what is going on with me. In the hospital for a few days a
> couple of weeks ago. Lots of tests..no answers...BCR last time was very
> different than it ever was before since on sprycel.  10x more bcrl abl
> cells but still a reasonably low ratio. So, I am praying that it will
> continue to work for me. The next blood test should tell us more. Will keep
> you all informed.  Pray that it returns to my normal so I can focus on
> other related health issues. Happy fall to all...
>
>
> Much love,
>
> Beth
>
>
> -Original Message-
> From: 'Jeanie' via CMLHope 
> To: cmlhope 
> Sent: Tue, Sep 18, 2018 12:36 pm
> Subject: [CMLHope] Blood work Moffitt perfect
>
>
> Hi all
> My blood work at Moffitt today came back perfect!
> Praise the Lord!!
> God is so good to me.
> Love you so very much
> ❤️😄❤️🌺😀
> My Motto:
> Faith and Pills
> With Love
> Jeanie
> 🐠free
> 18’s to Marty
> Dx 1/2004 CML Leukemia
> Started Gleevec 2/2004
> Started Tasigna 9/2009
> Started Sprycel 11/2009
> Started Ponatinib 1/ 2015 15 mg
> New Doctor--Dr Martine Extermann
> Moffitt Cancer  center sept 2017
> Dr Balducci retired
> Dr Gedia PCD
> 0 CBL. ABL
> Taking 0.05mg 50 mcg levothyroxine
> July 2018 dx with thyroid disease tsh 13
> T4-normal t3-normal
> --
> --
> [CMLHope]
> A support group of http://cmlhope.com
> -
>
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
> To post to this group, send email to CMLHope@googlegroups.com
> To unsubscribe from this group, send email to CMLHope-
> unsubscr...@googlegroups.com
> For more options, visit this group at
> http://groups.google.com/group/CMLHope
> ---
> You received this message because you are subscribed to the Google Groups
> "CMLHope" group.
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> email to cmlhope+unsubscr...@googlegroups.com.
> For more options, visit https://groups.google.com/d/optout.
>
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> [CMLHope]
> A support group of http://cmlhope.com
> -
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Re: [CMLHope] Blood work Moffitt perfect

[rszim0702 via CMLHope]

Hooray Jeanie! I also learned this week that I have reached MMR again! Been about 4 yrs. since this has happened. Sooo happy!Dear Beth,Will intensify my prayers for you to get through this very serious state of affairs. Your positive attitude always does my heart good when I read your posts. I know those visits to hospital without any answers make it tough. Hopefully the cure is right around the corner.To all the rest of my blood brothers and sisters: may you have the greatest fall ever and enjoy the colors and weather.Love Beth's admonition...happy fall y'all!18's,Susan z.On Sep 18, 2018 2:06 PM, bkbarney via CMLHope  wrote:So happy to hear this wonderful news. Thanks for sharing Jeanie. 



Happy and Healthy New Year to all who observe the Jewish Holidays.




My update is that I continue to struggle, staying positive and trying to figure out what is going on with me. In the hospital for a few days a couple of weeks ago. Lots of tests..no answers...BCR last time was very different than it ever was before since on sprycel.  10x more bcrl abl cells but still a reasonably low ratio. So, I am praying that it will continue to work for me. The next blood test should tell us more. Will keep you all informed.  Pray that it returns to my normal so I can focus on other related health issues. Happy fall to all...







Much love, 




Beth



-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Tue, Sep 18, 2018 12:36 pm
Subject: [CMLHope] Blood work Moffitt perfect






Hi all 
My blood work at Moffitt today came back perfect!

Praise the Lord!!

God is so good to me. 

Love you so very much 

❤️😄❤️🌺😀


My Motto:
Faith and Pills

With Love

Jeanie

🐠free

18’s to Marty

Dx 1/2004 CML Leukemia

Started Gleevec 2/2004

Started Tasigna 9/2009

Started Sprycel 11/2009

Started Ponatinib 1/ 2015 15 mg

New Doctor--Dr Martine Extermann

Moffitt Cancer  center sept 2017

Dr Balducci retired 

Dr Gedia PCD

0 CBL. ABL

Taking 0.05mg 50 mcg levothyroxine

July 2018 dx with thyroid disease tsh 13

T4-normal t3-normal








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Re: [CMLHope] Blood work Moffitt perfect

[bkbarney via CMLHope]

So happy to hear this wonderful news. Thanks for sharing Jeanie. 


Happy and Healthy New Year to all who observe the Jewish Holidays.


My update is that I continue to struggle, staying positive and trying to figure 
out what is going on with me. In the hospital for a few days a couple of weeks 
ago. Lots of tests..no answers...BCR last time was very different than it ever 
was before since on sprycel.  10x more bcrl abl cells but still a reasonably 
low ratio. So, I am praying that it will continue to work for me. The next 
blood test should tell us more. Will keep you all informed.  Pray that it 
returns to my normal so I can focus on other related health issues. Happy fall 
to all...




Much love, 


Beth



-Original Message-
From: 'Jeanie' via CMLHope 
To: cmlhope 
Sent: Tue, Sep 18, 2018 12:36 pm
Subject: [CMLHope] Blood work Moffitt perfect



Hi all 
My blood work at Moffitt today came back perfect!
Praise the Lord!!
God is so good to me. 
Love you so very much 
❤️😄❤️🌺😀

My Motto:
Faith and Pills
With Love
Jeanie
🐠free
18’s to Marty
Dx 1/2004 CML Leukemia
Started Gleevec 2/2004
Started Tasigna 9/2009
Started Sprycel 11/2009
Started Ponatinib 1/ 2015 15 mg
New Doctor--Dr Martine Extermann
Moffitt Cancer  center sept 2017
Dr Balducci retired 
Dr Gedia PCD
0 CBL. ABL
Taking 0.05mg 50 mcg levothyroxine
July 2018 dx with thyroid disease tsh 13
T4-normal t3-normal


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