Larry,I also agree with you too. I too am pretty disgusted with the medical field in general. But like I tried to indicate there is a need for a library of information available to your GP to simply look at what your trying to relate to them and possibly give you help. This may be a bigger help to newbies who are at a loss for word that describe what they are trying to relay to some greenhorn GP. We really have to look at the bigger picture. This has nothing to do with your past experiences with DR. This will also be contributed to by our own Dr. Kerr. Not only will it help cases now but this is not going to stop, TM is a fact of life and Drs. need to know how to help us. Do you remember how scary this was when you first got it. Well, I do, and there was absolutely no information available at that time. The Tm community is growing by leaps and bounds and if we don't keep up with it then we're all as well as future cases left in the hands of the uninformed medical communi! ty. We owe this to the future TMers, if no one else. This is not too much to ask of us. Rarely does Sandy ask anything of us. If he thinks this is something we need, then I for one believe and support him. He is our President and when he talks we need to listen and respond. Thats all there is to it.Rick
-- GOD BLESS US ALL> -------------- Original message ---------------------- From: Larry Throne <[EMAIL PROTECTED]> > > > > > Rick, > I agree with what you are saying and fully support Sandy's effort. My initial > treating doctor is now deceased. Since then, I've known more about TM than > most > of the doctors I've seen. I really haven't had any treatment for TM since I > first got sick back in 1974 but I have been treated for pain management, > UTI's, > physical therapy,ect... > I think many of us are in the same boat or just don't want to refer anyone to > their doctor. I've seen many Neuro's over the years and can't recommend any > of > them. Most were distant, cold and just wanted to write narcotic scripts to > get > me out of their hair. I have done every thing I can to forget who they were. > > From some of the post I have read over the years, there are a lot of us in > the > same situation. Regardless, I still agree with you and Sandy and encourage > others to help Sandy with this endevor. > > Larry in Oklahoma who has enjoyed the sunshine today. > > > From: [EMAIL PROTECTED]> To: [email protected]> CC: > [email protected]> Date: Tue, 8 Jan 2008 21:53:33 +0000> Subject: [TMIC] > Spring newsletter> > Dear membership, This is Rick in Tn. Back in spring in > our > newsletter, Sandy had issued a challenging project to us and had very little > response to it, which is an absolute shame. The initative was to instigate a > data-base of your Drs., Your main Dr. that you visit on a regular basis. This > is > the Dr. that hopefully is helping you to live with your case of TM. The shame > is > that only nine of us responded to Sandy's request. The objective of this > data-base is to give your Dr. a real live place where he or she can get > access > to information about the treatments available to help your Dr. best treat > your > individual case of TM or any of the other afflictions that are in the scope > of > our group, be it TM, ADEM, MS ect. I just got off of the phone with Sandy and > I > feel that he was about to give up on the notion. This is not good simply > because > it gives your Dr. a data-base that they may go to where they can get the most > up > to date information on the range of treatments available to us!> . This > is > for > our benefit and also and most important your Dr. can find ways to help us > survive with this monster. It would be an absolute shame to let this idea > just > slip away without a chance to see if it will help us and our DRs. And by the > way > Sandy wanted me to say Hi to all of you and to wish you all a healthy New > Year.> > > Now here is another chance for us to get this data-base into reality mode. > > All > you have to do is send Sandy in an e-mail or call him with contact > information > about your Doctor, such as first Their Name,the organization they work at, > Their > address,city state and zip code,Their phone number include area code,and most > important their e-mail address. You should make sure that this is cool with > your > Dr. Listen folks this is for our benefit and the importance of this is of the > highest priority. Sandy told me that this is going to be a very difficult > process, but together we can make it work. Our Drs. need to know what is > available to them and to our treatment. Make sure your Doctor understands > that > all of his information will be kept in a completely safe and secure data-base > free of infestation. Now, Sandy assured me that this will not be a simple > process so if you have any valid suggestions on setting up a data-base your > expertise will be wanted if not required. People Please,!> this i> s > something > of a breakthrough and it will require some of the best minds we have. Sandy > has > initiated a very challenging project, so lets not let him down. Your Spring > Newsletter 2007 touches on this so dig them out and read from the first page > of > Volume7 Issue 2 (from the editor). Together we can make this a reality and > another source for us to get the type of help we need and deserve. Please > lets > don't drop the ball, this will require a concerned effort from everyone so , > LETS GET IT DONE> Thanks and God bless us all. Rick Ashford in Tennessee. > 01/08/08> >
