MedicationsBarney, I have taken Baclofen for about 2 years. It really helps
leg/foot spasms I get at nite. I like it.
Janice
----- Original Message -----
From: Butcher, Bernie (S&FS)
To: Robert Pall ; [email protected]
Sent: Thursday, July 16, 2009 2:15 PM
Subject: RE: [TMIC] Medications
Hi Rob - do you take Baclofen? Next week I am going in the hospital for a
spinal tap trial before I get a Baclofen pump installed. I am wary about the
whole thing
Barney
------------------------------------------------------------------------------
From: Robert Pall [mailto:[email protected]]
Sent: Thursday, July 16, 2009 2:40 PM
To: [email protected]
Subject: [TMIC] Medications
I mentioned previously that I visited Dr. Kerr on 7/1/09 and we
decided to adjust my meds. Presently for the most part I take 2 meds for the
banding, pins & needles and numbness. They are 4-Aminopyridine and Lyrica. I
was taking the 4-aminopyridine (a Potassium channel blocker) twice a day (20
mgs each).I have been taking this medicine for approx. 8 years...2 weeks ago I
cut my dosage in half and starting tomorrow I will cease taking this med.so far
I have not noticed any changes resulting in the lower dose and I will keep you
informed as to any changes I experience going off this med completely. I also
take 150 mg of Lyrica 3x per day. Starting today I will cut this down to twice
a day for 2 weeks and then once a day for 2 weeks before stopping it
altogether. Hopefully I will notice little or no change getting off this
medication which I have been on for more than 4 years.
Assuming no problems getting off the Lyrica..Dr. Kerr will prescribe
a new med for the banding (don't ask me the name.I promise to let you know).he
also said he could prescribe a new med to help with my constant fatigue (again
don't ask me the name).
As per his advice I am now swimming for an hour at least 3 times a
week..it is not doing much for the TM but it is getting my body in better
shape. Having had TM for almost 12 years my dreams of a cure seem more and more
distant..so I therefore vow to try and keep my body as healthy as possible and
deal with the pain and discomfort as much as medicine can help me.
I will keep the group informed as to the weaning off of my current
meds and any new meds I begin to take!
All the best!
Rob in New Jersey
