Todd, I think I would include both Doctors. If one rejects the idea maybe the other will see the advantage in having this information. The main thing is to get them involved so this can come into reality. I think for sure the DR. that is treating you for TM would appreciate the information more than anyone else. Explain what we're trying to do and assure him that he has nothing to lose and everything to gain, especially if he treats more than one case of TM. I explained this to my Dr. on the phone instead of in person because I wanted to get this information to Sandy as fast as I could. So you may want to just put in a call to your private Dr. that handles your TM. case. Please, it is important that we get this underway asap. There are going to be many obsticals to deal with, and the sooner we get started on this the better. If you have any ideas on developing this data-base then get in touch with Sandy at your earliest conveince. Time is of the essence so we need to get cra! cking o n this. From now on direct you mail to Sandy so he can start building or planning a format. I for one cannot wait to see how this develops. Thank you Todd, your help will be greatly appreciated. Rick Ashford
-- GOD BLESS US ALL> -------------- Original message ---------------------- From: Todd Tarno <[EMAIL PROTECTED]> > > Thanks for the reminder. > My partner/caregiver had it & other catalogs put aside and forgot to give > it > to me. I have two doctors. One with the state for my HIV+ and one under my > Humana Part-D insurance. I have given a couple of newsletters to my state's > doctor, because I have been with him since moving to Corpus Christi, TX and > he > was interested in them. I don't know which one doctor or if I should do both > doctors. > I know there are wonderful data base programs out there, that are better > than > Excel ( which I don't have, but know how to use ). > Thanks Again, Peace & BIG Hugs, > Todd in CC, TX > > [EMAIL PROTECTED] wrote: > Dear membership, This is Rick in Tn. Back in spring in our newsletter, > Sandy > had issued a challenging project to us and had very little response to it, > which > is an absolute shame. The initative was to instigate a data-base of your > Drs., > Your main Dr. that you visit on a regular basis. This is the Dr. that > hopefully > is helping you to live with your case of TM. The shame is that only nine of > us > responded to Sandy's request. The objective of this data-base is to give your > Dr. a real live place where he or she can get access to information about the > treatments available to help your Dr. best treat your individual case of TM > or > any of the other afflictions that are in the scope of our group, be it TM, > ADEM, > MS ect. I just got off of the phone with Sandy and I feel that he was about > to > give up on the notion. This is not good simply because it gives your Dr. a > data-base that they may go to where they can get the most up to date > information > on the range of treatments available to > us! > . This > is for our benefit and also and most important your Dr. can find ways to help > us > survive with this monster. It would be an absolute shame to let this idea > just > slip away without a chance to see if it will help us and our DRs. And by the > way > Sandy wanted me to say Hi to all of you and to wish you all a healthy New > Year. > > Now here is another chance for us to get this data-base into reality mode. > > All > you have to do is send Sandy in an e-mail or call him with contact > information > about your Doctor, such as first Their Name,the organization they work at, > Their > address,city state and zip code,Their phone number include area code,and most > important their e-mail address. You should make sure that this is cool with > your > Dr. Listen folks this is for our benefit and the importance of this is of the > highest priority. Sandy told me that this is going to be a very difficult > process, but together we can make it work. Our Drs. need to know what is > available to them and to our treatment. Make sure your Doctor understands > that > all of his information will be kept in a completely safe and secure data-base > free of infestation. Now, Sandy assured me that this will not be a simple > process so if you have any valid suggestions on setting up a data-base your > expertise will be wanted if not required. People Please,! > this i > s something of a breakthrough and it will require some of the best minds we > have. Sandy has initiated a very challenging project, so lets not let him > down. > Your Spring Newsletter 2007 touches on this so dig them out and read from the > first page of Volume7 Issue 2 (from the editor). Together we can make this a > reality and another source for us to get the type of help we need and > deserve. > Please lets don't drop the ball, this will require a concerned effort from > everyone so , LETS GET IT DONE> Thanks and God bless us all. Rick Ashford in > Tennessee. 01/08/08 > > >
