Kevin, It sounds like she lost more than some of your records. If you get my
drift. Well I just we had closer access to Dr. Kerr and His staff. I do believe
in him and I'm sure that he is sick and tierd of just this very same thing. I
wish we could clone him.. But were stuck for rignt now with what we have. I
have have found a neuro down here that is familiar with Dr. Kerrs' work and he
also is upset with the FDA for moving as slow as molasses on a cold winter
morning. Please Dear Lord give us the strength to hold on for as long as we can
until we are able to move forward with the Stem Cell saga. We pray in your sons
name. Rick
>
> From: Kevin Wolfthal <[EMAIL PROTECTED]>
> Date: 2007/05/09 Wed PM 03:23:47 EDT
> To: [EMAIL PROTECTED], [email protected]
> Subject: Re: [TMIC] Another Symptom
>
>
>
> The last neurologist I went to told me that I can't have Transverse
> Myelitis because
> I have spasticity in my legs. Say what? She also subsequently lost some of
> my EMG test results. I no longer go to her, needless to say. It is sad
> how little knowledge
> many neurologists have about TM.
>
> Kevin
>
>
>
>
>
>
> [EMAIL PROTECTED] wrote:
> > Rigidity in my case feels more like tendons are stiff and mostly where one
> > meets the next tendon. The Spacstic jerks and and such in my case are quite
> > different. The only thing that I do to help me with the rigidiity seems to
> > be valium. I have tried Zana-flex and anotherone that I can't remember the
> > name of now. Plus I have not used the newer one called Requip and any other
> > restlegs therapy meds. Alot of people think that Valium I just alittle to
> > much. But I say if it works why try to fix it. God Bless. Rick
> >
> >> From: "Candis Kalley" <[EMAIL PROTECTED]>
> >> Date: 2007/05/09 Wed PM 01:56:02 EDT
> >> To: "natalie mizenko" <[EMAIL PROTECTED]>, [EMAIL PROTECTED],
> >> "Transverse Myellitis" <[email protected]>
> >> Subject: Re: [TMIC] Another Symptom
> >>
> >> Does this mean continious contracted? I'd call it when spasticity even if
> >> it is spastic rigidity or is that just a spasm?
> >>
> >> Candy K
> >>
> >>
> >> ----- Original Message -----
> >> From: natalie mizenko
> >> To: [EMAIL PROTECTED];Transverse Myellitis
> >> Sent: 5/9/2007 1:43:40 PM
> >> Subject: Re: [TMIC] Another Symptom
> >>
> >>
> >> Yes, a neurologist saw me in the hospital and he said that I didn't have
> >> spasticity because he moved my foot and it was floppy like ever. He said
> >> see you have no spasticity. Natalie
> >>
> >> [EMAIL PROTECTED] wrote:
> >> I believe spasticity involves rigidity rather than flopping or jerking
> >> movements. From the National Institute of Neurological Disorders:
> >>
> >> 'Spasticity is a condition in which certain muscles are continuously
> >> contracted. This contraction causes stiffness or tightness of the muscles
> >> and may interfere with movement, speech, and manner of walking."
> >>
> >> http://www.ninds.nih.gov/disorders/spasticity/spasticity.htm
> >>
> >> Barbara H.
> >> http://barbarah.wordpress.com/
> >>
> >> In a message dated 5/4/2007 8:34:47 PM Eastern Daylight Time, [EMAIL
> >> PROTECTED] writes:
> >> Don't they call this spasticity......?????
> >>
> >> Bobberino
> >> From: Trudy To: 'Natalie Boyles' ; 'Alton Ryder' Cc: [EMAIL
> >> PROTECTED] ; [email protected]
> >> Sent: Friday, May 04, 2007 1:07 PM
> >> Subject: RE: [TMIC] Another Symptom
> >>
> >>
> >> I too have had my arms flail away when I have fallen asleep in a chair
> >> watching the awful news or reading the even more depressing paper??? I
> >> don???t think it happens when I am flat in bed. Tho I have been known to
> >> give my husband a big kick once in awhile??? Of course he probably
> >> deserves it!! J ??? He is my hero???.
> >> Trudy
> >>
> >>
> >>
> >>
> >> From: Natalie Boyles [mailto:[EMAIL PROTECTED]
> >> Sent: Thursday, May 03, 2007 5:48 PM
> >> To: Alton Ryder
> >> Cc: [EMAIL PROTECTED]; [email protected]
> >> Subject: Re: [TMIC] Another Symptom
> >>
> >> Okay you guys, you sound like my husband and he is healthy --- I wonder.
> >> He flaps his arms and jerks his legs in his sleep so badly, I must leave
> >> the bed. If you find an answer to this dilemma please let me know about
> >> it. I am tired of being beaten. gggg
> >> Natalie
> >> On 5/3/07, Alton Ryder <[EMAIL PROTECTED]> wrote:
> >> I have something similar. Sometimes, when I am lying down during the day
> >> and I start to nod off, both arms will fly forward and the left leg might
> >> jerk towards my head. Not always, but it always wakes me. It doesn't
> >> happen when I go to bed. If either hand is holding something, that hand
> >> will not participate.
> >> Alton, who thought this unique and now no longer
> >>
> >>
> >>
> >>
> >>
> >>
> >>
> >> See what's free at AOL.com.
> >>
> >>
> >>
> >>
> >> Ahhh...imagining that irresistible "new car" smell?
> >> Check out new cars at Yahoo! Autos.
> >>
> >>
> >
> >
> >
>
>
>
