________________________________
From: Robert Pall <
[email protected]>
To:
[email protected]Sent: Thursday, July 16, 2009 2:40:07 PM
Subject: [TMIC] Medications
Medications
I mentioned previously that I visited Dr. Kerr on 7/1/09 and we decided to adjust my meds. Presently for the most part I take 2 meds for the banding, pins & needles and numbness. They are 4-Aminopyridine and Lyrica. I was taking the 4-aminopyridine (a Potassium channel blocker) twice a day (20 mgs each)…I have been taking this medicine for approx. 8 years…..2 weeks ago I cut my dosage in half and starting tomorrow I will cease taking this med…so far I have not noticed any changes resulting in
the lower dose and I will keep you informed as to any changes I experience going off this med completely. I also take 150 mg of Lyrica 3x per day. Starting today I will cut this down to twice a day for 2 weeks and then once a day for 2 weeks before stopping it altogether. Hopefully I will notice little or no change getting off this medication which I have been on for more than 4 years.
Assuming no problems getting off the Lyrica..Dr. Kerr will prescribe a new med for the banding (don't ask me the name…I promise to let you know)…he also said he could prescribe a new med to help with my constant fatigue (again don't ask me the name).
As per his advice I am now swimming for an hour at least 3 times a week..it is not doing much for the TM but it is getting my body in better shape. Having had TM for almost 12 years my dreams of a cure seem more and more
distant..so I therefore vow to try and keep my body as healthy as possible and deal with the pain and discomfort as much as medicine can help me.
I will keep the group informed as to the weaning off of my current meds and any new meds I begin to take!
All the best!
Rob in New Jersey
