Another TMer still here too. I miss the people that used to use this site. Stay well.Linda - TexasFrom: Janice Nichols jannic...@gmail.com To: James Berg molokai...@gmail.com; tmic-l...@eskimo.net Sent:
Wednesday, March 12, 2014 9:39 AM Subject: Re: [TMIC] Meiling Caperton, Kanohe,
I agree with you Dalton. I always check for posting from this site. I also do
not trust Facebook. I have too many concern about privacy hacking to use the
site. Maybe talk here will increase sometime.
Linda E.
From: Dalton malugss...@gmail.com
To: amy
flu season.
Everyone knows not to come around me with any kind of cold symptoms any time of
the year.
From: Pat Voorheis pjv1...@chartermi.net
To: Dalton Garis malugss...@gmail.com
Cc: Janice Nichols jannic...@gmail.com; Linda Egli le...@sbcglobal.net
Jude,
I too have had bad fatigue a miserable summer. The hotter it gets, the
worse the fatigue. Sometimes I spend the day in my recliner. I have lost 8
pounds (YEA!) this summer, but it is because of the fatigue it has just been
too hot to eat. My PCP started me on a drug called Nuvigil
Janice,
My TM started gradually(over 1 month) with progressive numbness muscle
weakness. It started in my legs progressed up to my chest. I had banding
only around my chest it slowly disappeared over 4-5 months after diagnosis.
Never had any real pain. I ended up with about 50%
Janice,
I think you have has enough of an adventure for now! Are the doctors concerned
about the vertigo? Take care get better.
Linda E.
From: Barbara H. barbara...@gmail.com
To: tmic-list@eskimo.com
Cc: Janice Nichols jannic...@gmail.com
Sent: Saturday,
Yes, I'm still here reading. Member of group since 2004.
Linda E.
East Txas
From: Gary Thomas gbthomas8...@sbcglobal.net
To: Janice Nichols jan...@centurytel.net; heyjude48...@aol.com;
tmic-list@eskimo.com
Sent: Thursday, May 2, 2013 8:51 PM
Subject: Re:
Dalton,
I would be interested to see if this vaccine could improve your symptoms. but
please consult with your doctor or even an infectious disease MD before going
ahead. I have wanted to get this vaccine, but my MD says no. I have a friend
who got shingles said it was the worst pain she
My neurologist thinks that my last Flu shot (4/2004) probably precipitated my
TM. I was told then to never receive any further type of vaccine. I have not
even had a tetanus shot in 14 years.
Linda E.
East Texas
From: heyjude48...@aol.com
I lost a wonderful job working in a local Public Health Department. I had
worked there for 12 years loved every minute of the job. I went to the
doctor with severe numbness loss of motor function, I then saw a neurologist
after a 36 years as a nurse, my career was over. I left work that
As I get older (I am 67), my balance is worse walking can really fatigue me.
Also it seems the weather bothers me more. I use a walker at home try to only
use my cane when going out if I have someone on the other side to hold onto
steady my walking. When I go to the grocery store I use one
Jude,
All of this is funny, but sadly so true. I feel ancient sometimes. It is
wonderful to see all the activity on the TMIC site again.
Linda E.
Deep East Texas
From: john snodgrass jcs...@yahoo.com
To: transverse myelitis tmic-list@eskimo.com
Sent: Sunday,
I have had TM for 9 years , was told by my neurologist to never get another
flu shot or any other type of immunization (ex: tetanus or chicken pox). He
thought the flu shot was what precipitated my TM. I worry about catching the
flu, but everyone knows not to come around me if they have any
needed to see me
unless there was a problem. Is this normal not to be followed at least yearly?
I do see my Primary care doctor 3-4 times a year.
From: Butcher, Bernie (SFS) bernie.butc...@honeywell.com
To: Linda Egli le...@sbcglobal.net; tmic-list@eskimo.com
visits are normal.theres not much they can
do anyway.managment of symptoms can be done by primary care after you find
out what works best
From: Linda Egli le...@sbcglobal.net
To: Butcher, Bernie (SFS) bernie.butc...@honeywell.com
Cc: tmic-list@eskimo.com tmic
It is so good to here from you. It has been along time. I inquired awhile
back nobody really knew anything, Not much goes on this site anymore, I
think most people use facebook. Take care!
