Re: CS>Help needed for lady with MS who suffered a stroke 5 months ago

[mborgert]

 

Hanneke,

I have not had a stroke but a severe brain injury where the left side of my scalp came off.  What followed, I was told, is what happens when one has a stroke.

PLEASE, If i do not have my sentence structure right or the words are wrong PLEASE do not call me iodiotic,stupid,dumb,ignorant, as dave nave  emailed this week.  I do not understand how people get away with calling people names.  But I must rise about him.

 

Accident 94, I could not read,write,talk walk,without falling, use my hands,watch tv or listen to radio or be under flour lites, no noise of anykind etc.  I actually lived in my closet.

I had 100 docs they all wanted to put me where your friend is or a mental institution for I would not take any drugs.

You are right FRUSTRATION is major but docs have no box for that word so they labeled you clinical depression.

First what helped me walk was crawling.. and crawling, to the point of crying,

Second.. doing childrens puzzles. point is using  left and right hand brain, putting square peg in square hole,, not easy to do.

third  tying anything left and right hand.

fourth being in the sun without sunglasses or any glasses. because the sun needs to get into the brain to heal..only way.. eyes open no glasses early in the morning or late at nite.  about 20 min a day.  No sun.. don't worry the uv rays penatrate you anyway.

Fifth, this is big  No flour lites at any time, no color anywhere, no clutter anywhere, no noise.  the brain cannot filter any of these items.

Anyway this is all I can email for now, my brain to shutting down.

I began to read books, this year, computer could only use 15 min a day because I saw quadruple of everything and the computer needs a filter my color was blue in front of computer.

If she could get on a computer.. this would be a life saver but she cannot look at the screen because of the thousands of lites??? the brain cannot filter these so use a gel filter, have to keep trying which one is ok for her

If you need more information let me know and I will give it to you.

Tell her when she cries, she is crying for the person who died.... her.  When I found this out it made sense why I cried.  I did die that day..twice, but my ME died also but I am slowly making my way back..

I am 66 yrs old.

Mary

 

 

-------------- Original message from Hanneke <bloss...@internode.on.net>: --------------


>
> Earlier this week, I caught up with some friends and one of them is
> desperate to get all and any information to help his partner towards
> recovery of a stroke, recovery for as far as possible under the circumstances..
>
> The lady in question is 58 years of age, has been suffering with MS
> for a number of years and was using a Goopher/scooter for transport
> since last October.
> In April of this year, she suffered a stroke and has been stuck in a
> nursing home ever since with the prognosis being: she will never come
> out of the nursing home, is bedridden and in another 12 months when
> the effects of the stroke have mellowed out one will have a clearer
> picture of what she will be like for the rest of her life (this is
> the message he was given by the medical and nursing staff of the nursing home).
>
> She receives physio therapy and some meds but I didn't ask what
> medications, nor whether the meds were for stroke related or MS
> related problems. The lady has the use of only one arm/hand, unable to walk,
> cannot speak other than grunt. From what I understood, apart from
> some memory loss, her mental abilities are in tact and the
> frustration and anger she feels about not being
> able to communicate as she used to gets the better of her at times.
> With the help of pictures she is able to let them know if she wants a
> glass of water, a coffee, or ovaltine..whether she wants her hair
> dryer, a comb... etc etc. This just to give an idea of how they are
> communicating.
>
> She recognises the alphabet and she has been given a children's
> keyboard which has large coloured letters which she manages to press
> when taking her time to hit them properly. This is connected up with
> a computer and shows up on computer screen.
> Yesterday, my daughter printed off a sheet with sign language for
> one hand which may help
> as well since she has the use of the one hand.
>
> My question is: would there be a list of supplements, diet
> ideas, exercise ideas which one wouldn't hear about in a nursing
> home but will help towards a recovery?
>
> Looking forward to your responses.
>
> Hanneke
>
>
>
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