[QUAD-L] Desperate for Care
I desperately need to find a good live-in caregiver. The current one is ripping me off and doing absolutely nothing, including giving me food or any of my medication. IT'S HORRIBLE!!! Any recommendations?
[QUAD-L] Seeking Good Help
I desperately need to find a good live-in caregiver. The current one is ripping me off and doing absolutely nothing, including giving me food or any of my medication. IT'S HORRIBLE!!! Any recommendations? Thanks, Nick
[QUAD-L] looking for a good trailer for I will
I know there are some great treatments out there for wounds. Who knows of some? Thanks, Nick
Re: [QUAD-L] new to group with lots of questions
The pump is worth consideration, but only if the doctors feel that you are a good candidate for the procedure. Small amounts of medicine go directly to the lesion. Let us all know what you do. Best Wishes In a message dated 4/26/2010 6:58:47 P.M. Central Daylight Time, kabea...@optonline.net writes: Hi, I was walking with my children 2 yrs ago was struck by a teen who went off the road struck me as I was bent over. I am c4, 5 6 incomplete with feeling to the toes, just very altered sensation. I was in the hospital for almost 1 yr. I use a manual chair to amazement, I have bladder sensation bowels. Although I have my share of spasms (I take 10mg ditropn b.i.d), leakages at night and my bowels respond every 2-3 days with no added help. Pre-accident was normally every day. I have lots of tone/spasticity in L. leg am considering baclofen pump. I only take 20mg now of baclofen which does nothing. Any higher dose tires me liver function tests go abnormal. I am hooked on 25mcg fentanyl patches q48 hrs and still have pain. I refuse to add more meds. I do not ever sleep for more than an hr. every night. Waking in the a.m. is horrible - never used to be. I want to wean off fentanyl. Since I transfer to toilet with the transfer board (lots of work), I would love to find pants that help b/c I can't pull them up under me. This injury has caused our world to turn upside down some days it is so overwhelming. My kids keep me going God's healing. I feel like I'm the only mom in the world going thru this. At the time of the accident, I was 5wks from grad. college (RN). Since then, I graduated passed boards. Now what I LOVE nursing it's not easy to find it from a w/c. If I am assisted to stand, I can hold a walker for 5-10 mins a few steps - left leg hinders advancing it so dr. wants me to consider pump. I have great use of my dominant hand arm, left fingers are closed. Anyway, I could go on forever, so thanks for listening.
Re: [QUAD-L] Seeking Good Help
Move to another state. Obviously you are not getting it done where you are located. Best Wishes In a message dated 4/27/2010 3:02:35 A.M. Central Daylight Time, dangerwo...@san.rr.com writes: I desperately need to find a good live-in caregiver. The current one is ripping me off and doing absolutely nothing, including giving me food or any of my medication. IT'S HORRIBLE!!! Any recommendations? Thanks, Nick
Re: [QUAD-L] Magitek
Joan, may I suggest that you call the company directly. I have found them to be very helpful; and understanding in addressing those questions. Call them today. Best Wishes In a message dated 4/26/2010 10:14:15 P.M. Central Daylight Time, poaj...@sbcglobal.net writes: I just spent some time looking at Magitek. I know nothing about this, and their website does not show how it is used. Would you mind explaining how it works and how you utilize it? I notice the website is woefully not up to date. J I sometimes complain that my neck and shoulders hurt, and why does it have to be the part that I feel that hurts-course the rest of my body might hurt worse when I just can’t feel it. LOL Joan In the reno’s very undecided spring weather-75 yesterday, 46 for Wednesday and snow how great it is!