Linda E.
From: heyjude48...@aol.com heyjude48...@aol.com
To:
I was dx with TM 2004 used Provigil for extreme fatigue. Took the med about
6 months it helped, but stopped because of bad side effects. I could not
sleep more than 2-3 hours a night because it kept me awake it really made me
foggy in thinking. Nothing has really helped since. Just try
I am still here. Not a lot of talk on this site anymore, I think most use
Facebook. I am now going on 8 1/2 years with TM I guess I am as good as I'm
going to be. My neurologist said last December that he no longer needs to see
me unless their is a problem. I am just followed by my PCP,
Janet
My problem with the heat is fatigue. The hotter it gets the more my fatigue
increases. I also have increased muscle weakness more numbness. It seems
worse every summer. It is difficult to do much I basically spend the
summer in the house. My husband has relatives in North Dakota
I have had TM for 8 years. I have slowly lost about 1/2 of my hand function
it is not fun. The numbness in my hands seems to be increasing every year I
developed essential tremors in my right hand 2 years into the disease (I am
right handed). My hobbies had always been sewing,
I was dx'ed with TM 7 1/2 years ago. My neurologist said it was most likely
from the flu shot I had received 4 months earlier. I had taken a flu shot
regularly every year for 20+ years without problems. Per my neurologist - no
immunizations of any kind (not even a tetanus shot from then on).
Linda E - Deep East Texas
I am still here too, just read don't post much. Plus this has been a
terrible HOT summer for me I have been doing good just to get around the
house. We have had 50+ days straight of over 100 degree weather had about a
week of 105 to 110 temps. The
My husband's family is from around Bismark, N. D. we have jokingly talked
about going up there next summer if it is this hot again. We can be summer
birds instead of snow birds.
From: rn11...@yahoo.com rn11...@yahoo.com
To: Linda Egli le...@sbcglobal.net
Sent: Wednesday, August 31, 2011 12
My husband had both knees replaced 6 weeks ago. He spent 3 weeks in the
hospital with the last 2 weeks on an Acute Rehab Unit that was wonderful.
The
first week he had a constant motion machine on his knees to keep the muscles
limber to bend his knees. About every 2 days they increased
Provigil was the first drug I was given for severe fatigue in 1994 (when I was
first dx) it did nothing but keep me awake about 20 hours a day. I take
Amantadine 100 mgm AM PM, it has been the only thing that helps. If I am
having one of my not so good days nothing helps.
Linda E.
East
Iam just the opposite. Mornings are the worst for me. I try to schedule
anything likes appointments, shopping, etc. about 1 PM or later. I have also
figured out that if I overdo, I will pay for it the next day with horrible
fatigue
Linda E.
East Texas
It was 6 years for me in April. I do pretty well most of the time but when my
symptoms get worse, it can be hard to be positive. I have had increased
numbness weakness in my hands that now sometimes goes into my arms the
body
fatigue is back with a vengence, but I try to live with it.
I grew up lived in Dallas, Tx until age 38. Moved to deep East Tx in 1983
got TM in 2004. I was told by my neurologist that I probably got TM after a
flu shot.
Linda E. -Marshall, Tx
From: Kenneth Oliver kenoliver...@hotmail.com
To: tmic-list@eskimo.com
2004 - age 58
Linda - Marshall, Tx
From: Janice Nichols jan...@centurytel.net
To: tmic-list@eskimo.com
Sent: Thu, December 10, 2009 11:35:27 PM
Subject: [TMIC] Age
Hey!
I have a request. I was talking to my neuro and he was curious to know the
ages
that
Is Facebook really safe? I had read hackers can get your identy info off the
site. Have been afraid to go on there. Do you have to have a picture on there
or can you just use an avitar?
Thanks, Linda E.
