I have had no pain in my eyes at all. Janice
----- Original Message -----
From: <[email protected]>
To: "Catherine" <[email protected]>; "Robert Pall" <[email protected]>;
"Transverse Mylitis Group" <[email protected]>
Sent: Thursday, July 16, 2009 2:49 PM
Subject: [TMIC] Eye pain
Do any of u have pain n ur eyes?
Sent from my Verizon Wireless BlackBerry
-----Original Message-----
From: Catherine <[email protected]>
Date: Thu, 16 Jul 2009 12:47:01
To: Robert Pall<[email protected]>; Transverse Mylitis
Group<[email protected]>
Subject: Re: [TMIC] Medications
Good Luck Rob I wish you the best!!
________________________________
From: Robert Pall <[email protected]>
To: [email protected]
Sent: Thursday, July 16, 2009 2:40:07 PM
Subject: [TMIC] Medications
Medications
I mentioned previously that I visited Dr. Kerr on 7/1/09 and we
decided to adjust my meds. Presently for the most part I take 2 meds for
the banding, pins & needles and numbness. They are 4-Aminopyridine and
Lyrica. I was taking the 4-aminopyridine (a Potassium channel blocker)
twice a day (20 mgs each)…I have been taking this medicine for approx. 8
years…..2 weeks ago I cut my dosage in half and starting tomorrow I will
cease taking this med…so far I have not noticed any changes resulting in
the lower dose and I will keep you informed as to any changes I experience
going off this med completely. I also take 150 mg of Lyrica 3x per day.
Starting today I will cut this down to twice a day for 2 weeks and then
once a day for 2 weeks before stopping it altogether. Hopefully I will
notice little or no change getting off this medication which I have been
on for more than 4 years.
Assuming no problems getting off the Lyrica..Dr. Kerr will
prescribe a new med for the banding (don't ask me the name…I promise to
let you know)…he also said he could prescribe a new med to help with my
constant fatigue (again don't ask me the name).
As per his advice I am now swimming for an hour at least 3 times a
week..it is not doing much for the TM but it is getting my body in better
shape. Having had TM for almost 12 years my dreams of a cure seem more and
more distant..so I therefore vow to try and keep my body as healthy as
possible and deal with the pain and discomfort as much as medicine can
help me.
I will keep the group informed as to the weaning off of my current
meds and any new meds I begin to take!
All the best!
Rob in New Jersey
