I agree.  As health care is taken over more and more by those hungry for profit 
and power, i.e., insurance companies, big pharma and the government, it becomes 
less and less responsive to the actual needs of patients.  And doctors for that 
matter.

There seems to be a growing underground network of healthcare professionals, 
and their loyal following of patients, who are not afraid to buck the system 
and go off on their own into the worlds of alternative medicine and alternative 
medical practice.  Personally, I am quite willing to pay out-of-pocket for such 
care, because it is often more effective than orthodox medical care, plus it 
isn't nearly as expensive, given that those doctors get 100% of the money I 
give them, not having to share it with the insurance industry, except of course 
for malpractice premiums... <sigh>.

One result of this is a growing number of alternative doctors who are lyme 
literate, and who prescribe EIS in amounts and durations to actually cure the 
disease once and for all, which mainstream medicine and health insurance is 
unable and unwilling to do.

We may all be our own guinea pigs here, but the results speak for themselves, 
and I am very glad to have found this email list and group of 
independent-minded people, who aren't afraid to go over, through, or around the 
medical establishment, from whom I am learning so much.  Thank you.

Dick



----- Original Message ----
From: M. G. Devour <[email protected]>
To: [email protected]
Sent: Tue, January 26, 2010 4:50:40 PM
Subject: Re: CS>Anecdotal Evidence and CS

Sad tale, Steve, and good points.

Vito might have had a herx reaction, too. <sigh>

Still, if you add up enough anecdotal evidence across a large enough
population and long enough period of time, it starts to become
reasonable to draw some tentative conclusions.

For instance, how many folks report going for years at a time without
getting sick after starting to take CS... after a lifetime of getting
colds, flu, or whatever, on a regular basis along with everyone else?
Hear that tale often enough and you'll start to think maybe CS is
contributing to that.

Even in mainstream science and medicine, there's a vehicle for
developing research directions on the basis of clinical experience. If
a doctor sees something interesting happening in his or her patients,
they can publish this, usually in the form of a survey of the
literature and a case report, which seeks to interest researchers in
pursuing further studies based on those anecdotal reports.

Of course, we're not doctors, there are no "official" journals ready to
publish our reports, and no bevy of institutions looking for ways to
spend grant money developing our ideas. And ideas that are too radical
or "crackpot" sounding are unlikely to get picked up, even when it *is*
a doctor making the report. Some would also suggest there needs to be
some profit in the idea for somebody.

So for things like CS we're limited to watching the literature,
accumulating anecdotes, and doing as much testing as we can afford to
do as individuals and small groups. We can wish for more, but there's
still good that's come of what we've been able to do.

Mike D.


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