Have to work up on dose- mine was 10 first wk then wk 2 was 20 and then 2 wks later 30 and then final 40 every 4 wks. Have them slow down infusions and put ice on while doing. Use 12mm needles instead of 9mm and premedicate with Tylenol 1000mg and Benadryl 50mg. Still makes me tired and have pain but getting better. I'm getting subcutaneous infusion not iv.
------------------- Cassidy, The above is a text from my daughter regarding her dose. I don't know if the suvcutaneous infusion is different than the Iv ur doing tho. Gail Sent from my iPhone > On Jun 7, 2016, at 3:51 PM, cassidy <[email protected]> wrote: > > Full dose. First one wasn't too bad .. was tired for a couple of days and > that was it .. This third one has completely wiped me out. I called the > infusion center and they mentioned a lower dose. I'm seeing the doc next > week. I'm not sure I will continue this. :/ The buildup sure sounds a lot > more sensible. > > >> On 6/7/2016 5:25 PM, [email protected] wrote: >> One more thought: They don't start with a full dose. Did u get the full >> dose at the beginning? My daughter did not. They start with a low dose >> and I think she got another in two weeks (not absolutely sure of time frame) >> with a little more in the second dose and so forth until she gets the full >> dose. Then it's only one infusion a month I believe. I don't think she's >> even reached the full dose yet. I do remember her commenting the second >> caused a little more itching and a little more tired, but nothing she >> couldn't handle. She gets her infusion on a Friday and then sleeps most of >> the weekend. >> >> Gail >> >> Sent from my iPad >> >> On Jun 7, 2016, at 11:54 AM, cassidy <[email protected]> wrote: >> >>> Wanda, thanks for the info. Yes, blood work shows deficiency. This is day >>> 7 after 3rd infusion and I am just miserable. I am itching all over, I am >>> weak, felt like I would pass out yesterday .. today just very very tired. >>> maybe I'm allergic to the product.. >>> I am familiar with the LC... will get that started. >>> I'm due for another infusion in 2 weeks. I'm trying to determine if it's >>> worth it. >>> >>> So wonderful that it worked for your daughter. >>> >>>> On 6/7/2016 11:35 AM, [email protected] wrote: >>>> Hi Pat, >>>> >>>> My daughter just started on them; I think she's had 4 so far. >