Re: [QUAD-L] looking for a good trailer for I will
Therapies are the results of both treatments and those people who administrate them. Wound Vac and a good person who knows how they work and are properly applied. Best Wishes In a message dated 4/27/2010 6:14:11 A.M. Central Daylight Time, dangerwo...@san.rr.com writes: I know there are some great treatments out there for wounds. Who knows of some? Thanks, Nick
[QUAD-L] sci nurse
I remember posts on the quad list concerning an sci nurse that would answer questions from quads. Any contact information? GA
Re: [QUAD-L] sci nurse
That might be. that could be.. our resident member LindaF. She's an RN too. Best Wishes In a message dated 4/27/2010 6:48:32 A.M. Central Daylight Time, gah17...@aol.com writes: I remember posts on the quad list concerning an sci nurse that would answer questions from quads. Any contact information? GA
Re: [QUAD-L] looking for a good trailer for I will
Hi Steve, I had a bad Stage 4 from Aug - Dec..the wound vac healed 100%. I now have zero issues. The key is you can not be in the chair until it heals. Good luck! Paul c5/6 - Original Message - From: Steve Crowder To: quad-list@eskimo.com Sent: Tuesday, April 27, 2010 3:03 AM Subject: [QUAD-L] looking for a good trailer for I will I know there are some great treatments out there for wounds. Who knows of some? Thanks, Nick
Re: [QUAD-L] Seeking Good Help
Hi Steve, Try some of the local nursing schools. A. You get someone who wants to learn B. It might be cheap and a good trade for you and them C. You might get a cute future nurse! - Original Message - From: Steve Crowder To: quad-list@eskimo.com Sent: Tuesday, April 27, 2010 12:10 AM Subject: [QUAD-L] Seeking Good Help I desperately need to find a good live-in caregiver. The current one is ripping me off and doing absolutely nothing, including giving me food or any of my medication. IT'S HORRIBLE!!! Any recommendations? Thanks, Nick
Re: [QUAD-L] sci nurse
In a message dated 4/27/2010 7:52:00 AM Eastern Daylight Time, wheelch...@aol.com writes: That might be. that could be.. our resident member LindaF. She's an RN too. Best Wishes In a message dated 4/27/2010 6:48:32 A.M. Central Daylight Time, gah17...@aol.com writes: I remember posts on the quad list concerning an sci nurse that would answer questions from quads. Any contact information? GA There was another woman in Florida (Breezy) who was a nurse but here is another site for questions: _New SCI - CareCure Forums_ (http://sci.rutgers.edu/forum/forumdisplay.php?f=51) Dianna
RE: [QUAD-L] new to group with lots of questions
Welcome, Karan! While each of our disabilities affect each of us differently, none of us are alone in this new adventure. My Uncle is a Dr. who studied the effects of indwelling medicinal pumps. His advice: Only as a very last resort. I took 20mg Baclofen 4x a day for 20 years, then switched to 600mg Neurotin 3x a day. If you talk with a Dr. who really understands muscle spasms as the neurological level AND understands what each of the receptor inhibitor drugs do, then you will find the right option for your specific needs. I, too, have a son. He is a great motivator for me. I've been considering writing a book on my experiences being a Dad in a chair. There are many tricks I had to learn on my own in raising him. God bless and welcome. Aaron Mann C4-5, 9/8/88 -Original Message- From: karan alexander [mailto:kabea...@optonline.net] Sent: Monday, April 26, 2010 6:59 PM To: quad-list@eskimo.com Subject: [QUAD-L] new to group with lots of questions Hi, I was walking with my children 2 yrs ago was struck by a teen who went off the road struck me as I was bent over. I am c4, 5 6 incomplete with feeling to the toes, just very altered sensation. I was in the hospital for almost 1 yr. I use a manual chair to amazement, I have bladder sensation bowels. Although I have my share of spasms (I take 10mg ditropn b.i.d), leakages at night and my bowels respond every 2-3 days with no added help. Pre-accident was normally every day. I have lots of tone/spasticity in L. leg am considering baclofen pump. I only take 20mg now of baclofen which does nothing. Any higher dose tires me liver function tests go abnormal. I am hooked on 25mcg fentanyl patches q48 hrs and still have pain. I refuse to add more meds. I do not ever sleep for more than an hr. every night. Waking in the a.m. is horrible - never used to be. I want to wean off fentanyl. Since I transfer to toilet with the transfer board (lots of work), I would love to find pants that help b/c I can't pull them up under me. This injury has caused our world to turn upside down some days it is so overwhelming. My kids keep me going God's healing. I feel like I'm the only mom in the world going thru this. At the time of the accident, I was 5wks from grad. college (RN). Since then, I graduated passed boards. Now what I LOVE nursing it's not easy to find it from a w/c. If I am assisted to stand, I can hold a walker for 5-10 mins a few steps - left leg hinders advancing it so dr. wants me to consider pump. I have great use of my dominant hand arm, left fingers are closed. Anyway, I could go on forever, so thanks for listening.
