Hi everryone, used to be part of the group I am back with a question. I
have a bad pressure sore between my leg and my bum. I have been going to a
wound care center for a month and a half. Doctor said it looks like it may
be down to the bone and is sending me to see a surgeon about a muscle flap.
] Irrigating catheter
To: Debbie Hamilton debbiewyom...@yahoo.com
Cc: Danny Hearn ddh...@sbcglobal.net, Quad-list@eskimo.com
Date: Wednesday, April 27, 2011, 2:12 PM
It might help some, but I don't think it's going to alleviate all of your
problems. If you're having difficulty with a 22, you may
] Irrigating catheter
To: Debbie Hamilton debbiewyom...@yahoo.com
Cc: Danny Hearn ddh...@sbcglobal.net, Quad-list@eskimo.com
Date: Wednesday, April 27, 2011, 2:12 PM
It might help some, but I don't think it's going to alleviate all of your
problems. If you're having difficulty with a 22, you may
I have a suprapubic catheter. Typically, I don't have problems and I change it
about every month. Lately, my catheter has been getting blocked about every
two weeks or more often with sludge and my husband has to put a new one in. I
have irrigated it with normal saline. Is there a better
Geron labs is conducting a human embryonic stem cell trial this year. It is a
small trial 14 patients. The patients can only be two weeks out from their
injury. There was a lot of other criteria involved. They were looking to see
if it was safe and if any of those patients developed tumors.
I have a Guldmann lift. It's over my bed and really helps!
Debbie
C4 incomplete/April 2005
--- On Mon, 11/1/10, Billy Lang blan...@verizon.net wrote:
From: Billy Lang blan...@verizon.net
Subject: [QUAD-L] power lifts
To: quad-list@eskimo.com
Date: Monday, November 1, 2010, 9:48 AM
UNKNOWN
Wow! You all keep me so motivated! I will live for today, stay creative when
it comes to my care and avoid a nursing home for another 30 years! Take care
Debbie
C4 incomplete/April 2005
--- On Sun, 10/17/10, wheelch...@aol.com wheelch...@aol.com wrote:
From: wheelch...@aol.com
Congratulations Joan! I am 51 years old, and I'm also a C4. I am five years
post accident. They gave me 10 years give-or-take. The quad list sure has
made me think otherwise. A lot of people have been quads past 10 years. I had
always been in good shape, and still feel that I am. It's a
I would try to lay on your side by propping yourself up with pillows to keep
pressure off the area that has the sore. You can lay that way all night. I
used to get quite a few pressure sores, but haven't gotten any since I got my
air mattress. Good luck.
Debbie
C4 incomplete/April 2005
---
Yeah I feel pretty smart. I got 13 out of 16. 80%
Debbie
C4 incomplete/April 2005
--- On Thu, 8/5/10, Eric W Rudd c5sc...@gmail.com wrote:
From: Eric W Rudd c5sc...@gmail.com
Subject: Re: [QUAD-L] A fun test.
To: quad-list@eskimo.com
Date: Thursday, August 5, 2010, 10:22 AM
My doctor has done the same thing put me on 50,000 units of vitamin D per week
for 12 weeks. They then checked my level. I think it was up to 50 they were
happy and told me to just continue taking 1200 mg of calcium and 800 mg of
vitamin D per day. I am a 51 year-old woman, and my last bone
I think you're inventions sound helpful. I am particularly interested in the
adaptive landline. My husband and I are moving to a ranch where we don't get
cell service. So I will need something like that. I should have my husband
talk to you. He has made some really cool adaptive exercise
Last year I was having problems with pressure sores. It was recommended that
I get an alternating pressure mattress. I did some research and ended up
ordering one through a company called E.A.S.E. Seating Systems. The mattress
was coded PT1100. With shipping and handling it came to
Have been a quad almost 5 years. I'm 50 years old and living with my husband.
I don't qualify for Medicaid, so have had to pay caregivers out of my pocket.
We live in Wyoming and have no home health available so I advertise in the
newspaper. My husband is burnt. We have a guest house so
Tim, I'm sorry to hear that Medicare doesn't reimburse. I got an air mattress
last May and put in for reimbursement through Medicare and haven't heard
anything yet. I called and they said it was still being processed. I will let
you know if I get any money. I am suppose to be reimbursed 70%
I used to have foul smelling urine. It was awful you could smell me when you
walked by! My urologist put me on your Urex 1 g in the morning 1 g in the p.m.
I cut it down to 1 g per day. It really helps.
Debbie
C4 incomplete/April 2005
--- On Sat, 9/6/08, [EMAIL PROTECTED] [EMAIL PROTECTED]
I have low blood pressure too. I also take midodrine, they are 5 mg tabs I
usually take three per day. Another thing I was given to combat low blood
pressure was Sudafed I can take up to 30 mg four times a day. Ask your doctor
about Sudafed. I still wear Ted hose and a waistband. I feel so
My husband changes mine about every four to six weeks. If it's working fine I
like to go to the six weeks. I had a urologist tell me if it works go longer,
when that's changed is when you can introduce bacteria. I also take 1 g of
urex per day. I know this has helped me not get bladder
It happens every time I eat. I just take a midodrine about 15 minutes before I
eat a big meal and works great.
Debbie
C4 incomplete/April 2005
--- On Fri, 7/18/08, Quadius [EMAIL PROTECTED] wrote:
From: Quadius [EMAIL PROTECTED]
Subject: Re: [QUAD-L] dizzy spells
To: Dwain Powell [EMAIL
heal as fast as when I had that. Now, take good care of it and watch Ebay for
any deals!
