Thanks for the good news--James is home--and may he get better and better, and you too.
All the best to you both, you have been through so much! , Carol On Sun, Jul 12, 2020 at 12:33 AM Mimi Jasek <mjca...@gmail.com> wrote: > So sorry for the long silence! If any of this is old news, I apologize for > the repeat! Honestly too tired to check. > > I finally sprang Jim from rehab @ 4:30 Saturday afternoon 6/27. At least > he tested negative to his 3rd COVID test with results coming in Thursday > 6/25. Because all others on his wing that he had any contact with - as well > as staff - tested negative also, he got to leave. But at least two > residents at facility tested positive, and went to COVID unit. Someone who > worked there had tested positive - hence another test!! At least two > people at my work tested positive, and a number of staff who were in direct > contact without PPE under state Health Department guidelines had to be > tested - and quarantined till tesults back! We were closed one day for deep > cleaning. Luckily I have worn a mask out and about since late March or > early April, and at work once we did a soft reopening later in April. I was > never in direct contact with positives, so was not even eligible for > testing. We were so low staffed for almost a week and a half to two weeks, > the extra fast paced work just about did me in! Then Jim came home - after > I had worked that morning till close to 1:30, then ran last minute errands. > > I stayed home till going back to work on July 7th. It took days for Jim to > begin to settle down, and for me to realize the full impact of what did or > DID NOT happen in rehab. Jim was seriously like a kid who had been to a > summer camp for over a month with no rules, manners, or supervision!! I was > in retrain to human being mode for days ☹️ The isolation on residents is > horrible, and staff does what is necessary and not much else. All due to > fear of virus. Our PCP told us it is the same at all facilities around > here, and that he has long term patients that have done well for years who > - due to isolation - are hallucinating and having all kinds of health > problems 😢 > > Day after Jim got home, 6/28, HHC nurse visited, then the next day OT and > PT supervisors came. Then ST came Thursday 7/2, PT and OT came again by end > of that week, and twice a week schedules set by all. Nurse cones once a > week. Finally saw PCP Monday 7/6, got medicines fixed, and sitters worked > out. New normal with therapists in morn, plus doctor visits as come up, and > sitters in afternoon while I work started on Tue 7/7. > > As to how Jim is doing, he has good days and bad. He can dress himself, > and take care of personal hygiene fairly well, but at times sequency > prompting is still necessary. He is tired a lot, and can get upset or > scared by little things easily. I can sometimes tell he is “off” just by > his expression - a bit lost. I do not know if he will ever come all the way > back, but most people who speak to him find he is really good! When he gets > tired, or is awakened suddenly, he has issues. His PCP thinks, although a > clot started the event, that it could have been a brain clot rather than > from his heart due to the brain aneurysm he had back in Dec 2018? The coil > technique shuts down that blood supply, and there can be issues with > resupply from other areas of the brain? I am simply not sure, but do know > doc said no way to tell till he has another one?? Lord help us. > > I did leave Jim with sitters on July 4th to go be with my granddaughter in > Round Rock for her 13th birthday, and we both had a good day. While under > HHC and therapists he is not supposed to go anywhere except doctor visits > etc. I can usually leave him for around 2 hours by himself to go to work > some mornings to get in all my time, yet he got upset once because he fell > asleep and woke up alone before I got home 😢 So will leave him note when I > leave so he knows. I simply can’t afford a sitter all the time! Really > never, but for now he needs one in the afternoon. > > So, overall doing good, but hour by hour, day by day. My fatigue some days > is such that I quietly cry, and stress and fatigue has made my joint > condition raise its ugly head, plus dyshidrotic eczema on hands and wrists > from wearing gloves at work and using hand sanitizer causes another misery. > Got heavy duty medicine for that, but hard to find time to use due to > restrictions on covering it up! > > We will survive, and prevail one way or another. Just keep prayers and > positive vibes coming. After July I may not have any sitters, so do not > know how things will go. Life - and work - will go on though. > > Mimi > > Sent from my iPhone > _______________________________________________ > Texascavers mailing list | http://texascavers.com > Texascavers@texascavers.com | Archives: > http://www.mail-archive.com/texascavers@texascavers.com/ > http://lists.texascavers.com/listinfo/texascavers >
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