I gotta agree with Gunny on this. I've been working side by side with a lot of
doctors over the past 18 years and although most MD's go in to the profession
with some honorable idealism it doesn't take long to get sucked in to the money
hungry, narcissistic mind set. I don't know how many times I have seen
psychiatric patients come into the hospital, get stabilized on medications only
to have "their" doctor completely change the regimen without even thinking of
the consequences for the patient. See, they can charge more for the Rx change
during the office visit and besides, "that idiot at the hospital doesn't know
what he is doing" mentality. I'm pretty sure that if you throw a statement like
"are you willing to do the research into my disease. Can I count on you,
Doctor, to access this web-site so that you may be better informed on all the
available information we have gathered concerning our vast array of symptoms
that come along with this disease or do I need to find another doctor" You'll
find your self looking for that other doctor. And when you ask for your records
to be sent to the next doctor, there is a strong chance that there will be some
comment about possible "personality disorder" or "difficult to work with"
comment noted in your chart that will be flagged by the nursing staff. I've
seen it many times. You have to remember that this is a very tight brotherhood.
(I think most of the nurses in the group will agree) Those guys take care of
each other, even if the info is incorrect. Don't get me wrong, your right! Just
be careful on how you handle it. You might end up looking for a new doctor in
an other town. I've dumped plenty of doctors in the past 30 years and have even
turned one or two in to the medical board.
I do have to say that I do know and have known plenty really good doctors, but,
they are their own breed. There is a lot asked of them from a lot of different
directions. Some of them just don't have the time to do the the "research"
other that scan periodicals and journals.
That's just my two cents worth!
Larry in Oklahoma who wants to share a sad joke: What do marijuana and Oklahoma
Sooner football team have in common? They both get smoked in a bowl!
> From: [EMAIL PROTECTED]> To: [EMAIL PROTECTED]> CC: [email protected]>
> Subject: Re: [TMIC] Spring newsletter> Date: Thu, 10 Jan 2008 23:25:45 +0000>
> > Gunny,I completely understand with you that this is the way most doctors
> are. But I refuse to let another doctor do this to me. The way I would like
> to see this data-base operate is for us, the Tm patient, should have a way to
> use the data-base just the same way that the doctor does. This way when we
> have an appointment with a doctor, we could take with us the information that
> we need contained in the data-base that deals with our problem so we can
> physically give this information to the doctor and then show the doctor what
> is involved in accessing the data-base on Transverse Myelitis, ADEM, MS, and
> all of the diseases contained in the scope of sais data-base. Then you can
> give this information to the Dr. and ask him calmly, " This is what I am
> living with everyday, do you have the intention and desire to work with me to
> help me. And are you willing to do the research into my disease. Can I count
> on you, Doctor, to access this web-site so that you may be better informed on
> all the available information we have gathered concerning our vast array of
> symptoms that come along with this disease or do I need to find another
> doctor who is willing to do the research that will be called on you to do."
> This is exactly the way I would handle this problem. I think that his would
> get the results that you are looking for. You are going to be required to
> stand up for yourselves in these matters or get ready to be treated in the
> fashion that you are already being treated with. Thats the way I see it. Rick
> in Tennessee. God bless us all> > --> GOD BLESS US ALL>> > > --------------
> Original message ----------------------> From: [EMAIL PROTECTED]> >> > Rick:>
> > > > Yeah, probably a wate of time. As I mentioned before, all the Doctors I
> > > sent invitations to did not respond. That tells me, they have no
> interest. I > > think they would prefer to keep thier patients who have TM or
> MS under thier > > control. You know, these so called Doctors value thier
> time and expect to get > > paid for it. Asking them to take a survey or act
> upon one or more of thier > > patients on that patients behalf is time
> consuming.90% of Physicians out there > > are in the business of medicine for
> the money. I don't think many of them > > care about a cure which may or may
> not put them out of business. Or, for that > > mater, looking at a new
> treatment that may help an individual patient.> > > > It's a dirty damn
> shame, but 12 years into this has taught me this > > lesson. Personally, my
> Doc at Cleveland Clinic probably would participate as he > > and Doug are
> asshole buddies now, and, he has a genuine interest in this as he > > does
> research with Doug. As for most General Practitioners, unles they are > >
> specifically interested in this field, they wont participate. That's what my
> > > experience has taught me. I may be wrong, but I don't think I am.> > > >
> > > > > **************Start the year off right. Easy ways to stay in shape. >
> > http://body.aol.com/fitness/winter-exercise?NCID=aolcmp00300000002489> >