I'm very happy for you!
john
- Original Message
From: Debbie Hamilton [EMAIL PROTECTED]
To: Quad-list@eskimo.com
Sent: Sunday, June 22, 2008 6:49:28 PM
Subject: Re: [QUAD-L] Alternating Air Pad
I agree that she'll need professional help because of the bipolar diagnoses.
Right now she just needs people to be there to sit by her, even if it's a
volunteer from the hospital. I remember how scary it was just being by
yourself and not being able to communicate. Lots of cards and mail was
/08, Quadius [EMAIL PROTECTED] wrote:
From: Quadius [EMAIL PROTECTED]
Subject: Re: [QUAD-L] Alternating Air Pad
To: [EMAIL PROTECTED]
Date: Friday, June 20, 2008, 3:36 PM
I'm just curious how much you're paying for this particular model.
Quadius
On 6/19/08, Debbie Hamilton [EMAIL PROTECTED] wrote
I just ordered one, it is the tube type though, but it helped heal my bed
sores. It's made by airodyne. Here's the link
www.wheelsunlimited.com
Debbie
C4 incomplete/April 2005
--- On Tue, 6/17/08, Lori Michaelson [EMAIL PROTECTED] wrote:
From: Lori Michaelson [EMAIL PROTECTED]
Subject: Re:
I am 49 years old. I didn't start bleeding until 14 months after my injury.
And then it came back. It was awful. My husband had to deal with the mess and
also my caregivers. My OB/GYN decided to put me on Depo-Provera. I get the
shot every three months, and I don't have any periods at
I live in Wyoming! I have lived in Montana and Wyoming all of my married life
of 25 years. My accident was three years ago and the winters have been a lot
harder now that I'm a quad. We have family here, and I still have a junior in
high school so I'm sure we wouldn't be moving soon. I get
Thanks everyone for all your suggestions! I started taking a multivitamin and
am trying to increase my protein and calories. I've lost a lot of weight since
my accident which hasn't helped my skin integrity. I know if I can get it to
granulate new tissue by keeping it covered I will be
I have a pressure sore on my tailbone. It's been there for four months and is
about the size of a pencil eraser. I put this ointment on it that was given to
me by my doctor every morning, then a bandage. I made a donut out of sheepskin
that is taped on over that. I try to stay off of it as
I was on 150 mg of alert that twice a day. My doctor put me on it for nerve
pain but also to help with my spasms. I just don't like taking a lot of
medicine and it made me to sleepy so I took myself off of it. I take
hydrocodone 7.5/500 mg twice a day for pain. It works great for me and
I agree that Craig hospital is your best bet even if you are not close to them.
Just give them a call and ask to talk to the urology department. They are
very nice and should answer your questions even if you've never been there. I
bet they suggest a superpubic, just to let your urethra
}Are you incomplete?
-
From: Debbie Hamilton [mailto:[EMAIL PROTECTED]
Sent: Monday, June 25, 2007 3:55 PM
To: Quad-list@eskimo.com
Subject: [QUAD-L] Regarding back from California
They told me I wouldn't be functional at C4/5
They told me I wouldn't be functional at C4/5 with the braces like you'll see
in the films. You have to be C7 or lower. But they told me of a gal that was
a C4/5 that used them to walk down the aisle with a walker on her wedding day.
Someone would have to put them on, help me into a standing
Hi everyone! My first trip was successful. My brother drove my van with me to
Southern California, the trip took two days. While I was there I was able to
go to dynamics . They specialize in making walking braces. They say clients
that are C7 and lower benefit the most from them. If I go
or a career, or a person doing part time
caregiving.
This site is maintained in accordance with the founder Marie Potts and the
Eric Potts Foundation a non profit 501 (c)(3).
With Love,
CtrlAltDel aka Dave Kelmer
C4/5 Complete - 30 Years Post
Texas, USA
Debbie Hamilton
about this SCIC (spinal cord injury
caregiver) online forum similar to this one except for caregivers.
Lori
C4/5 complete, 27 years post
---Original Message---
From: Debbie Hamilton
Date: 4/17/2007 5:11:59 PM
To: Quad-list@eskimo.com
Subject: [QUAD-L] Husbands
Thanks for the info about the national SCI Association. I will also look
forward to hearing from the couple in Chicago. Thanks Debbie
[EMAIL PROTECTED] wrote:In a message dated 4/17/2007 7:11:42 P.M.
Central Daylight Time, [EMAIL PROTECTED] writes:
As I have told you all, I am a C4,
The article on the three proteins enhancing the growth of the nerve axons is
interesting. I am also hopeful, I just wish more funding would go towards
research and clinical trials would take less time. The nervous system is the
most complicated system of the human body!
Debbie
C4/April 2005
As I have told you all, I am a C4, my accident was just two years ago. I am
48, I have a husband I've been married to for 24 years, I raised three boys one
is still at home. My husband is having a terrible time with my accident, he
has been doing a lot of my care. I have hired home health to
Hi Everyone! Thanks for your advice about traveling with a power chair, I'm
going to LA to be with my sister for a month and to check out a rehab center
there called dynamics. I also have a question about traveling in general. All
I have at home is myself, my husband and my 15 year old boy.
Never flown before and would like to take my power chair. To check it in
baggage do you have to remove the battery? I know it's recommended to put the
cushion in the overhead compartment. Any other recommendations to ensure that
my power chair gets where I'm going in one piece! Thanks
Hi my name is Debbie. I am almost 2 years postaccident. I was diagnosed as
a C4, my function level now is C6 on the right C5 on the left. The first
year postaccident was absolutely horrendous! During the second year, I've
worked on accepting the new me. I am 47 years old, married, and have
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