Re: [QUAD-L] Quadriplegic needing employment ideas
Since I became a quad I have done: computer programming, learned to program in QuickBASIC in the '90 to write a program that a company needed; web site setup and maintenance personal assistant, I guess that is what you would call it. I handle people's finances making sure their bills get paid, buy sell stocks, stuff like that. At 06:21 PM 4/24/2010, Ismael wrote: I have a friend who is quadriplegic and wants to know what types of jobs that he can do through the computer. Does anyone have any ideas? Thank you. Jim Lubin jlu...@makoa.org Home Page: http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [QUAD-L] new to group with lots of questions
Kabear97, I'm Dave and had a C3-4 incomplete dislocate in 1967 from a trampoline. I finished college in Math and with some additional classes, taught school for a few years. I loved those hours and most kids although the money wasn't all that hot. I left after getting a call from Honeywell to do computer programming in 1979. I spent a good share of '76, '77, '78' and '79 signing up with every state and private placement agency and sending out many resumes on my own. The state came through with a home based computer job about 2 days before Honeywell called. I'm sure I was hired to fill a 'quota' but I didn't and don't care as I did a lot of very good work for them for 25 years before they gave my job to India and got 5 engineers for the same price. I had and understand many lows involved with SCI life and want to assure that nothing is forever - things change. WE are living life at different levels now and it's wondrous to see what is available at those different levels. My mom left me with a few very insightful thoughts - if you hadn't broken your neck - you'd have killed yourself with your mach II, hair on fire lifestyle, AND you still have the most magnificent organ made by God to get you through life - your brain still works just fine - don't goof that up. (that was a marijuana reference). Please know that SCI life is an existence of ongoing experiments to see what works for you, all the rules have changed and you need to try EVERYTHING. Giving up just isn't a reasonable choice. Everyone on this list has something unique to give to you and I'm sure they will all share info as you ask. Please don't be shy - you are still in a pretty crappy stage of SCI. It DOES get better. AZDAVE. Nothing sucks more than that moment during an argument when you realize you're wrong. _Daveoconnell.com_ (http://daveoconnell.com/) In a message dated 4/26/2010 4:58:47 P.M. US Mountain Standard Time, kabea...@optonline.net writes: Hi, I was walking with my children 2 yrs ago was struck by a teen who went off the road struck me as I was bent over. I am c4, 5 6 incomplete with feeling to the toes, just very altered sensation. I was in the hospital for almost 1 yr. I use a manual chair to amazement, I have bladder sensation bowels. Although I have my share of spasms (I take 10mg ditropn b.i.d), leakages at night and my bowels respond every 2-3 days with no added help. Pre-accident was normally every day. I have lots of tone/spasticity in L. leg am considering baclofen pump. I only take 20mg now of baclofen which does nothing. Any higher dose tires me liver function tests go abnormal. I am hooked on 25mcg fentanyl patches q48 hrs and still have pain. I refuse to add more meds. I do not ever sleep for more than an hr. every night. Waking in the a.m. is horrible - never used to be. I want to wean off fentanyl. Since I transfer to toilet with the transfer board (lots of work), I would love to find pants that help b/c I can't pull them up under me. This injury has caused our world to turn upside down some days it is so overwhelming. My kids keep me going God's healing. I feel like I'm the only mom in the world going thru this. At the time of the accident, I was 5wks from grad. college (RN). Since then, I graduated passed boards. Now what I LOVE nursing it's not easy to find it from a w/c. If I am assisted to stand, I can hold a walker for 5-10 mins a few steps - left leg hinders advancing it so dr. wants me to consider pump. I have great use of my dominant hand arm, left fingers are closed. Anyway, I could go on forever, so thanks for listening. (http://daveoconnell.com/)
Re: [QUAD-L] Quadriplegic needing employment ideas
