Full dose. First one wasn't too bad .. was tired for a couple of days
and that was it .. This third one has completely wiped me out. I
called the infusion center and they mentioned a lower dose. I'm seeing
the doc next week. I'm not sure I will continue this. :/ The buildup
sure sounds a lot more sensible.
On 6/7/2016 5:25 PM, [email protected] wrote:
One more thought: They don't start with a full dose. Did u get the
full dose at the beginning? My daughter did not. They start with a
low dose and I think she got another in two weeks (not absolutely sure
of time frame) with a little more in the second dose and so forth
until she gets the full dose. Then it's only one infusion a month I
believe. I don't think she's even reached the full dose yet. I do
remember her commenting the second caused a little more itching and a
little more tired, but nothing she couldn't handle. She gets her
infusion on a Friday and then sleeps most of the weekend.
Gail
Sent from my iPad
On Jun 7, 2016, at 11:54 AM, cassidy <[email protected]
<mailto:[email protected]>> wrote:
Wanda, thanks for the info. Yes, blood work shows deficiency. This
is day 7 after 3rd infusion and I am just miserable. I am itching
all over, I am weak, felt like I would pass out yesterday .. today
just very very tired. maybe I'm allergic to the product..
I am familiar with the LC... will get that started.
I'm due for another infusion in 2 weeks. I'm trying to determine if
it's worth it.
So wonderful that it worked for your daughter.
On 6/7/2016 11:35 AM, [email protected] wrote:
Hi Pat,
My daughter just started on them; I think she's had 4 so far.
