I am right in there with you guys. So hot all the time - even with my clonidine patch. Doc is getting a call in the morning to do something about this. Has been a got weekend even though I spent my time in cool places. Janice ----- Original Message ----- From: bradebi To: tmic-list ; jrushton Sent: Saturday, June 20, 2009 8:28 PM Subject: Re: [TMIC]
Jeanne I apologize I didn't reply to this before today....I am in the
process of moving..and have been looking for a cute little cabin..
It sure is a mess isn't it?...I am so tired of being so hot all the
time..sheese were I live it doesn't get very hot, but to me it is burning me
up.. " It's pouring down wet old sweat! "..LOL that's cute....I think of it in
the same way...it starts on my scalp and I can feel it run all way down to my
bra...then nothing..I haven't gotten really cold here yet.
I am interested in the bra you are saying here?...were do you get
it?...sorry guys! LOL....I have been wearing sports bra's because the band hits
me in a different spot.
How are your legs?...can you walk?
Debi
From: jrushton
Date: 6/18/2009 6:26:41 PM
To: bradebi; tmic
Subject: Re: [TMIC]
My injury is the exact same area as yours, Debi, and since it happened
my thermometer hasn't worked right. I didn't used to seat hardly at all and
now right out of the blue, sweat just pours down my face and chest! It's not
pretty sweat. It's pouring down wet old sweat! I also wake almost every night
and have to take the blankets off of me because I'm so warm. During the day, I
get hot and cold so I never know!
I did find I have to wear a special kind of bra that doesn't cause too
much pressure under my breasts due to the 'band'. It can be so horribly
painful and I have found a brand of bra that seems to help. They are the
Lilyette and the fabric is wonderful against the skin. You can get them with
support or not.
Time to go.. I hope this helped a little??? Jeanne
-------Original Message-------
From: bradebi
Date: 6/12/2009 9:27:32 PM
To: transverse myelitis; Janice
Subject: Re: [TMIC]
Hi Janice
I get very hot when it is only in the 70 or 80's for no reason I can
just be on the computer or watching TV and I will get real hot so much that I
sweat a lot..(I soak my blouse) but I only sweat on my face neck and
breasts..my lesion is at nipple level T4 my banding is where my bra
snaps...so it feels like my bra is way to tight.
In the cold weather I get more spastic and tight it hurts to bend knees
and ankles. I still have the banding in winter too...and if my husband puts
the furnace up to high I will over heat...I love to go out in the snow with
just what I have on and bear foot and watch all the steam come off me..its a
riot...
Debi
TM spastic paraplegic T4 incomplete
South Lake Tahoe Ca.
From: Janice
Date: 6/11/2009 6:41:35 PM
To: transverse myelitis
Subject: [TMIC]
This is Janice,
I have 2 questions:
1. With hot weather coming, do any of you have a problem with all of a
sudden being really hot? I know some
of you had a problem with the cold last winter, but does your body
change in summer and you get hit with being hot instead
of cold? I really have a problem with heat - especially with
humidity. I get hot, then weak. Not good.
2. Several of you have mentioned the tight "band" around your body. I
am not sure this band is in the same place for
everyone. Also, has there been any change in the band with those of
you who have had TM for a long time?
<<Spiral_notebook.jpg>>
