Thanks for all the answers. Linda E.
________________________________ From: bobby jim <[email protected]> To: john snodgrass <[email protected]>; transverse myelitis <[email protected]> Sent: Monday, January 14, 2013 9:53 AM Subject: Re: [TMIC] Face book My wife goes to her neuro once a year, or less. Bobberino ----- Original Message ----- >From: john snodgrass >To: transverse myelitis >Sent: Tuesday, January 15, 2013 6:37 PM >Subject: Re: [TMIC] Face book > > >as far as going to the neuro unless there are circumstances that would cause >you to have to have help 6 month visits are normal.theres not much they can >do anyway.managment of symptoms can be done by primary care after you find >out what works best > > > >________________________________ > From: Linda Egli <[email protected]> >To: "Butcher, Bernie (S&FS)" <[email protected]> >Cc: "[email protected]" <[email protected]> >Sent: Tuesday, January 15, 2013 3:35 PM >Subject: Re: [TMIC] Face book > > >I was offered Copaxone by my neurologist about 2 years ago. He had a study >showing the drug could prevent TM from progressing to MS. However the study >was by the manufacturer of Copaxone so I declined to take it. One question >- when saw my neurologist Dec, 2011, I was told he no longer needed to see >me unless there was a problem. Is this normal not to be followed at least >yearly? I do see my Primary care doctor 3-4 times a year. > > > >________________________________ > From: "Butcher, Bernie (S&FS)" <[email protected]> >To: Linda Egli <[email protected]>; "[email protected]" ><[email protected]> >Sent: Tuesday, January 15, 2013 10:54 AM >Subject: RE: [TMIC] Face book > > > >I agree. I was diagnosed with TM in 2002 and MS in 2008. I think it was MS >all along. I stopped getting the flu shot in 2002, and no flu. (just lucky I >guess). I had a transplant in 1993, and my immune system is knocked down by >the anti-rejection meds. My doc and my neuro say to get the shot, but I >don’t. it’s my belief that they just don’t know, they don’t really know what >causes TM, they don’t know what causes MS, and they don’t really know what >effect the flu shot has with my condition. >So, I’ll take my chances. I’m taking Copaxone injections for MS. > >BERNARD BUTCHER >Honeywell Engineering >516-577-5868 >From:Linda Egli [mailto:[email protected]] >Sent: Tuesday, January 15, 2013 11:10 AM >To: [email protected] >Subject: Re: [TMIC] Face book > >I have had TM for 9 years , & was told by my neurologist to never get another >flu shot or any other type of immunization (ex: tetanus or chicken pox). He >thought the flu shot was what precipitated my TM. I worry about catching the >flu, but everyone knows not to come around me if they have any type of >illness. I also pretty much stay at home & avoid crowds in the winter, so >far no flu. I agree with Gary. I got a bad cold a few months ago & it >about did me in. I can't imagine what the flu would do. I miss the old >group on TM, but I just don't trust Facebook. The TMIC list is my contact >with other TMers. Nice to see some conversation on this site. >Linda E. in East Texas > > >________________________________ > >From:Gary Thomas <[email protected]> >To:Transverse Myelitis list <[email protected]> >Sent:Tuesday, January 15, 2013 8:25 AM >Subject:Re: [TMIC] Face book > >I used to get flu shots but stopped after getting TM in 2004. I have not had >the flu.....until this season! I got it at around Christmas and am still not >up to full strength (which is not that great anyway due to the fatigue I >already had from the TM). > > So, I am rethinking, should I get the shot next year, or not? Fortunately, >I did not pass the flu to my 87-year-old dad who always gets the shot but >forgot this time, or my pregnant daughter and her family visiting us while I >was sick, or my wife who has not gotten the shot either. I think her >chiropractor is not for getting it. I don't think my doctor or neurologist >had anything against getting the shot. I guess I'll have a year to think >about it??? > >The worst part about the flu was that my grandkids were here from Georgia and >I did not get to do much with them. > >Gary in Niles, MI >----- Original Message ----- >>From:Robert Pall >>To:[email protected] ; [email protected] >>Sent:Tuesday, January 15, 2013 8:11 AM >>Subject:Re: [TMIC] Face book >> >>I get the Flu and Pneumonia shot and have never gotten the flu in the past >>15 years. And The TMIC_LIST is pretty much the only one I read...it is too >>bad that so many of our group has gone to facebook...I guess you can't stop >>progress!~ >> >>Rob in New Jersey >> >> >> >>-----Original Message----- >>From: john snodgrass <[email protected]> >>To: transverse myelitis <[email protected]> >>Sent: Mon, Jan 14, 2013 10:59 pm >>Subject: Re: [TMIC] Face book >> >>i had the flu shot and the pneumonia shot the same time and i still cant >>play the violin! >> >>________________________________ >> >>From:Dalton Garis <[email protected]> >>To: Pat Cooley <[email protected]>; [email protected] >>Cc: tmic <[email protected]> >>Sent: Monday, January 14, 2013 9:31 PM >>Subject: Re: [TMIC] Face book >> >>I still listen and read. >> >>Because I still have TM and always will. By the Way, that mustard cure has >>greatly reduced seizures for me. Now, I only get them every 10 days or so. >> >>DG >>Dalton Garis >>Flushing, Queens >>New York, USA >>Mobile: 718-838-0437 >> >>From: Pat Cooley <[email protected]> >>Date: Monday, 14 January 2013 8:33 PM >>To: <[email protected]> >>Cc: tmic <[email protected]> >>Subject: Re: [TMIC] Face book >>Resent-From: <[email protected]> >>Resent-Date: Mon, 14 Jan 2013 17:33:21 -0800 >> >>Patti I think you made the right decision. You have to do what is best for >>you and your family. You need to protect your mom, hubby & grandchildren. >> >>Patti C. in Wisconsin >>On Mon, Jan 14, 2013 at 5:39 PM, <[email protected]> wrote: >>I've noticed some talk of people comng back to the tmic list for discussions >>and wondered just how many people actually look at this site anymore. The >>onky discussion I have is that I received my first flu shot last Wednesday >>since my 9 years with TM. We had two deaths from the flu in our area and I >>had a fear of carrying the flu to my 86 year old Mom, my diabetic hubby, or >>my grandchildren. My fears of being a carrier outweighed my fear of a >>reaction. I called my Neurologist and asked if he had any objection to me >>getting the flu shot. His answer was go ahead and get it. >> >>Patti V - Michigan >> >> >> >> > > > > >