Jim, How did you get into the 'personal assistant' business? What all services do you offer to people? Dave In a message dated 4/27/2010 11:41:45 A.M. US Mountain Standard Time, jlu...@makoa.org writes: Since I became a quad I have done: * computer programming, learned to program in QuickBASIC in the '90 to write a program that a company needed; * web site setup and maintenance * personal assistant, I guess that is what you would call it. I handle people's finances making sure their bills get paid, buy sell stocks, stuff like that. At 06:21 PM 4/24/2010, Ismael wrote: I have a friend who is quadriplegic and wants to know what types of jobs that he can do through the computer. Does anyone have any ideas? Thank you. Jim Lubin jlu...@makoa.org Home Page: _http://makoa.org/jim_ (http://makoa.org/jim) disAbility Resources: _http://www.makoa.org _ (http://www.makoa.org/)
Re: [QUAD-L] Top 10 most annoying things people do to people using wheelchairs
I think it's funny. I hate it when people move things that I have in a certain place because it's more convient. Stacy From: Lissette Whitehead lissw...@hotmail.com To: diannal...@aol.com; quad-list@eskimo.com Sent: Mon, April 19, 2010 2:56:43 PM Subject: RE: [QUAD-L] Top 10 most annoying things people do to people using wheelchairs WHAT ABOUT WHEN PEOPLE TRY TO PUSH YOUR POWER CHAIR, LOL, I MEAN THERE'S NO WAY IN THE WORLD THEY WILL BE ABLE TO MOVE IT. Lissette Whitehead www.lissettesgoaltowalk.synthasite.com www.lwgripgloves.com From: diannal...@aol.com Date: Mon, 19 Apr 2010 14:47:08 -0400 Subject: Re: [QUAD-L] Top 10 most annoying things people do to people using wheelchairs To: quad-list@eskimo.com Drives me nuts when people reach for my controller and think they're going to 'just move me alittle. A nurse did this once in a small room. Before I could stop her I had her pinned up against the wall with a standing tray between us. I AlWAYS have mine set on high (or fast) because I know how to control it slower. OR people reaching down to hug ya when the power is on. Dianna Hotmail has tools for the New Busy. Search, chat and e-mail from your inbox. Learn more.
Re: [QUAD-L] Top 10 most annoying things people do to people using wheelchairs
Just remembered one of the most common annoyances of all! One of the first things I noticed that able-bodied people do all the time amongst themselves that doesn't work with C5 quads too well, is handing you something. Sometime they don't even get close, assuming you can lean-forward to reach it. Sometimes I'll grab between my two paws, but most times I'll ask them to put it down on my lap, or on an adjacent surface. Its amazing how many people (friends and family) don't remember, so I have to repeat Can you put it down here for me?
[QUAD-L] Re: Magitek
Did you look at the videos on the website? They explain how to use it somewhat. Basically I hit a button on my head rest and then put my head in the neutral position. This sets neutral. From there if I tilt my chin down, the wheelchair will move forward. If I tilt my head to the left or right it turns in that direction. Of course you can also tilt your head forward and to the left to make a turn. To go backward you tilt your head backward, but I like to think of it as lifting my chin up. The hardest thing for me to get use to was if I set my head in a different position, the chair drives faster or slower. At first this is a detriment, but later when you get used to it you can tilt your head backward while setting it so you can drive outside without having to tilt your head too far forward. Like I said, it's a learning process. I was using Peachtree for 14 years and it has been a pretty big transition. I feel pretty comfortable now going out, but it has taken me about six weeks to get that way. And I still make mistakes, but they're not as bad as they were at first. Programming is also pretty vital. It was extremely difficult because I thought I had a particular grasp of how to drive it, so I was having them set the program in a certain way only to discover I was setting it based on a different neutral position. Hopefully you can make heads or tails out of this. Quadius PS hopefully there aren't too many errors. I'm having trouble with my voice cracking today and NaturallySpeaking doesn't like it very much. On Mon, Apr 26, 2010 at 11:13 PM, Joan Anglin poaj...@sbcglobal.net wrote: I just spent some time looking at Magitek. I know nothing about this, and their website does not show how it is used. Would you mind explaining how it works and how you utilize it? I notice the website is woefully not up to date. J I sometimes complain that my neck and shoulders hurt, and why does it have to be the part that I feel that hurts-course the rest of my body might hurt worse when I just can’t feel it. LOL Joan In the reno’s very undecided spring weather-75 yesterday, 46 for Wednesday and snow how great it is!
