EXACTLY!!! :) But it is really important that we do share in that it may be something someone can explain or help with! j
-------Original Message------- From: [email protected] Date: 6/21/2009 4:40:41 PM To: Janice; bradebi; tmic-list; jrushton Subject: [TMIC] Warming sensations Lately I have started getting an odd warming sensation in the left side of my left calf muscle. It doesnte hurt at all. It starts and is gone about 30 later. Pardon the description but it feels exactly like warm pee running down my leg. I look and even feel. Then as quickly as it is there its gone. Has only happened inside the house. How bizzare. -- imagine trying to describe this to anyone outside this group lol Sent from my Verizon Wireless BlackBerry From: "Janice" Date: Sun, 1 Jan 2006 01:03:17 -0600 To: bradebi<[email protected]>; tmic-list<[email protected]>; jrushton<[email protected]> Subject: Re: [TMIC] I am right in there with you guys. So hot all the time - even with my clonidine patch. Doc is getting a call in the morning to do something about this. Has been a got weekend even though I spent my time in cool places. Janice ----- Original Message ----- From: bradebi To: tmic-list ; jrushton Sent: Saturday, June 20, 2009 8:28 PM Subject: Re: [TMIC] Jeanne I apologize I didn't reply to this before today....I am in the process of moving..and have been looking for a cute little cabin.. It sure is a mess isn't it?...I am so tired of being so hot all the time. sheese were I live it doesn't get very hot, but to me it is burning me up.. It's pouring down wet old sweat! "..LOL that's cute....I think of it in the same way...it starts on my scalp and I can feel it run all way down to my bra...then nothing..I haven't gotten really cold here yet. I am interested in the bra you are saying here?...were do you get it?.. sorry guys! LOL....I have been wearing sports bra's because the band hits me in a different spot. How are your legs?...can you walk? Debi From: jrushton Date: 6/18/2009 6:26:41 PM To: bradebi; tmic Subject: Re: [TMIC] My injury is the exact same area as yours, Debi, and since it happened my thermometer hasn't worked right. I didn't used to seat hardly at all and now right out of the blue, sweat just pours down my face and chest! It's not pretty sweat. It's pouring down wet old sweat! I also wake almost every night and have to take the blankets off of me because I'm so warm. During the day, I get hot and cold so I never know! I did find I have to wear a special kind of bra that doesn't cause too much pressure under my breasts due to the 'band'. It can be so horribly painful and I have found a brand of bra that seems to help. They are the Lilyette and the fabric is wonderful against the skin. You can get them with support or not. Time to go.. I hope this helped a little??? Jeanne -------Original Message------- From: bradebi Date: 6/12/2009 9:27:32 PM To: transverse myelitis; Janice Subject: Re: [TMIC] Hi Janice I get very hot when it is only in the 70 or 80's for no reason I can just be on the computer or watching TV and I will get real hot so much that I sweat a lot..(I soak my blouse) but I only sweat on my face neck and breasts .my lesion is at nipple level T4 my banding is where my bra snaps...so it feels like my bra is way to tight. In the cold weather I get more spastic and tight it hurts to bend knees and ankles. I still have the banding in winter too...and if my husband puts the furnace up to high I will over heat...I love to go out in the snow with just what I have on and bear foot and watch all the steam come off me..its a riot .. Debi TM spastic paraplegic T4 incomplete South Lake Tahoe Ca. From: Janice Date: 6/11/2009 6:41:35 PM To: transverse myelitis Subject: [TMIC] This is Janice, I have 2 questions: 1. With hot weather coming, do any of you have a problem with all of a sudden being really hot? I know some of you had a problem with the cold last winter, but does your body change in summer and you get hit with being hot instead of cold? I really have a problem with heat - especially with humidity. I get hot, then weak. Not good. 2. Several of you have mentioned the tight "band" around your body. I am not sure this band is in the same place for everyone. Also, has there been any change in the band with those of you who have had TM for a long time?
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