Turn that AC down!!! I see you are definitely into the "air movement" like
I am. Sure helps. I also wear a patch on my
are to help with overheating.. It is clonidine - so far it doesn't work.
I need to talk to my doc to see what plan B is.
Janice
----- Original Message -----
From: [email protected]
To: Janice ; bradebi ; transverse myelitis
Sent: Tuesday, June 16, 2009 10:04 PM
Subject: Re: [TMIC]
AC is set at 74 right now just in the living room we have 1 ceiling fan and 4
floor fans and yep, still warm.... bedroom has 2 ceiling fans and 3 floor fans
and have to sleep on top of the sheets
-------------- Original message from "Janice" <[email protected]>:
--------------
Kim, what do you have your thermostat set at in summer? We keep ours
at 71 degrees and I have ceiling fans in every room. I really seem to need to
have to have air movement as much as cool air. Janice
----- Original Message -----
From: [email protected]
To: bradebi ; transverse myelitis ; Janice
Sent: Friday, June 12, 2009 9:32 PM
Subject: Re: [TMIC]
I am sitting here with the AC going, ceiling fan and two fans on me and
sweating! feet feel like there on fire(when I put lotion on them it melts and
turns to water) no kidding. banding is on right side rib cage to waist.
Kim
-------------- Original message from "bradebi" <[email protected]>:
--------------
Hi Janice
I get very hot when it is only in the 70 or 80's for no reason I
can just be on the computer or watching TV and I will get real hot so much that
I sweat a lot..(I soak my blouse) but I only sweat on my face neck and
breasts..my lesion is at nipple level T4 my banding is where my bra
snaps...so it feels like my bra is way to tight.
In the cold weather I get more spastic and tight it hurts to bend
knees and ankles. I still have the banding in winter too...and if my husband
puts the furnace up to high I will over heat...I love to go out in the snow
with just what I have on and bear foot and watch all the steam come off me..its
a riot...
Debi
TM spastic paraplegic T4 incomplete
South Lake Tahoe Ca.
From: Janice
Date: 6/11/2009 6:41:35 PM
To: transverse myelitis
Subject: [TMIC]
This is Janice,
I have 2 questions:
1. With hot weather coming, do any of you have a problem with all
of a sudden being really hot? I know some
of you had a problem with the cold last winter, but does your
body change in summer and you get hit with being hot instead
of cold? I really have a problem with heat - especially with
humidity. I get hot, then weak. Not good.
2. Several of you have mentioned the tight "band" around your
body. I am not sure this band is in the same place for
everyone. Also, has there been any change in the band with
those of you who have had TM for a long time?
