Very good news Cammy, Does he know that we are looking for his help on this matter. Understand, that this is all new for me as of now I don't know where we stand on all of this but I was asked by Sandy to help out on getting this idea back in peoples heads as far as tmers. And so far as of my first post on this subject I have had several people who are now showing an interest in developing this data-base. So basically this is the extent of my involvement. I will continue to be a sounding board for Sandy and I will keep answering e-mails from members and reminding them what we are trying to do. This is important and I will try to do my very best at renewing the interest that Sandy needs. Then I will be passing this information along to Sandy so he can start putting this project into motion. Thanks for your help. Rick
-- GOD BLESS US ALL> -------------- Original message ---------------------- From: Cammy <[EMAIL PROTECTED]> > > He is up on what is going on. Simply a great reference to have for the > Portland > area. So is OHSU for that matter. Emmanuel Hospital knew about TM, but OHSU > will > do more. If someone were to be stricken with this there, you would tell them > to > get to OHSU. > > -----Original Message----- > From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] > Sent: Wednesday, January 09, 2008 2:57 PM > To: Cammy > Subject: RE: [TMIC] Spring newsletter > > Cammy, What kind of contribution do you feel Dr.Burdett can lend to us on > this > project? Rick > > -- > GOD BLESS US ALL> > > > -------------- Original message ---------------------- > From: Cammy <[EMAIL PROTECTED]> > > > > Hi. Dr. Burdett in Portland at OHSU is the man. He came through Dr. > > Greenberg > > from Johns Hopkins. > > > > -----Original Message----- > > From: [EMAIL PROTECTED] [mailto:[EMAIL PROTECTED] > > Sent: Tuesday, January 08, 2008 1:54 PM > > To: tmic-list > > Cc: tmic-list > > Subject: [TMIC] Spring newsletter > > > > Dear membership, This is Rick in Tn. Back in spring in our newsletter, > > Sandy > had > > issued a challenging project to us and had very little response to it, > > which > is > > an absolute shame. The initative was to instigate a data-base of your Drs., > Your > > main Dr. that you visit on a regular basis. This is the Dr. that hopefully > > is > > helping you to live with your case of TM. The shame is that only nine of us > > responded to Sandy's request. The objective of this data-base is to give > > your > > Dr. a real live place where he or she can get access to information about > > the > > treatments available to help your Dr. best treat your individual case of TM > > or > > any of the other afflictions that are in the scope of our group, be it TM, > ADEM, > > MS ect. I just got off of the phone with Sandy and I feel that he was about > > to > > give up on the notion. This is not good simply because it gives your Dr. a > > data-base that they may go to where they can get the most up to date > information > > on the range of treatments available to us! > > . This > > is for our benefit and also and most important your Dr. can find ways to > > help > us > > survive with this monster. It would be an absolute shame to let this idea > > just > > slip away without a chance to see if it will help us and our DRs. And by > > the > way > > Sandy wanted me to say Hi to all of you and to wish you all a healthy New > Year. > > > Now here is another chance for us to get this data-base into reality > > > mode. > > All you have to do is send Sandy in an e-mail or call him with contact > > information about your Doctor, such as first Their Name,the organization > > they > > work at, Their address,city state and zip code,Their phone number include > > area > > code,and most important their e-mail address. You should make sure that > > this > is > > cool with your Dr. Listen folks this is for our benefit and the importance > > of > > this is of the highest priority. Sandy told me that this is going to be a > > very > > difficult process, but together we can make it work. Our Drs. need to know > what > > is available to them and to our treatment. Make sure your Doctor understands > > that all of his information will be kept in a completely safe and secure > > data-base free of infestation. Now, Sandy assured me that this will not be a > > simple process so if you have any valid suggestions on setting up a > > data-base > > your expertise will be wanted if not required. People Please,! > > this i > > s something of a breakthrough and it will require some of the best minds we > > have. Sandy has initiated a very challenging project, so lets not let him > down. > > Your Spring Newsletter 2007 touches on this so dig them out and read from > > the > > first page of Volume7 Issue 2 (from the editor). Together we can make this a > > reality and another source for us to get the type of help we need and > > deserve. > > Please lets don't drop the ball, this will require a concerned effort from > > everyone so , LETS GET IT DONE> Thanks and God bless us all. Rick Ashford in > > Tennessee. 01/08/08 > > > > > >
