I too see my neurologist every 3 - 4  months. Even sooner if we're changing
medications.

Trudy

 

  _____  

From: Candis Kalley [mailto:[EMAIL PROTECTED] 
Sent: Thursday, May 10, 2007 12:35 PM
To: [EMAIL PROTECTED]
Cc: [EMAIL PROTECTED]; [email protected]; transversemyelitissupport
Subject: Re: [TMIC] Another Symptom

 

Naomi,

 

I see my neurologist every 3 months along with my PCP.  My next appt. is
6/27 for my neuro and 6/29 for my PCP.  I had PT/OT in the hospital along
with 6 month outpatient PT/OT.

 

I had 7 PLEX treatments in the hospital along with 4 over 2 month as
outpatient.  I can't believe that either you PMR or PCP hasn't referred you
to a neurologist.  My PCP won't do anything unless it is passed by the
neuro.  This also applied to the PT/OT.

 

Where do you live?  I think I would be screaming to see a neuro.  Have you
been to see Dr. Kerr or anyone else other specialist?

 

Dr. Kerr at least concurred with my neuro.  Both were happy with the PLEX
results that I experienced but not everyone has experienced - so?

 

I too have a lesion at C4 to T2 along with T10 to T12.  The T area has
improved but not the C areas BUT they aren't worse.

 

Prayers, blessings and thoughts for you.

 

Candy K.

 

 

----- Original Message ----- 

From:  <mailto:[EMAIL PROTECTED]> 

To: [EMAIL PROTECTED];[email protected]

Sent: 5/10/2007 12:05:36 PM 

Subject: Re: [TMIC] Another Symptom

 

Does everyone here on this site have a neurologist?  I have only seen the
neurologist once since I let the hospital, which was in November 2005.  My
healthcare is managed by my Physical Medicine and Rehabilitation
doctor(Physiatrist).  Any problems that I have had since my diagnosis in
July 2005, has been handled by my primary care physician or my physiatrist.

 

My neurologist was key in diagnosing my condition, but once I was diagnosed
and received plasmapheresis, the only thing that would help me after that
was therapy (which I am still trying to get more of).  I haven't ran into
any issues, where my neurologist was needed. 

 

Naomi
C-4 quad since July 2, 2005






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