LOL...can I come too?!
Debi
 

     
. 
                                                 
 
-------Original Message-------
 
From: [email protected]
Date: 6/16/2009 8:43:27 PM
To: Janice;  bradebi;  transverse myelitis
Subject: Re: [TMIC]
 
Plan "B" is for me to moce into an IGGLOO!
 
-------------- Original message from "Janice" <[email protected]>:
-------------- 

 
   Turn that AC down!!!   I see you are definitely into the "air movement"
like I am.   Sure helps.    I also wear a patch on my
   are to help with overheating..   It is clonidine - so far it doesn't work
   I need to talk to my doc to see what plan B is.
   Janice
----- Original Message ----- 
From: [email protected] 
To: Janice ; bradebi ; transverse myelitis 
Sent: Tuesday, June 16, 2009 10:04 PM
Subject: Re: [TMIC]


AC is set at 74 right now just in the living room we have 1 ceiling fan and
4 floor fans and yep, still warm....  bedroom has 2 ceiling fans and 3 floor
fans and have to sleep on top of the sheets
-------------- Original message from "Janice" <[email protected]>:
-------------- 

 
 Kim,  what do you have your thermostat set at in summer?      We keep ours
at 71 degrees and I have ceiling fans in every room.   I really seem to need
to
  have to have air movement as much as cool air.        Janice
----- Original Message ----- 
From: [email protected] 
To: bradebi ; transverse myelitis ; Janice 
Sent: Friday, June 12, 2009 9:32 PM
Subject: Re: [TMIC]


I am sitting here with the AC going, ceiling fan and two fans on me and
sweating! feet feel like there on fire(when I put lotion on them it melts
and turns to water) no kidding. banding is on right side rib cage to waist.
Kim
-------------- Original message from "bradebi" <[email protected]>:
-------------- 

 
 
 
 
    
Hi Janice
I get very hot when it is only in the 70 or 80's  for no reason I can just
be on the computer or watching TV and I will get real hot so much that I
sweat a lot..(I soak my blouse) but I only sweat on my face neck and breasts
.my lesion is at nipple level  T4  my  banding is where my bra snaps...so it
feels like my bra is way to tight.
In the cold weather I get more spastic and tight it hurts to bend knees and
ankles. I still have the  banding in winter too...and if my husband puts the
furnace up to high I will over heat...I love to go out in the snow with just
what I have on and bear foot and watch all the steam come off me..its a riot
..
Debi
TM spastic paraplegic T4 incomplete
South Lake Tahoe Ca.
 
 
 
 
 
 
From: Janice
Date: 6/11/2009 6:41:35 PM
To: transverse myelitis
Subject: [TMIC]
 
This is Janice,
 
I have 2 questions:
 
1. With hot weather coming, do any of you have a problem with all of a
sudden being really hot?  I know some
of you had a problem with the cold last winter, but does your body change in
summer and you get hit with being hot instead
of cold?    I really have a problem with heat - especially with humidity.  I
get hot, then weak.   Not good.
 
2.  Several of you have mentioned the tight "band" around your body.  I am
not sure this band is in the same place for
everyone.    Also, has there been any change in the band with those of you
who have had TM for a long time?  
 
 
 



 

<<Spiral_notebook.jpg>>

Reply via email to