[QUAD-L] How about the 10 most wonderful things people do to or for people using wheel chairs?
How about the 10 most wonderful things people do to or for people using wheel chairs? Peace be with you Nancy Pritchard ntpgrn...@aol.com 802-888-2056 h 802-355-3449 c
Re: [QUAD-L] Quadriplegic needing employment ideas
I started doing it for my brother when he was deployed. When he got back he wanted me to continue since he is busy with work and travels. I make sure his bills get paid, manage his retirement accounts. My aunt asked me if I could do the same for her. I suggested ways she could save money, got her on a cheaper phone plan, pay her bills, when she wants to buy or sell stocks she lets me know and I place the orders. I only do it for family. Of course the person has to trust you with all their account information. I use Quicken to handle accounts and Outlook to remind me when bills are due for those that I could not setup auto-pay for. I saw something on the news once about people doing personal concierge services. People doing services for people with busy lives. Google personal concierge to get some ideas. At 11:45 AM 4/27/2010, hellodav...@aol.com wrote: Jim, How did you get into the 'personal assistant' business? What all services do you offer to people? Dave In a message dated 4/27/2010 11:41:45 A.M. US Mountain Standard Time, jlu...@makoa.org writes: Since I became a quad I have done: computer programming, learned to program in QuickBASIC in the '90 to write a program that a company needed; web site setup and maintenance personal assistant, I guess that is what you would call it. I handle people's finances making sure their bills get paid, buy sell stocks, stuff like that. At 06:21 PM 4/24/2010, Ismael wrote: I have a friend who is quadriplegic and wants to know what types of jobs that he can do through the computer. Does anyone have any ideas? Thank you. Jim Lubin jlu...@makoa.org Home Page: http://makoa.org/jim disAbility Resources: http://www.makoa.org Jim Lubin jlu...@eskimo.com http://makoa.org/jim disAbility Resources: http://www.makoa.org
Re: [QUAD-L] Top 10 most annoying things people do to people using wheelchairs
Funny. My left hand has about 10% normal use - I can grab and open part way - wrist flex is so-so, surprising how little function can fool most people. My right hand will sort of grab if I force something into it - tiny wrist flex ability - mostly a paw.I do nearly everything with my left hand and keep right one down. A gal at work that I had lunch with for at least 15 years once asked what I was doing when I put my semi-open left hand up to my flexed right paw when she asked me to clap. She really had no clue.Pretty amazing.What could I ever expect them to know about digesting, and eliminating.Ignorance is bliss. I also had a 30 year experienced nurse put her knee in my back in my manual chair to push me down a rounded curb where my footrests had dug in. I grabbed fast enough to stay in - barely. AZDAVE In a message dated 4/27/2010 1:33:52 P.M. US Mountain Standard Time, r...@sockets.com writes: Just remembered one of the most common annoyances of all! One of the first things I noticed that able-bodied people do all the time amongst themselves that doesn't work with C5 quads too well, is handing you something. Sometime they don't even get close, assuming you can lean-forward to reach it. Sometimes I'll grab between my two paws, but most times I'll ask them to put it down on my lap, or on an adjacent surface. Its amazing how many people (friends and family) don't remember, so I have to repeat Can you put it down here for me?
