I had 2 episodes of TM the first 1/5/06 with T10 - T12 with just the legs affected and the second 1/31/06 with C4 to T2 affected which left me a quad for 3 days.
With PLEX treatments, on the second episode, I was able to start moving within 30 hours, THANK GOD - I say that now but for the 3 weeks I was in the hospital the 2nd time I wasn't so grateful. I have terrible back pain with any type of movement especially the legs. I also have to concentrate to walk especially moving my R leg which is worse since the 2nd episode but it was also the worst of the 2 legs with the 1st episode. My last MRI was last Nov. (2006) and it showed improvement within the T10 - T12 region but not the C4 - T2 but that it wasn't worse. I know that I don't have TM now - just the spinal cord injuries caused by TM. I am on 16 mg of zanaflex a day - 4 mg a.m. & afternoon and 8 mg before bed. While the zanaflex helps, when I'm having a bad day, I have the most problems. The worse is my back pain and I experience more problems with the R leg, hands and L arm. I have also experience full body spasticity whenever I turn from the waist but just certain times and certain ways?? I say that living with the effects of TM, "everyday is the same but different - different isn't always good different. Candy K. ----- Original Message ----- From: Gunny To: [EMAIL PROTECTED] Sent: 5/10/2007 11:27:19 AM Subject: Re: [TMIC] Another Symptom How long have you had TM, which is a wrong statement.You don't have it anymore you have the residual effects of it. the reason I ask is because, all the symptoms your stating, I had at onset. I still have the leg and foot involuntay turning from time to time, and the leg jumping. That only happens at night or if I shut down the nerve, normally, by crossing my legs or when sleeping, have one leg over the other. -----Original Message----- From: Candis Kalley Sent: May 9, 2007 10:52 PM To: Gunny Cc: tmic-digest Subject: Re: [TMIC] Another Symptom Well I guess I have both. For no reason, my legs will spasm, jerk in bed, sitting, and even walking. Then I also have the spasticity with my right leg and fingers on both hands where they will just cramp up and I can't straighten them. My right leg at times will draw up to my chest and I can't push it down or voluntarily straighten it. This can occur for a few seconds on up to a couple of minutes - REALLY FUN having TM. Candy K ----- Original Message ----- From: Gunny To: [EMAIL PROTECTED] Sent: 5/9/2007 5:20:08 PM Subject: Re: [TMIC] Another Symptom A spasm is when the leg jerks. Spasticity is when the muscle doesn't relax, and there's rigidity involved. -----Original Message----- From: Candis Kalley Sent: May 9, 2007 10:56 AM To: natalie mizenko , [EMAIL PROTECTED], Transverse Myellitis Subject: Re: [TMIC] Another Symptom Does this mean continious contracted? I'd call it when spasticity even if it is spastic rigidity or is that just a spasm? Candy K ----- Original Message ----- From: natalie mizenko To: [EMAIL PROTECTED];Transverse Myellitis Sent: 5/9/2007 1:43:40 PM Subject: Re: [TMIC] Another Symptom Yes, a neurologist saw me in the hospital and he said that I didn't have spasticity because he moved my foot and it was floppy like ever. He said see you have no spasticity. Natalie [EMAIL PROTECTED] wrote: I believe spasticity involves rigidity rather than flopping or jerking movements. From the National Institute of Neurological Disorders: 'Spasticity is a condition in which certain muscles are continuously contracted. This contraction causes stiffness or tightness of the muscles and may interfere with movement, speech, and manner of walking." http://www.ninds.nih.gov/disorders/spasticity/spasticity.htm Barbara H. http://barbarah.wordpress.com/ In a message dated 5/4/2007 8:34:47 PM Eastern Daylight Time, [EMAIL PROTECTED] writes: Don't they call this spasticity......????? Bobberino From: Trudy To: 'Natalie Boyles' ; 'Alton Ryder' Cc: [EMAIL PROTECTED] ; [email protected] Sent: Friday, May 04, 2007 1:07 PM Subject: RE: [TMIC] Another Symptom I too have had my arms flail away when I have fallen asleep in a chair watching the awful news or reading the even more depressing paperâÃÂæ I donâÃÂÃÂt think it happens when I am flat in bed. Tho I have been known to give my husband a big kick once in awhileâÃÂæ Of course he probably deserves it!! J âÃÂæ He is my heroâÃÂæ. Trudy From: Natalie Boyles [mailto:[EMAIL PROTECTED] Sent: Thursday, May 03, 2007 5:48 PM To: Alton Ryder Cc: [EMAIL PROTECTED]; [email protected] Subject: Re: [TMIC] Another Symptom Okay you guys, you sound like my husband and he is healthy --- I wonder. He flaps his arms and jerks his legs in his sleep so badly, I must leave the bed. If you find an answer to this dilemma please let me know about it. I am tired of being beaten. gggg Natalie On 5/3/07, Alton Ryder <[EMAIL PROTECTED]> wrote: I have something similar. Sometimes, when I am lying down during the day and I start to nod off, both arms will fly forward and the left leg might jerk towards my head. Not always, but it always wakes me. It doesn't happen when I go to bed. If either hand is holding something, that hand will not participate. Alton, who thought this unique and now no longer See what's free at AOL.com. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Yahoo! Autos. ________________________________________ PeoplePC Online A better way to Internet http://www.peoplepc.com ________________________________________ PeoplePC Online A better way to Internet http://www.peoplepc.com