Marshall,Texas
My neurologist is very adamant that I never receive vaccines of any kind. He
will not approve the pneumonia shot. My last tetanus shot was 11 years ago he
does not want me taking a booster of that shot either. He thinks my last flu
shot caused my TM. My
I have found a program called Sit Be Fit on public television that has
really helped me to exercise longer than 15 minutes ( if I am standing). This
program lasts about 25 minutes since I am sitting, I can go that long. The
program has a web site where you can check for any programs in your
I rarely respond - just read the e-mails, but this I will answer. I
developed TM 5 1/2 years ago it has changed my life. I had worked as an RN
for 37 years with the last 12 years as a Director of Nursing at the local
health department - I loved the
I have not taken a flu shot since 11/03. I developed TM 3/04 was told by my
neurologist that the flu shot probably caused my TM. He told me to never get
any kind of immunization again (this even includes tetanus shots). I have not
had any colds or flu since. I had taken a flu shot every
Regina.
Have you tried Amantadine? I had terrible fatigue for 31/2 years tried
Provigil 4AP without sucess. only side effects as bad as the fatigue. I
started Amantadine the end of December noticed a marked improvement in 2 days
now generally no fatigue unless I am really stressed
]
To: Linda Egli [EMAIL PROTECTED]
Sent: Saturday, May 10, 2008 5:19:06 PM
Subject: Re: [TMIC] Dr's visit, just a follow up
hi linda,
you stated you took 4AP. did you notice anything difference in your body?
good or bad?
Linda Egli [EMAIL PROTECTED] wrote:
Regina.
Have you tried
Trudy
I too have a terrible time with fatigue. I tried Provigil with bad side
effects it did not help either. Provigil is primary use for people with
narcolepsy (trouble staying awake) boy it do that for me. I would set my
alarm for 6AM to take it still was aswke at 3AM the next day. It
Grace,
Does the Amantadine aslo work for tremors (I noticed you said it was a
Parkinson disease drug), or do you have that problem? I have developed bad
right tremors (am right handed) nothing has helped that. Take Primidone
was taking Topamax, buth side effects with the Topamax were worse
I am glad the Mysoline has worked for you. I started with 50 mgm 2xday and
over 1 1/2 years now take 200 mgm 2xday with some improvement the first couple
of hours after I take it, but then my right hand is the same. I am getting
very good at becoming left handed.
Linda E.
- Original
I have not gotten a flu shot since I was dx with TM 31/2 years ago. My
neurologist says the flu shot my have precipitated my TM told me no
immunization of any kind from now on. This includes flu, pneumonia, even
tetanus shots. My primary care MD gives me a Rx for Tamiflu to have filled
that. No one ask me (a dr.) if I had had a ful shot or anything like
that. I'm kinda baffled no doctor tried to find out why I had gotten TM, (IF
there was a reason that we could know why). Natalie
Linda Egli [EMAIL PROTECTED] wrote:
I was told my TM was probably the result of my flu shot 11
When I got SSDI I had to be disabled for 6 months then SS started paying.
SS only withholds tax if you request the withholding.
Linda E.
Candis Kalley [EMAIL PROTECTED] wrote:
I had a big surprise today when I went online to check my bank funds.
Social Security had deposited
I worked as a RN in Public Health for 15 years until I retired in disability
(4/04) due to TM. We always told patients that by the time you felt something
on a breast self exam, that the lump had been growing for at least 5 years.
Heather Pieter [EMAIL PROTECTED] wrote: Jude, I think
#1 - I was dx 4/04 and mu neurologist hinted the onset of my TM could have
been caused by a flu shot I got 5 months earlier. Have been told no flu shot
or any kind of immunization (even tetanus) because the immunization could cause
a relapse of my TM .
#10 - I was sooo down the 1st year and
Linda C I started with 7 lesions from C2 to T5 (per MRI done 4/04). My last MRI (6/06) still showed 1 cervical lesion but I don't what level residuals from the other lesions (whatever that means). Linda EL T CHERPESKI [EMAIL PROTECTED] wrote:A question to Linda Elgi - your
Sandy I guess having residual effects on my old lesions means scarring. Dx was TM not MS because no lesions showed on the brain still don't. Linda E.[EMAIL PROTECTED] wrote:I'm sure you have mentioned this before, but forgive me. I don't have time to read the list in detail since I don't
My symptoms came on over a 6 week period. Started with numbness in hands feet, moved to arms legs, then to trunk chest with banding below my shoulder thankfully stopped there. Took about 6 months for all this to level out now left with numbness esp. in hands and feet, fatigue with anything I
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